My GP pratice is unbelievable

[carol43]

Had a phone call from a nurse at the surgery telling me that they were going mark me down as resolved. She got short shrift from me as you can imagine. I asked why nobody from the surgery had ever asked me how I managed my diabetes and I wanted to remain as 'in remission'.
.
There are quite a few people on this forum who have met myself and John and I would like to tell you that John's Parkinsons is now much worse and he now has dementia. He is going to have a scan to see if he has Lewy Body dementia. I do hope he hasn't as it is really horrible.

Carol

 

[Brunneria]

Oh Carol, I am so sorry to hear this. Rooting for John. You must both be so worried.

Regarding the resolved/remission thing - will it affect your access to monitoring?
(I am afraid the R/R thinking always confuses me, and I lose track of what means what in terms of the NHS. I just take the view that once you have had dysfunctional glucose control and IR, you ain't never going back to 'normal' eating, or you go back to dysfunction)

 

[Caeseji]

Had a phone call from a nurse at the surgery telling me that they were going mark me down as resolved. She got short shrift from me as you can imagine. I asked why nobody from the surgery had ever asked me how I managed my diabetes and I wanted to remain as 'in remission'.
.
There are quite a few people on this forum who have met myself and John and I would like to tell you that John's Parkinsons is now much worse and he now has dementia. He is going to have a scan to see if he has Lewy Body dementia. I do hope he hasn't as it is really horrible.

Carol

Goodness above Carol I am so sorry to hear about John, fingers crossed that doesn’t turn out to be the case for him and that he can at least have a less dramatic decline and a good life.

In regards to resolved, will this mean revoking anything from you too? I always worry when they used resolved than remission because it oddly sounds like they are washing their hands of you.

 

[Goonergal]

So sorry to hear this @carol43 best wishes to you and John. Must be very difficult and worrying for both of you. Hugs from me.

 

[DCUKMod]

Had a phone call from a nurse at the surgery telling me that they were going mark me down as resolved. She got short shrift from me as you can imagine. I asked why nobody from the surgery had ever asked me how I managed my diabetes and I wanted to remain as 'in remission'.
.
There are quite a few people on this forum who have met myself and John and I would like to tell you that John's Parkinsons is now much worse and he now has dementia. He is going to have a scan to see if he has Lewy Body dementia. I do hope he hasn't as it is really horrible.

Carol

Hi Carol, my records are marked as Resolved, and I'm OK with that. I still have an annual A1c, but can have more frequently if I ask. I still have eye screening. I only ever had by feet checked once (since 2013), so I don't really miss that.

What are your fears over the Resolved status?

I'm so sorry to hear about John. Hopefully he won't have Lewy Body dementia. I only learned about it about 18 months ago, when I attended a patient participation conference, where I met with lots of people who were championing their own health and social interests in their communities.

I wish you both well.

 

[Rachox]

So sorry to hear about John’s failing health, please accept my best wishes for you both xx

 

[carol43]

Hi Carol, my records are marked as Resolved, and I'm OK with that. I still have an annual A1c, but can have more frequently if I ask. I still have eye screening. I only ever had by feet checked once (since 2013), so I don't really miss that.

What are your fears over the Resolved status?

I'm so sorry to hear about John. Hopefully he won't have Lewy Body dementia. I only learned about it about 18 months ago, when I attended a patient participation conference, where I met with lots of people who were championing their own health and social interests in their communities.

I wish you both well.

They told me that they would stop monitoring me. I wasn't having that.

 

[DCUKMod]

They told me that they would stop monitoring me. I wasn't having that.

Did you ask exactly what that meant? I don't think it's possible to come off the retinal screening programme once on it, for example).

 

[carol43]

Did you ask exactly what that meant? I don't think it's possible to come off the retinal screening programme once on it, for example).

I will ask when I next have my thyroid check.

 

[bulkbiker]

They told me that they would stop monitoring me. I wasn't having that.

That's what the "resolved" classification is meant to be ... Should only be used for those mis-diagnosed , at least that's what NICE or the NHS (can't recall say) .
I got the "resolved" patients amended to "in remission" at our surgery as they, and the area diabetes nurse, also agreed they had been incorrectly classified.