Hello,
Looking for a bit of advice and reassurance. I saw the specialist diabetes nurse this week at the hospital and she was delighted with my hba1c as it is in range at 56. Best I’ve had since Aug 2018. She said carry on as I am, and I’ll see the consultant for review in the Summer. She went on to explain the letter regarding my test results, and from them I am late onset Type 1. Anti Gad positive 1084 and Islet Cells Positive. I currently am making insulin quite a good level (which baffles them) I take a med that makes me produce insulin with my meals and it is short lasting 4 hours. She then promptly got a ketone testing machine and told me that if I started to feel unwell, thirsty etc and had sugar reading over 16 to test for ketones. I wasn’t really expecting this! On reflection I’m quite happy as at least if that happens I can now test at home and then act.
She said not to ignore the symptoms or levels and go to a&e if ketones are 1.5-2 higher. She said I might get ill then it tips me over. Could be in a year could be in ten. She said it’s something they can’t say and that I should be prepared.
Left feeling a bit overwhelmed, with the whole late onset type 1 and clutching my ketone machine hehe, but I had been expecting that outcome to some degree as I’d seen the anti gad results.
Do you all test ketones if sick or if blood sugars are very high?
Many thanks.
Looking for a bit of advice and reassurance. I saw the specialist diabetes nurse this week at the hospital and she was delighted with my hba1c as it is in range at 56. Best I’ve had since Aug 2018. She said carry on as I am, and I’ll see the consultant for review in the Summer. She went on to explain the letter regarding my test results, and from them I am late onset Type 1. Anti Gad positive 1084 and Islet Cells Positive. I currently am making insulin quite a good level (which baffles them) I take a med that makes me produce insulin with my meals and it is short lasting 4 hours. She then promptly got a ketone testing machine and told me that if I started to feel unwell, thirsty etc and had sugar reading over 16 to test for ketones. I wasn’t really expecting this! On reflection I’m quite happy as at least if that happens I can now test at home and then act.
She said not to ignore the symptoms or levels and go to a&e if ketones are 1.5-2 higher. She said I might get ill then it tips me over. Could be in a year could be in ten. She said it’s something they can’t say and that I should be prepared.
Left feeling a bit overwhelmed, with the whole late onset type 1 and clutching my ketone machine hehe, but I had been expecting that outcome to some degree as I’d seen the anti gad results.
Do you all test ketones if sick or if blood sugars are very high?
Many thanks.
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