anna29 said:
Hi Sanober.
You have had raised BG levels for some time now [like me]
Great news you finally have the answers to why this has been happening.
Now you have to start a new journey on insulin, it isnt as terrible or awful as I had imagined, once you get into the routine it does get easier.
I have been on insulin for the last 6months now, its NOT bringing my daily BG levels down to a steady pattern yet! Am still yo-yoing up and down... :crazy:
Have been thinking of requesting a c-peptide test or the gad test ? [should I do?]
As my DSN has been suggesting I may need other insulin therapy. :?:
Have just been bumbling along doing as my told with the insulin levemir split doses 35/35 units daily.
Am still in the dark as to just WHAT is going on , and not quite getting there yet with my yo-yoing high BG levels.
Is it possible that I could be this LADA type ?
What exactly does it mean too?
Have read up on it but am still baffled with it . :?
Theres so much to learn and understand, harder to when things dont go smoothly huh ? :thumbdown:
Anna.
Oh Anne, you've had a terrible time of things with your operation and all recently. Hope you're making a good recovery. I always assumed you already had the c-pep and antibodies tested in the past? You're situation is very difficult and different to mine in that you also have other health issues
You should definitely ask for the tests, especially as you seem to have other autoimmune problems because that should be another criteria for testing for antibodies to show an attack on the Pancreas.
I've spent the last few hours reading up on this Type 1.5 /LADA. It's essentially Type 1 but occurs in later life and a specific antiGAD test shows the typical antibodys that are attacking the beta cells in the Pancreas. A C-petide should be done too but my level was normal a few months back when they tested, but I bet it's lower now! In 70-80% of LADA cases the anti-GAD is postive, but in the remaining it is negative, so both tests need to be done. I think there are a few different antibodies that can be tested for various attacks on the Pancreas but the AntiGAD is the one that is present in LADA. IA2 is present in children/young adults :?: but in some cases none at all either.
A generous Endcronolgist should test for all perhaps. :silent:
I haven't read about anyone yet that has a normal C-pep AND a negative anti GAD yet on the internet but fits the slim/skinny build, I don't even think there is a true slim T2 at diagnosis (internal fat from insulin resistence?) Or "thin fat" that Viv showed research of on this forum?), but I'm by no means an expert. (There is a Type 1b, which is similar to LADA and it doesn't show anti-bodies and it can go into remission at times). There is certainly misdiagnosis out there especially when a T2 who has some weight gets shoved straight into the T2 category, however if sugars are going up and up an antibody test should really be done.
Type 1 /Type 1.5 can't be controlled just by exercise, weight loss and diet and will need insulin therapy (perhaps small amounts at the start because at the early stages of LADA there is still some natural insulin being produced). The pills won't do anything and especially the insulin stimulating pills like Gliclazide/Glipizide will just erode beta cells further. Mine seems to have come on quickly, as you'll see from A1cs below, usually they say 4 -10 for insulin dependence, I wonder if I have some other antibodies too that are doing the damage more quickly? Too scientific and too much of a headache right now to consider.
It all went haywire since my Endometrious operation at the start of August. Did this mean my already wackly autoimmune system just went mental? I still don't know and will probably never know.
Thank so much Viv you really have helped me out at times when I thought I was going mad.
AMBrennan, I don't completely understand what your comments are about sorry.
I needed a clear diagnosis so I can get on the right treatment it's going to be tricky as the other T1.5s have indicated here :***:
Incidentally my mother, overweight (because of her bi-polar drugs) in her 50s diagnosed T2 has Thyroid problems and Rheumotoid Athritis (hmmmm other autoimmune disorders?) - went on to insulin 4 years later :?:
My dad a bit overweight, in his 50s, diagnosed T2 - happily getting by on one 80mg Gliclazide / day
I have a skinny cousin who's been happily on Metaformin for 5 years now - he was diagnosed late 20s
I'm T1.5 (or slow on set of T1 what ever label is required to distinguish from the above) and I'm normal weight and 34 - need insulin therapy within less than a year of formal diagnosis.
I think my family has covered off most of the categories :lol:
