Robynoksana
Active Member
- Messages
- 40
- Type of diabetes
- Type 1
Hi there @Robynoksana
welcome to the forum
Your topic pretty much is a question on just about everything
with all the advances made in recent years in medicines there should be no deterioration in your lifestyle - just an extra layer of thought surrounding your lifestyle.
my immediate advice is to try not to worry , take things 1 day at a time , use all your diabetic care team ( they get paid to look after you ) and keep posting here-
there are many many topics on the forum dealing with the types of questions you raise.
it is worth having a read around the forum and that should provide some reassurance that life can go on and you can enjoy it.
Hi all
This past Friday I was newly diagnosed with Type 1 diabetes after being admitted to hospital with diabetic ketoacidosis.
I'm 21 and, until this, have always been healthy. Understandably, I'm pretty overwhelmed and I'm worried about how this will affect my day to day life going forwards. Obviously the diabetic clinic nurses are all saying that I can continue living my life just the way I am now, going to work, meals out with my partner etc but I wanted to speak to someone who actually is Type 1 diabetic and see what changes they have had to make in their life and how their condition has affected them.
I'm particularly interested in how - if at all- your diabetes has affected work, pregnancy, sex life and how people treat you (socially, professionally etc). And how having diabetes has changed your life, for the better or worse.
I don't know what questions I should be asking the diabetic clinic.
Any advice is welcomed!
I empathise Robynoksana and Maggie.
I was diagnosed Type 1, 10 days ago. So much to learn and overwhelming huh?!
However, for me (well this is the spin I'm putting on it) it's a positive wake-up call. One which signals to live more healthily - and even vibrantly potentially. I know it sounds weird but I feel somehow better since beginning treatment - food+exercise+insulin. Maybe it's the honeymoon period ;o).
Also, I think you have to respect the 'condition' but also to find humour in it - or t least your own angle; I now think of my pancreas as a pouting prima donna. It helps. Well, it helps me anyways. I'm refusing to allow diabetes to be central to my life. It's a new set of skills and lifestyle rather than an identity.
One of the things I've found helps is telling people about it, what you need to do, how you feel. I've be amazed how people react in such positive ways. It would be easy to feel self conscious about it. It's inevitable and I admit I've been feeling brittle the last week. Peaks and troughs I guess. However, one thing I've been determined to do is not hide it (testing blood glucose, injecting insulin - not in my rump of course ;o) in cafes, restaurants... in front of friends.
A bit of a rant I know and very subjective but maybe some of my rambling will resonate with you guys.
Hope you're both getting good support from Healthcare services and wishing you all the best from another newbie.
C
I empathise Robynoksana and Maggie.
I was diagnosed Type 1, 10 days ago. So much to learn and overwhelming huh?!
However, for me (well this is the spin I'm putting on it) it's a positive wake-up call. One which signals to live more healthily - and even vibrantly potentially. I know it sounds weird but I feel somehow better since beginning treatment - food+exercise+insulin. Maybe it's the honeymoon period ;o).
Also, I think you have to respect the 'condition' but also to find humour in it - or t least your own angle; I now think of my pancreas as a pouting prima donna. It helps. Well, it helps me anyways. I'm refusing to allow diabetes to be central to my life. It's a new set of skills and lifestyle rather than an identity.
One of the things I've found helps is telling people about it, what you need to do, how you feel. I've be amazed how people react in such positive ways. It would be easy to feel self conscious about it. It's inevitable and I admit I've been feeling brittle the last week. Peaks and troughs I guess. However, one thing I've been determined to do is not hide it (testing blood glucose, injecting insulin - not in my rump of course ;o) in cafes, restaurants... in front of friends.
A bit of a rant I know and very subjective but maybe some of my rambling will resonate with you guys.
Hope you're both getting good support from Healthcare services and wishing you all the best from another newbie.
C
Hi @Robynoksana. Welcome to the forum.
These are very difficult questions to answer...mostly because everyone deals with things differently. It really is a case of taking each day as it comes and learning 'on the job' so to speak.
Diabetes shouldn't stop you from living a 'normal' life...you can still do all the same things as everyone else in terms of work and relationships. Work wise...depending on your chosen career path there can be a few restrictions...but it very much depends on what you do...or want to do. Eating out can sometimes be a bit of a headache...but with the right tools and experience these things become easier in time. A great book/app to get is 'Carbs and Cals'...this will become your best friend...along with your meter...testing regularly will help you to recognise how different foods affect you so that you can act accordingly next time.
Unfortunately...there is a huge lack of knowledge regarding diabetes...mostly caused by the media...so you will undoubtedly come up against some strange attitudes or people with little or no knowledge telling you that you can't do this...should do that etc...which is why it's so important to educate yourself...a book I would recommend is 'Think like a Pancreas' by Gary Scheiner. This forum is also great for this...I've been diabetic for 16 years now but I still learn something new every day from this site...the information from others living with this condition can offer is invaluable and has helped me personally to turn my diabetes around in the last year or so. Keep asking questions...we are here to support one another.
Perhaps the most important thing to ask your health team about is about Carb Counting. The NHS offer a course called DAFNE - Dose Adjustment for Normal eating which will give you a lot more control over the way that you choose to eat.
For me personally...I don't think Diabetes is the worst thing to ever happen to me...it is what it is...sure it's not always easy...there are good days and bad days...but for the most part...with a little forward planning there is nothing I can't do...just like anyone else.
Keep positive...it will get easier.
Robynoksana Hi I was also sent to hospital on Friday and diagnosed with Type 1 diabetes. It sounds like we've got a lot to learn! I have a good nurse that has been very informative! I hope you have the same...it's scary being sent to emergency but I've decided it is what it is and I've got to get on with it...I've got too busy a life not too! Best wishes to you Maggie
Honestly, thank you so much! Your post made me laugh and took a little of the daunting feeling away!
It is so much to take in all at once but I just came out of my first appointment with the dietitian and my diabetic nurse and I'm feeling slightly more positive. My partner and I are hopefully going out for a meal this weekend and I think once that's done, I'll be a bit more confident in my social life.
I have been told not to return to work until my blood glucose has stabilised which is a bit of a concern as I don't know how long this will take and, whilst my employer is being super supportive, there is only so much absence they can allow before it affects my clients and colleagues (I am a file handler in a law firm so every day I'm off, my clients files aren't really being dealt with).
I've worked through a lot of emotions in the past week and I've done the whole "why me" thing, but my partner is being amazing and keeps reminding me that I'm not sick, I just have a condition, and that's helping.
I guess it doesn't help that I am mortally afraid of needles and doctors Haha but it's something I'll have to get used to cause I'm going to be seeing a lot of both!
I hope you stay positive - you sound pretty tough and hopefully I'll be able to emulate some of that and not let the negatives get the best of me xx
Tha
Thanks Natalie!
Funnily enough I've just left the clinic after my first appointment with the health care team and they've also told me to buy Carbs and Cals! Going to order it off amazon ASAP!
Whilst I was in hospital, the nurses were serving me potatoes with EVERY meal (jacket, mashed, you name it!) so I've been replicating that diet since coming home. Apparently that's not good!
Another little thing I've learned in the past week which I can now apply to my diet going forward.
I'm learning, little by little, and I think in time I'll be able to do all of the things I want to. The dietician has said its best to not go to the gym until my blood glucose is consists try 10 or below (I'm averaging on 16/17mmol at the moment) and to stay off work for a week or so until I'm stable and used to the idea of having diabetes but after that I'm hoping to just go back to usual, perhaps with some positive changes in my diet and routine!
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