A month since my 10 y.o. was discharged from hospital.
What has happened since, what have we learnt, what are the challenges, in brief:
Just to mention he was admitted with BG levels of 21 mmol, and a 3 month average of 12.
First week was bad, as my wife and I couldn't accept that this happened to him, to us. Decided to significantly alter his diet. No white bread. No whole milk. No honey. No nutella. No chips. No crisps. No soda. No boxed juice. Instead now there is graham, whole grain wheat or rye bread. Same goes with pasta. Milk is skimmed. Honey only to treat a hypo. To replace nutella I once attempted to melt a dark chocolate bar with stevia. Rice cakes or rice crisps work just fine, brown rice works best. More fish, more veggies and fruits, a bottle of Coke at school in case of a hypo, so in a month he probably has had less than 100 ml. Homemade juice - mix of lemon and orange juice.
It's a bummer we are still doing the conventional finger pricking for the glucose tests, so I can't really know what goes on with the BG at all times. His highest BG so far has been 12.3 mmol, excluding one even higher which was due to an unattended bowl of raisins which we thought would be ok for him eat. I still do not understand how come we could have missed that... His lowest has been 2.3. He has had several lows, he can understand he is going low, he feels it somewhere between the levels of 3.5 and 4.2. His endo says he's entered the honeymoon stage. He's gone down from 30 units (20 novorapid and 10 levemir) to 9. I think we are reducing it to 8 today. We are playing this by the ear, by the way. His endo so far only confirmed what we had discussed at home, so we are guessing we are probably making the right decision. BG normally between 4.5 and 8. What worries me is that our endo said anything between 4 and 10 would be great, but reading the net, western medicine insists that levels be in the range 4-7.5.
We've missed a couple of levemirs. One was a full miss, the other was half a miss, my wife administered it few hours late. No effect whatsoever. We haven't yet given any corrections. Not comfortable with that one yet.
I just ordered new needles, the nanopass 34g. We hate the ones they give us here, 31 g. Too thick. I feel as if I am stubbing my own kid with them. They don't get in easily.
Emotionally he's doing well. He had a few questions. And a bomb of a question, which my wife dealt with, beautifully I must say. So far so good, could be slightly better, but could have been much worse.
He knows how to prick his finger and check the BG. He knows the routine with the insulin pens. He just doesn't want to do any of that. He'd rather have us do that for him. No pressure though.
I can't believe how much I've written. I myself wouldn't bother to read such a long text. If anyone reads this, or comments on it, thank you
.
What has happened since, what have we learnt, what are the challenges, in brief:
Just to mention he was admitted with BG levels of 21 mmol, and a 3 month average of 12.
First week was bad, as my wife and I couldn't accept that this happened to him, to us. Decided to significantly alter his diet. No white bread. No whole milk. No honey. No nutella. No chips. No crisps. No soda. No boxed juice. Instead now there is graham, whole grain wheat or rye bread. Same goes with pasta. Milk is skimmed. Honey only to treat a hypo. To replace nutella I once attempted to melt a dark chocolate bar with stevia. Rice cakes or rice crisps work just fine, brown rice works best. More fish, more veggies and fruits, a bottle of Coke at school in case of a hypo, so in a month he probably has had less than 100 ml. Homemade juice - mix of lemon and orange juice.
It's a bummer we are still doing the conventional finger pricking for the glucose tests, so I can't really know what goes on with the BG at all times. His highest BG so far has been 12.3 mmol, excluding one even higher which was due to an unattended bowl of raisins which we thought would be ok for him eat. I still do not understand how come we could have missed that... His lowest has been 2.3. He has had several lows, he can understand he is going low, he feels it somewhere between the levels of 3.5 and 4.2. His endo says he's entered the honeymoon stage. He's gone down from 30 units (20 novorapid and 10 levemir) to 9. I think we are reducing it to 8 today. We are playing this by the ear, by the way. His endo so far only confirmed what we had discussed at home, so we are guessing we are probably making the right decision. BG normally between 4.5 and 8. What worries me is that our endo said anything between 4 and 10 would be great, but reading the net, western medicine insists that levels be in the range 4-7.5.
We've missed a couple of levemirs. One was a full miss, the other was half a miss, my wife administered it few hours late. No effect whatsoever. We haven't yet given any corrections. Not comfortable with that one yet.
I just ordered new needles, the nanopass 34g. We hate the ones they give us here, 31 g. Too thick. I feel as if I am stubbing my own kid with them. They don't get in easily.
Emotionally he's doing well. He had a few questions. And a bomb of a question, which my wife dealt with, beautifully I must say. So far so good, could be slightly better, but could have been much worse.
He knows how to prick his finger and check the BG. He knows the routine with the insulin pens. He just doesn't want to do any of that. He'd rather have us do that for him. No pressure though.
I can't believe how much I've written. I myself wouldn't bother to read such a long text. If anyone reads this, or comments on it, thank you
.
