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TYPE 2 AND CFS/ME

mandy12

Member
Messages
11
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ROTHWELL KETTERING
:? HELLO I HAVE HAD A FASTING TEST 8.9 .. MY HBCA1 WAS 7.1. I AM NOW WAITING TO SEE NURSE.
I ASLO HAVE CFS/ ME. I FIND IT REALLY HARD TO EXERCISE DUE TO DISABILITY WHICH IS DUE TO THE ME/CFS AND ENERGY LEVELS I AM OVER WEIGHT. I FEEL VERY DOWN ABOUT NOT BEING ABLE TO EXERCISE. I DO TRY TO KEEP TO A LOW CARB DIET. I WOULD BE GRATEFUL FOR ANY ADVICE. THANK YOU....... : :roll:
 
Hello mandy, welcome to us all here, oh I actually dont know what CFS / ME stands for? is it cystis fibrosis syndrome? I know what MS is, ME help!? is it possible for you to let me know? On the diet n lack of exercise things, is it possible to request a low impact 1-2-1 excercise plan to be put together for you. A trained person can go through your needs, disability and pain management plan [if you have one in place?] and between you both can draw up a do'able low impact gentle fitness regime that could/would work for you. An appt with an understanding dietician you could draw up a low carb plan that your happy with plus enjoy eating thing you like and portion control it too. You can request for these either through your GP or DSN. Hope this helps you and please ask any questions you feel/need to. Were here for you to help n support you along. Anna.x
 
Hi Mandy and welcome to the forum I can give you some information which, as newly diagnosed, I think you need to have. I see you are low carbing already so hopefully the diet information in this advice will be suitable for you but just check to be safe at your next visit if you're not sure. This information is destined for new members, written by Sue and Ken our friends and former monitors, and gives basic advice on how to look after diabetes as well as possible. I hope this will be helpful to you. Ask as many questions as you like as there is always someone there who can give you the answer you need.

 
Hi Mandy12,

I assume you mean chronic fatigue syndrome / myalgic encephalomyalitis? We're not able to give medical advice here but a quick internet search suggesting considering graded execise therapy. You do really need some professional support though to help get something that suits you. Have you been given any referral for physical therapy? It sounds like your diabetes diagnosis is pretty recent. Is that right?

Reducing your carbs is certainly a good way to go if you cannot be as active as you'd like. We also have a low carb area on the forum, with lots of suggestions and meal ideas. Please do ask any other questions.
 
TO LET YOU KNOW CFS STANDS FOR CHRONIC FATIGUE SYNDROME/ ME MYALGIC ENCEPHALOMYELITIS IT IS A LONG TERM CHRONIC ILLNESS AND SADLY EXERCISE CAN MAKE THINGS WORSE . SO YOU HAVE TO DO GRADED EXERCISE IN VERY SMALL AMOUNTS NEED TO PACE YOUR DAY TO BE ABLE TO BANK ENERGY. THERE ARE MANY SYMPTOMS . MANY PEOPLE ARE BED BOUND A LOT OF THE TIME OF THE DAY. IN CONSTANT PAIN. IT EFFECT MUSCLES JOINTS YOU GET MENTAL FATIGUE KNOW AS BRAIN FOG. HOPE THIS EXPLAINS A LITTLE ABOUT IT. THIS IS JUST A SMALL PART ME/CFS.
 
THANK YOU I HAD HELP WITH PHYSIO AND GAVE ME SOME EXERCISE IT IS JUST SO FRUSTRATING WHEN YOU KNOW WHAT U NEED TO DO AND YOUR BODY DOES NOT WANT TO. THERE IS SOME GOOD ADVISE FOR ME HERE YES NEWLY DIAGNOSED TYPE 2. THANK YOU FOR ADVISE
 
Hi, Thank you for your reply mandy, now I know the CFS am so sorry am not familar with the ME , will read up on it n aquaint myself with it. Have you also seen both rglennon and daisy's posts some good pointers there to start you of with. Have you had any referrals to discuss any of these issues with your health care team? if you havent it would be an idea to ask about this via your GP/DSN . They can arrange these for you hopefully. Please do let us know how you go on. Anna.x
 
THANK YOU ANNA JUST WAITING FOR NURSE TO GET BACK TO ME THEN I WILL UPDATE U . THANK YOU FOR BEING UNDERSTANDIND.
 
 
THANK YOU FOR YOUR ADVICE
 
Are you sure you have chronic fatigue Mandy? It is the little box they put you in when you have unexplained tiredness - I know because I've been there got the t-shirt, but in my case it wasn't cf/me it was Vitamin D deficiency. Once I got tested and now take Vitamin D supplements I am nearly back to normal.

You need to also get tested for anaemia, Vitamin B12 deficiency and thyroid as all these cause tiredness. Don't give up with your GP, keep going back until you get answers, refuse to go in the little box.

The upside of being diagnosed with Vitamin D deficiency and taking supplements is that my blood sugar levels are much lower, I'm sure there is a connection. I've also reduced the amount of carbs I eat.
 

Hello Mandy12

So sorry to hear about your diagnosis and all the other issues you have. I know what it feels like as I too suffer from a myriad of things including CFS/ME and diabetes. I also have spinal issues which make excercise difficult but I can manage Pilates as it is very gentle and you can do as much or as little as you are able to do. I really would recommend Pilates to you, either in a class or privately. Use this link to find someone to help you who is local to you: http://www.pilatesfoundation.com/newsite2/index.php

As for the weight issues you are going the right way by keeping your carbs down and if you can keep them well down your weight will come off. I know this because I have real issues trying to keep my weight up :roll: because of eating as few carbs as I can in order to control my BG level without going on to medication. (I am not anti medication but have allergy/intolerance issues which make medicines difficult.)

Have you looked at The Spoon Theory? I know it isn't actually about CFS/ME but it does help to understand how to live with a long term problem similar to what we have. I have pasted a link:
http://www.butyoudontlooksick.com/artic ... serandino/
If I can help in any way do PM me but in the meantime try not to fret about any of it as it does make the CFS/ME so much worse. :cry:
 
CFS/ME is the subject of some exiting research at the moment. There is significant evidence that it is caused by a bug called Chlamydia Pneumoniae - not an STD but an airbourne bug. A new treatment called the Wheldon Treatment is being trialled. You should investigate this. Also I note that at least one consultant is having much success in treating CFS with natural cis-isomer for oils such as hemp oil resulting in much reduced severity of attacks and fewer of them. From my dodgy memory I think he is at St Thomases. Note that the implication of this work is that CFS is a natural disease that is exacerbated by trans-fats. Trans fats also cause obesity and type 2 diabetes so you should keep well clear of any oils which are not cold pressed as these will make all your health conditions worse. Feel free to contact me.
 
YES I AM SURE I HAVE ME/CFS FOR OVER 15 YEARS DIAGNOSED BY NEUROLIGIST. IT NOT JUST ABOUT FATIGUE.
 
THANK YOU FOR TAKING THE TIME I WILL CHECK THE WEB SITES OUT. THANK YOU ONCE AGAIN
 
That's fine then, if you've been though all the tests and its not something I've mentioned. I was just misdiagnosed with cf/me, so always advise other tests. Unfortunately if you stay indoors a lot with your cf/me, you can also get Vitamin D deficiency on top of it.
 
THANK YOU I WILL SEE IF I CAN GET IT CHECKED
 
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