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Type 1?

loubylou

Member
Messages
9
Hi there.
After a very eventful week I have been diagnosed as Type 1? :? . to be confirmed by blood test.
Wow very confusing lol. After 3 weeks of sugars in 30's n GP not able to decide. I then ended up with ketones and being sent straight to hospital, once there was assessed put on insulin for good so they say. :?:

Been given a ketone monitor to keep eye on levels at home and have to phone hospital to increase insulin over next few days, as it has come on so fast so they arent sure what dose i require @ moment. Had endless blood tests not sure what most of them was for tho.

Next appointment 5th December so hopefully know more then. Until then will regularly visit this site (not good with computers tho lol) :wink:
 
Hi loubylou and welcome to the forum Regardless of which type you turn out to be, this information for new members should be very helpful to you to give you an idea of what to do. This will help you to get your levels down. Ask as many questions as you like as there is always someone here to help.

 
Hi (again)

They'll have put you on insulin regardless of type because of the extremely high sugar levels you had, the ketones can also be serious.

However, if they ran a bunch of tests and concluded T1 then you'll have been tested for C-peptide and anti-bodies test, perhaps anti-GAD? As these two help to determine clear cut diagnosis for adult onset of T1.

I am going to be on insulin as of the 12th Dec, I too was diagnosed, got my letter on Thurs because the ant-GAD showed antibodies. Thankfully I wasn't at your sugar levels when I got my diagnosis (although my morning fast today was 19.1....so will need to keep a close eye on this).

Hope you're feeling better now you're on insulin.

Good luck and keep in touch.

 
Hi Loubylou

Wow your story is a mirror image of what has happened to me over the past 4 weeks!

I also had BG's in the high 30's was told i had type 2 and put on metformin then due to levels not coming down after being on six tablets a day they put me on insulin! and confirmed i was also type 1..

Least we both know what it is now tho and things can be dealt with!! I've just had my two week follow up appointment at the hospital today and things are getting clearer and clearer! i hope this is the same situation with you? Things are confusing at first and for me very frustrating! but things get better with more knowledge!
This is a great place to find out hints and tips some really nice and helpful people on here

With regards to the blood test! when i had mine it was to see if any damage had been done to other organs ie kidneys/liver and to see if any acid in the body??

Hope you find this site as helpful as i have and if you want to chat or compare problems as we are in the same time scales of getting this, feel free to contact me..

Take Care
Ant
 
Hi Sanober,

Sorry to hear you've been diagnosed type 1!!. Hope u feeling much better.
Still waiting for results of the GAD test, should get results 16th when im seeing specialist.
Good luck for your appointment on the 12th.
For me going back onto insulin made me feel so much better, hope it does same for you.
Take care, keep in touch
 
Hi Ant

How are you?. Thanx for reply, always nice to hear from someone who knows what you're going through . How are you managing with the insulin?. OK I hope. Im finding it more difficult this time I must admit. I was on insulin while pregnant then stopped after I had baby. They leave you for 6 wks then retest you to see if you are diabetic or just for pregnancy.

Not as easy with an 8 year old and 4 month old baby to keep monitoring and injecting lol. Will get into routine soon hopefully. I felt better as soon as I started Insulin though. Just seem to be plagued by colds and bugs etc at the moment. Get all my test results this friday, so will feel better when I get them.

How are your BG readings now?. Mine are still between 15 - 20, suppose it takes time to come to better level?

Anyway take care, keep in touch
 
Hi Loubylou,

It does take a little while to get your levels down but by the sounds of those numbers your insulin doses do need to come up as the insulin works pretty much right away. However, illnesses do very often make your sugars go up.

I would imagine that when you see the consultant you'll also see a specialist diabetes nurse who will be able to advise you on adjusting levels. You'll feel even better when the numbers come down even more. The standard advise Daisy gave you will also help keep things on an even keel if you can reduce your carbohydrate intake - however if you're breastfeeding you will need to watch this and the standard advice is not to reduce carb intake too much.
 

Hey

How you feeling now? are you getting into a nice routine? it will soon become second nature i'm sure.. I've found i just do it now without thinking about it., but i guess for you having your hands full with the little ones it may be a bit harder?
As for the cold plague your getting! i've heard thats something we can expect? I (touch wood) never caught colds but days afer having this i got one! going to have a flu jab so hope that helps?

I found the insulin worked a treat.. sounds like your BG readings are high tho? but i'm sure like you say giving it time and it'll all for into place?
My BG's range now from going really low! sometimes as low as 2.9 but the highest i've been recently is 15, but not often high now..

Hope all your results were ok and keep your chin up

Ant
 
Hi Loubylou,

This is just a short message but just waned to say that you and I are in the same boat. I've been diagnosed Type 1 recently too. All a bit of a 'mare really. But getting through it day by day. I've finding new problems and solutions everyday. New challenges given that I am watching my diet and oh, well the list does go on!

I was reading so so high when I first got wheeled in. My bg was 16 and sometimes I was reading 25+. Had keytones too so wasn;t looking too great. Also lost around 25 kilos (great but not the way you wanna do it!) I'm 30, slim, healthy, had Gestational Diabetes (not related?) and was generally very well. I too have a little one, 1 year old boy

Everything moved really fast for me, well i say fast. I had my fair share of problems but once I was correctly diagnosed,(1st type 2 and metformin and gliclazide) I was on insulin right away and things start improving. I think i'm pretty stable and my nurse is happy with my progress so far.

There's so much to it all and it's really quite daunting at first, but getting the hang of it. Problem is just finding some quiet time to yourself to absorb it all

Be very happy to share more if you need it.

Take care

Kylie
 
After 3 weeks of sugars in 30's n GP not able to decide.

I found that really shocking, when I went to the GP because we thought I was diabetic my BG was 27 with no ketones, she sent me straight to the hospital and I had to spend the night - although I was feeling fine myself!!

Hope you get into a good routine, good luck!!
 
Yes BG of 30 would tend to indicate T1, either that or you just munched a mars bar and washed it down with a couple of redbulls.

When I was diagnosed the Dr's meter basically threw a hissy fit and wouldn't event output a "High" result. Was sent to do a urine sample for ketone testing while she got the practice nurse in who had "a better meter" which read 33.6 on first test and "High" on second. Urine tested for t he maximum on ketones so was packed off to hospital for 3 days.

I must admit I was a very bad patient. I mostly felt fine and even on the first morning after admission was off wandering around as I got bored so had to leave me mobile number with the nurses on my way out as the Dr's kept missing me on their rounds and I missed heaven knows how many blood tests.

Still.. I came here when I escaped and did my studying and am all good now.

So there is hope. You just need to get through to the acceptance stage as fast as you can and figure out how to work your life with diabetes in it. That is the trick.. life goes on, you just have an extra thing to think about, as with many things once you get to grips with it you find it is not as bad as you thought.

Best of luck to loubylou and ant... and anyone else that is new to this.

/A
 
Hi,
Thank u for all the replies!!.
Kylie your story sounds just like mine!. I was 1st diagnosed with Gestational Diabetes same as you and then it just snow balled from there.

Saw consultant last friday, all results in apart from GAD. They have put me as type 1 although none
of my results are straight forward, bit of a medical mystery :lol:

Seem to be getting into a routine with insulin slowly. Have found this site very helpful with very friendly and welcoming people.

Would like to wish u all a very merry christmas and a super year for 2012!!
 
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