Who do I turn to

I funded my own BP monitor. It gives me power over the whole business! Nowadays you can get really good ones for a modest outlay.

Entirely your decision.

Regarding what use they are - similarly to blood glucose testing, it gives a fuller picture of how the individual reacts from taking different readings in various typical circumstances. For instance, for me - which doesn't mean it will be for everybody - there are specific situations where my BP rises to "help" me through whatever is happening at the time. Therefore I get a picture of what my BP is doing in various circumstances and so don't judge my overall health on a single reading at a random time. BP like BG is a reactive system designed to help us survive.

I’m back at square one I’m on 180 units of tressiba a day 60/100 units of humalog

My dosages when swapped to tresiba and humalog were a little higher than yours, could not get below 20 at all. Was going through 300u of humalog a day and still nothing.
Swapped back to insulatard and humilin s and now on 34u insulatard and 40u of humilin s a day.
Hba1c has dropped back down to 54 and rarely get above 10.
Analog insulins DO NOT work for everyone, clinic I am at spotted this and moved me back quickly.
Ask to be moved to older insulins.

I have the white coat syndrome, I tell medical people I have
“medically induced acute hypertension”
they seem to understand that. I had to have a 24 hour blood pressure monitor attached to me at home before the nurse would believe me.

Brettskee said:

Hi people posted a few things a couple of months ago still no change if read other posts been to see a new consultant last week thought this could be good I’m severely resistant to insulin all the consultants keep saying is up your insulin by 10 units I feel like I’m back at square one I’m on 180 units of tressiba a day 60/100 units of humalog and 1 once weekly injection of trulicity 1.5 my bloods have not really been under 20 for over 6/8 weeks I don’t feel poorly at these numbers but my neuropathy is so painful I struggle to walk so seeing this new consultant he literally said your blood sugars are very high he could see on his monitor as I’ve got a libre sensor which is linked to the hospital just up your tressiba 10 or 20 I asked him could you help me somehow with my neuropathy problems his reply was no go back to your doctor ok ile see you in 6 months I went out there scratching my head the nurse who took my blood pressure just before I went in I was 178 over 125 and bpm was 110 she did tell him near enough shut the door on her just don’t no where to go next any advice would be helpful I’m classed as a type two with severe insulin resistance sorry for the long post

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Hello, My daughter had the same issue and was given metformin to help with her resistance, the diabetic consultant was upping her background insulin so much that she has put on a tremendous amount of weight and as a result became very distressed, yet they still made the decision to pump her with more insulin, it had got to the point where the blame of high blood sugar was being directed to me and I had made the decision to change my daughters hospital altogether, which was the best decision, she was kept in for one week to test her resistance and found it to be high and started her on metformin tablets along with her insulin dosage. I highly recommend you seeking alternative care as in my personal experience some diabetic specialist can get it completely wrong.
Wishing you all the best.

Wenan said:

I have the white coat syndrome, I tell medical people I have
“medically induced acute hypertension”
they seem to understand that. I had to have a 24 hour blood pressure monitor attached to me at home before the nurse would believe me.

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I'll have to remember that one, my body doesn't like the automatic machines - wherever I am, take my BP with one of those and it's always high, use an old fashioned sphygmometer and stethoscope straight after and it's "normal"

Brettskee said:

Thx Ian will look int quite a few insulins not heard of the one your on will have a look what the difference is with a analog insulin thx again

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Bolus lasts 8hrs in system, basal 18hrs. Different to the analog insulins of 4hrs bolus and upto 24hrs basal( yep apidra does not last 48hrs, if it doess, why inject every 24hrs?) Could always ask for actrapid, only available as a vial and syringe but it is used in hospitals to get control back.

Firstly, please get your GP to monitor your blood pressure regularly. I would also consider buying a blood pressure machine for home use, around £30 if I remember correctly. Record your blood pressure regularly and nag your GP to get it under control for you.

Does your local area have a community diabetes team? If you don't know then I would ask if you might be able to find out. When the diabetes nurse left my GP practice, the staff that remained weren't helping me cope with controlling my BG. I got talking to a family friend of a friend and she was able to get me taken on by the diabetes community team for my area. The team helped me reduce my BG by replacing my NovaRapid with Humalog 100, but changed it to Humalog 200 and this kept my BG reasonable. When I was diagnosed with Multiple Myeloma it was the community diabetes team that put me forward for the Libre 2 trial. The best thing about that was/is, they were able to see what exactly what was going on with my BG. The chemotherapy was spiking my BG into the mid to high 30's. With their help we adjusted my insulin levels to offset these spikes and since ceasing chemotherapy they are continuing to help me fine my BG. I can wholeheartedly recommend getting in touch with the community diabetes team if you have one in your area. All the best.

Sorry to read of your diagnosis @Brettskee It will be a lot to take in.
Stress unfortunately pushes blood sugar levels up.

Have you checked your blood sugar with a finger prick test? Please get it touch with 111 to ask for advice if you can't speak to another hcp today if your finger prick test is along the same reading.