Hi All,
Firstly I have to say I am so glad that I have found this forum, it wouldve given me invaluable support in the past 7 months as I have been going through hell with my emotions, the guilt, the frustrations, lack of sleep etc.. My little boy has been a type 1 for 7 months now, he was really ill and I am glad I listened to my instincts rather than what people were telling me, I noticed his weightloss first and mentioned it to friends, family and everyone kept telling me he's fine, its probably just the age, he's running around and more active etc.. then the constant drinking and loss of apetite started I went to the Gp, and even then I was being told its fine as long as he drinks and he's not dehydrated, and although he looked his happy self at the back of my mind I knew something was not right, then the heavy and very frequent urinating began and thats when alarm bells started ringing in my head, I took him to the GP, he said we'll take some bloods and get the results in a week's time. That afternoon when I got home, I was sick with worry and decided to check out his symptomes on the internet, my heart sank when I realised it could be diabetes, the next morning I went straight to our local hospital, and they almost refused to see me as it was a ambulatory unit and they closed early, I put my foot down, explained his symptomes, the drinking, constant thirst, excessive urinating, weight loss etc. the nurse decided to check him out she called the doctor they first tested his BM, and I still remember to this day 21.7, and the look on his face said it all. We were immediately transferred to a nearby specialist hospital via ambulance, my baby was on a drip, and i have to say at that moment I felt the lowest I had ever felt, he had mild DKA, and heavy ketonuria, and polyuria I couldnt do anything and just sat there helpless, and blamed myself so much for not insisting that my GP did tests when I initially felt something wasnt right with my baby. But after the medication started, and the diabetes specialist team came to see us I felt slightly relieved and hopefull. His team have been absolutely perfect, and their support is invaluable. Things have definately settled down now, but in the beginning we had a real rollercoaster, my toddler was getting colds as it was winter, his bsl were just dropping low all the time, combined with the vomiting and runny stools it was a nightmare. I saw myself waking up every 2hrs during the night to check him, and became a emotional wreck. Every hypo had me shaken up, but Ive learnt that through researching things, and learning about the condition it makes you feel abit more in control. He's on novorapid and lantus, and I test him up to 5/6 times a day on a normal day, and if its a particular hectic, or hot day I test him more often.
I also do carb counting, and struggled with that at the beginning but I got these amazing scales on amazon which calculate the carb content in the foods, also most food packaging has labelling which makes life easier. The trouble I face now is that my little boy is becoming fussy, he wont eat his usual 3 meals and 3 snacks, instead he will eat alot at breakfast, and not in one go but over 2 hours, then eat a small amount at lunch, refuse a snack, demand milk, etc..
I really want to get a good hba1c and dont know what to do, how do I manage this, any advice is welcomed...
I hope your all well including the little ones, and my heart goes out to all the difficulties you all face.
Best wishes and Love
Hana
Firstly I have to say I am so glad that I have found this forum, it wouldve given me invaluable support in the past 7 months as I have been going through hell with my emotions, the guilt, the frustrations, lack of sleep etc.. My little boy has been a type 1 for 7 months now, he was really ill and I am glad I listened to my instincts rather than what people were telling me, I noticed his weightloss first and mentioned it to friends, family and everyone kept telling me he's fine, its probably just the age, he's running around and more active etc.. then the constant drinking and loss of apetite started I went to the Gp, and even then I was being told its fine as long as he drinks and he's not dehydrated, and although he looked his happy self at the back of my mind I knew something was not right, then the heavy and very frequent urinating began and thats when alarm bells started ringing in my head, I took him to the GP, he said we'll take some bloods and get the results in a week's time. That afternoon when I got home, I was sick with worry and decided to check out his symptomes on the internet, my heart sank when I realised it could be diabetes, the next morning I went straight to our local hospital, and they almost refused to see me as it was a ambulatory unit and they closed early, I put my foot down, explained his symptomes, the drinking, constant thirst, excessive urinating, weight loss etc. the nurse decided to check him out she called the doctor they first tested his BM, and I still remember to this day 21.7, and the look on his face said it all. We were immediately transferred to a nearby specialist hospital via ambulance, my baby was on a drip, and i have to say at that moment I felt the lowest I had ever felt, he had mild DKA, and heavy ketonuria, and polyuria I couldnt do anything and just sat there helpless, and blamed myself so much for not insisting that my GP did tests when I initially felt something wasnt right with my baby. But after the medication started, and the diabetes specialist team came to see us I felt slightly relieved and hopefull. His team have been absolutely perfect, and their support is invaluable. Things have definately settled down now, but in the beginning we had a real rollercoaster, my toddler was getting colds as it was winter, his bsl were just dropping low all the time, combined with the vomiting and runny stools it was a nightmare. I saw myself waking up every 2hrs during the night to check him, and became a emotional wreck. Every hypo had me shaken up, but Ive learnt that through researching things, and learning about the condition it makes you feel abit more in control. He's on novorapid and lantus, and I test him up to 5/6 times a day on a normal day, and if its a particular hectic, or hot day I test him more often.
I also do carb counting, and struggled with that at the beginning but I got these amazing scales on amazon which calculate the carb content in the foods, also most food packaging has labelling which makes life easier. The trouble I face now is that my little boy is becoming fussy, he wont eat his usual 3 meals and 3 snacks, instead he will eat alot at breakfast, and not in one go but over 2 hours, then eat a small amount at lunch, refuse a snack, demand milk, etc..
I really want to get a good hba1c and dont know what to do, how do I manage this, any advice is welcomed...
I hope your all well including the little ones, and my heart goes out to all the difficulties you all face.
Best wishes and Love
Hana