Hi know how you both feel steroids can't live with them can't live without them.
@Dizz I do hope you don't have to go back on them. I was first prescribed them thirteen years ago and the docs just kept stepping up the dose till I was on 40mg a day for a few years. Since then have been started on Azathioprine another Immunosuppressant which has allowed me to step down my dose of steroids to 15mg a day but neurologist says that's as low as I can go and some times have to increase the dose . If your condition flairs up again are there no viable alternatives it may be worth finding out.