- Messages
- 228
- Type of diabetes
- Type 1
- Treatment type
- Insulin
I would really appreciate any input from those who have experienced similar of from those of you who have anything to say that I should hear or learn of.
I was diagnosed in my 40's with originally what they thought was type 2 . I presented at the doctor's surgery with constant bladder/uti issues,severe fatigue,excessive thirst etc .My sugars were 19 when tested and the next morning fasting sugars were 16. I had unexplained weight loss also.Unfortunately I have put on some unwelcome weight since starting insulin.
The diabetes specialist nurse and team I attended here in Ireland thought I was type 2 when I was initially diagnosed ..and I was put on two tablets a day. But my sugars were still high, even though I was eating such a small amount of carbs .I was told then that this determined that I was in fact type 1,or type 1 and a half ( lada) at the time which would progress to type 1..It was all explained very well to me and I had an amazing diabetes specialist nurse who helped me a great deal.Being told this news was a big shock to me but I began insulin therapy, and within a matter of weeks my needs for insulin increased a lot so I began a regime of 1 unit of novorapid to 7 carbs during the day ,and in the morning 1 unit to 3 carbs. It's more or less stayed at that ratio all these years.
I recently changed the hospital I attend to one more convenient to where I live and my new consultant sent me to get auto antibody tests and C- peptide test. I had my second visit with the team a few days ago.The Doctor who was standing in for him since he wasn't available informed me that my antibodies all came back negative and I'm producing a very small amount of insulin which she said means I'm type 2! I am shocked as I have been what I believe to be type 1 for 8 years...and I can't see how they can now say I'm type two..
I need insulin for ever single thing I eat! I have a Hb1AC of 46 which they told me is really good ,but it's not without a lot of hard work and effort,along with many correction injections for high sugars! I am practically a vegan which makes it a bit more of a challenge! When I wake in the morning I need insulin even if I don't eat breakfast to stop my blood glucose climbing.That's what always happens in the morning once I exercise at all, as in walking or housework! I have to inject 4 units to keep them from climbing.I am using a Dexcom G6 this last year or so which is an absolute game changer.
I just feel very confused hearing this and I find it hard to take or believe this news.
I'm unsure what it will mean going forward .
It's kind of been part of my identity this last 8 years having type 1,and I don't know how they can just turn around and say I don't! It's not like I particularly want to have type 1 by the way. ..I'd of course rather be told your diabetes has disappeared altogether.
I have been treated as a type 1 all this time .I need insulin,and I have needed it from the very beginning to stay well ..
Also surely the amount of insulin I take on a daily basis for every meal would make me very ill or cause death in a type 2!?
So I just don't get the thinking.
I have read that many type 1's produce a little insulin..Is this correct?
Also can my beta cells have been destroyed ,bar a few perhaps?from some other cause which may mean I wouldn't have antibodies? I did have a horrible virus before my diagnosis.I received my blood results this morning and my Anti Islet cell antibodies are 24 U/ ml
and my Anti tyrosine Phosphatase Ab1A-2. is <4
Anti ZnT8 antibodies are <2 Au/ml
C- peptide is 1.10 ug/L
Really be glad of your opinions on this and any advice offered..
I was diagnosed in my 40's with originally what they thought was type 2 . I presented at the doctor's surgery with constant bladder/uti issues,severe fatigue,excessive thirst etc .My sugars were 19 when tested and the next morning fasting sugars were 16. I had unexplained weight loss also.Unfortunately I have put on some unwelcome weight since starting insulin.
The diabetes specialist nurse and team I attended here in Ireland thought I was type 2 when I was initially diagnosed ..and I was put on two tablets a day. But my sugars were still high, even though I was eating such a small amount of carbs .I was told then that this determined that I was in fact type 1,or type 1 and a half ( lada) at the time which would progress to type 1..It was all explained very well to me and I had an amazing diabetes specialist nurse who helped me a great deal.Being told this news was a big shock to me but I began insulin therapy, and within a matter of weeks my needs for insulin increased a lot so I began a regime of 1 unit of novorapid to 7 carbs during the day ,and in the morning 1 unit to 3 carbs. It's more or less stayed at that ratio all these years.
I recently changed the hospital I attend to one more convenient to where I live and my new consultant sent me to get auto antibody tests and C- peptide test. I had my second visit with the team a few days ago.The Doctor who was standing in for him since he wasn't available informed me that my antibodies all came back negative and I'm producing a very small amount of insulin which she said means I'm type 2! I am shocked as I have been what I believe to be type 1 for 8 years...and I can't see how they can now say I'm type two..
I need insulin for ever single thing I eat! I have a Hb1AC of 46 which they told me is really good ,but it's not without a lot of hard work and effort,along with many correction injections for high sugars! I am practically a vegan which makes it a bit more of a challenge! When I wake in the morning I need insulin even if I don't eat breakfast to stop my blood glucose climbing.That's what always happens in the morning once I exercise at all, as in walking or housework! I have to inject 4 units to keep them from climbing.I am using a Dexcom G6 this last year or so which is an absolute game changer.
I just feel very confused hearing this and I find it hard to take or believe this news.
I'm unsure what it will mean going forward .
It's kind of been part of my identity this last 8 years having type 1,and I don't know how they can just turn around and say I don't! It's not like I particularly want to have type 1 by the way. ..I'd of course rather be told your diabetes has disappeared altogether.
I have been treated as a type 1 all this time .I need insulin,and I have needed it from the very beginning to stay well ..
Also surely the amount of insulin I take on a daily basis for every meal would make me very ill or cause death in a type 2!?
So I just don't get the thinking.
I have read that many type 1's produce a little insulin..Is this correct?
Also can my beta cells have been destroyed ,bar a few perhaps?from some other cause which may mean I wouldn't have antibodies? I did have a horrible virus before my diagnosis.I received my blood results this morning and my Anti Islet cell antibodies are 24 U/ ml
and my Anti tyrosine Phosphatase Ab1A-2. is <4
Anti ZnT8 antibodies are <2 Au/ml
C- peptide is 1.10 ug/L
Really be glad of your opinions on this and any advice offered..