Diet and T2

Melgar

Well-Known Member
Messages
595
Type of diabetes
Other
Treatment type
Tablets (oral)
You have said you are following your doctor and dsn have advised.
I have been at this since before the turn of the century. And I have studied and learned and talked to a specialist endocrinologist. Most of those on the front line are not specialised in endocrinology. They would not recognise that hypoglycaemia even exists and is so rare, that it is not part of their teaching or their knowledge.

I followed their advice, and I nearly died because of it.

I did say that I wouldn't help but I thought my many experiences of GP's, dsns and of course endocrinology.

A person should not go hypo, unless there is a cause, and it is not something to ignore. Especially on someone who is still presuming you are diabetic and you might not be. And has no knowledge of anything that you do have episodes of hypoglycaemia.

It needs investigation.

Best wishes
I must admit once I stopped getting the lows I stopped being concerned about them. I certainly don't want to repeat them though, very unpleasant. And to that end I have completely stopped drinking alcohol, not that I drank too much but in my mind I associate gin with low blood sugars. My blood sugars tend to rise and stay up for several hours before meandering down. I have attached the graph from the last 24 hours. My target range parameters are set at 4.5 - 10.0. You may think I am stuffing my face with carbs, but no. For a normal person this would be a weight losing diet. Lunch yesterday was a home made green pea soup with some cheese sprinkled on top. Supper last night was a pan seared chicken breast, lettuce salad and tomatoes, no dressing with a couple of potatoes. This morning I did have a banana for breakfast, but it's the only fruit I can eat without getting acid reflux symptoms and my vitamins and blood pressure meds, and I have just had a piece of steak and some rice.
 

Attachments

  • Screenshot 2023-03-07 at 12.57.39 PM.jpg
    Screenshot 2023-03-07 at 12.57.39 PM.jpg
    132.1 KB · Views: 44

Lainie71

Well-Known Member
Messages
1,973
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
The term "big boned" lol repeatedly told this growing up!
Thanks. I do love this site. I have learnt a lot. I am at a low ebb and I just want to give up sometimes.
Trust me honey, we have ALL wanted to give up on ourselves at some point but we carry on, because we have to and what better place to come when at a low ebb. This site or extended family as I call it has kept me above water many times when I have thought I was about to drown X
 
  • Friendly
Reactions: Outlier and Melgar

Melgar

Well-Known Member
Messages
595
Type of diabetes
Other
Treatment type
Tablets (oral)
Trust me honey, we have ALL wanted to give up on ourselves at some point but we carry on, because we have to and what better place to come when at a low ebb. This site or extended family as I call it has kept me above water many times when I have thought I was about to drown X
Awwww thanks Laine71. It seems like I'm at war with food. It seems my sugars will spike just drinking stone soup lol
 
  • Hug
Reactions: Lainie71

Lainie71

Well-Known Member
Messages
1,973
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
The term "big boned" lol repeatedly told this growing up!
Awwww thanks Laine71. It seems like I'm at war with food. It seems my sugars will spike just drinking stone soup lol
I was tested for gluten intolerance and it came back normal. Funny as I cannot eat products with gluten as I get a bad tummy, feel sick, skin crawls, itchy, dermatitis you name it I get it, but normal according to the tests! I cannot have cosmetics that have gluten aswell as shampoos etc. I have intolerance to rice and anything red, tomatoes red apples etc, yet can just about cope with a granny smith! My sugars are just all over the place at the moment, haven't been in the 5s for a while, I am blaming the meter!!
 

Melgar

Well-Known Member
Messages
595
Type of diabetes
Other
Treatment type
Tablets (oral)
I was tested for gluten intolerance and it came back normal. Funny as I cannot eat products with gluten as I get a bad tummy, feel sick, skin crawls, itchy, dermatitis you name it I get it, but normal according to the tests! I cannot have cosmetics that have gluten aswell as shampoos etc. I have intolerance to rice and anything red, tomatoes red apples etc, yet can just about cope with a granny smith! My sugars are just all over the place at the moment, haven't been in the 5s for a while, I am blaming the meter!!
It's awful isn't it. Did they test you for the antibodies, IgA's ? I just had the gene test only, which came back positive, but all that does is rule out Coeliac, doesn't rule it in as you can have those positive genes and never get it. My gluten intolerance is pretty bad too. My food cannot even touch something containing gluten and I will react. If you had the antibody test it is very common to get false negatives. It took my daughter about 10 years before they were able to confirm coeliac. She was just 3 years old when she would cry and complain of stomach ache after eating a slice of pizza with her little friends. Her half sister looked like she suffered from a serious eating disorder due to coeliac she was so malnourished. I'm finding the gluten free diet a challenge. The itchy rash I think is an autoimmune response to gluten called dermatitis herpetiformis. I get a blistery rash on the back of my hair line. Yes, it is shocking how much gluten is in everyday things like shampoos and the like. Pills too. You don't realise until you find your body gets sick on an everyday food, whether it's an allergy or a serious food intolerance.
 
  • Hug
Reactions: Lainie71

Melgar

Well-Known Member
Messages
595
Type of diabetes
Other
Treatment type
Tablets (oral)
I was tested for gluten intolerance and it came back normal. Funny as I cannot eat products with gluten as I get a bad tummy, feel sick, skin crawls, itchy, dermatitis you name it I get it, but normal according to the tests! I cannot have cosmetics that have gluten aswell as shampoos etc. I have intolerance to rice and anything red, tomatoes red apples etc, yet can just about cope with a granny smith! My sugars are just all over the place at the moment, haven't been in the 5s for a while, I am blaming the meter!!
What is the red colour intolerance? Have you researched it?
 

Lamont D

Oracle
Messages
16,095
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
I must admit once I stopped getting the lows I stopped being concerned about them. I certainly don't want to repeat them though, very unpleasant. And to that end I have completely stopped drinking alcohol, not that I drank too much but in my mind I associate gin with low blood sugars. My blood sugars tend to rise and stay up for several hours before meandering down. I have attached the graph from the last 24 hours. My target range parameters are set at 4.5 - 10.0. You may think I am stuffing my face with carbs, but no. For a normal person this would be a weight losing diet. Lunch yesterday was a home made green pea soup with some cheese sprinkled on top. Supper last night was a pan seared chicken breast, lettuce salad and tomatoes, no dressing with a couple of potatoes. This morning I did have a banana for breakfast, but it's the only fruit I can eat without getting acid reflux symptoms and my vitamins and blood pressure meds, and I have just had a piece of steak and some rice.
if you could take the spikes out, that graph would be normal. From what you have ate, where are these spikes coming from?
I can only assume, that it could be severe low first phase insulin response and then the insulin is triggered to drive the BG back down. They do ascend quite quickly.
Are you aware whether you get hypoglycaemia when eating certain foods? Or noticed when it occurs?
 

Lainie71

Well-Known Member
Messages
1,973
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
The term "big boned" lol repeatedly told this growing up!
What is the red colour intolerance? Have you researched it?
I have no idea what the red colour intolerance is but I am googling now. I havent eaten tomatoes or red apples for ages now. I cannot have tomato sauce as it makes my tongue sting and spike my sugar, tomatoes, strawberries red peppers are the same. Yet I can have small amounts of sugar free strawberry jelly and jam! I think I just had the general gluten test nothing else. I have had the blistery rash too but more so when I have applied something with gluten. When this happens it takes week, months to go. Shower gel was the last culprit!
 

Melgar

Well-Known Member
Messages
595
Type of diabetes
Other
Treatment type
Tablets (oral)
if you could take the spikes out, that graph would be normal. From what you have ate, where are these spikes coming from?
I can only assume, that it could be severe low first phase insulin response and then the insulin is triggered to drive the BG back down. They do ascend quite quickly.
Are you aware whether you get hypoglycaemia when eating certain foods? Or noticed when it occurs?
They take around an hour and a half to go up, if you consider that quick. Now if I ate a sugary thing or drink orange juice (which I don't) then yes they shoot up fast, like within 15 mins and come down swiftly to around 6.0 again. In the afternoon my BG's take around 3 - 4 hours to come down. My fbg's have been between 8.0 - 9.0. The hypos, I really have put that behind me to be honest. So you don't think I'm diabetic?
 

Lamont D

Oracle
Messages
16,095
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
I have no idea what the red colour intolerance is but I am googling now. I havent eaten tomatoes or red apples for ages now. I cannot have tomato sauce as it makes my tongue sting and spike my sugar, tomatoes, strawberries red peppers are the same. Yet I can have small amounts of sugar free strawberry jelly and jam! I think I just had the general gluten test nothing else. I have had the blistery rash too but more so when I have applied something with gluten. When this happens it takes week, months to go. Shower gel was the last culprit!
I haven't got that one!!!!
 
  • Funny
Reactions: Lainie71

Melgar

Well-Known Member
Messages
595
Type of diabetes
Other
Treatment type
Tablets (oral)
I have no idea what the red colour intolerance is but I am googling now. I havent eaten tomatoes or red apples for ages now. I cannot have tomato sauce as it makes my tongue sting and spike my sugar, tomatoes, strawberries red peppers are the same. Yet I can have small amounts of sugar free strawberry jelly and jam! I think I just had the general gluten test nothing else. I have had the blistery rash too but more so when I have applied something with gluten. When this happens it takes week, months to go. Shower gel was the last culprit!
Oh wow eh, if you suspect it's coeliac I would urge you to keep getting tested. If you are following a gluten free diet then the antibody test will show negative, even if you have coeliac disease. You would have to start eating gluten again for an accurate test. A lot of people who have coeliac have what they call silent coeliac with no symptoms. The damage is still being done. shocking eh !
 

Lamont D

Oracle
Messages
16,095
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
They take around an hour and a half to go up, if you consider that quick. Now if I ate a sugary thing or drink orange juice (which I don't) then yes they shoot up fast, like within 15 mins and come down swiftly to around 6.0 again. In the afternoon my BG's take around 3 - 4 hours to come down. My fbg's have been between 8.0 - 9.0. The hypos, I really have put that behind me to be honest. So you don't think I'm diabetic?
At least I have intrigued you. Ha!
The truth is, I just don't know. If I had a graph from back in the day, it would be very similar, including a small spike before the bigger spike on the third spike which I conclude is the carb. But every time I had a spike that high, I would end up in hypo. Your fasting levels are in normal. So, not in diabetes. But only hba1c levels can determine.
If you eat every three hours (ish) maybe before that, it will stop going lower, or your liver is helping and it is only when the insulin overshoot is too much for the high BG levels (with carbs) and the steep dive into normal levels, do you go hypoglycaemic.
But low carb seems to be working.
It is only tests, starting with an extended oral glucose tolerance test.
And only specialist endocrinologist can get them done.
I do hope that makes sense.
 

Melgar

Well-Known Member
Messages
595
Type of diabetes
Other
Treatment type
Tablets (oral)
At least I have intrigued you. Ha!
The truth is, I just don't know. If I had a graph from back in the day, it would be very similar, including a small spike before the bigger spike on the third spike which I conclude is the carb. But every time I had a spike that high, I would end up in hypo. Your fasting levels are in normal. So, not in diabetes. But only hba1c levels can determine.
If you eat every three hours (ish) maybe before that, it will stop going lower, or your liver is helping and it is only when the insulin overshoot is too much for the high BG levels (with carbs) and the steep dive into normal levels, do you go hypoglycaemic.
But low carb seems to be working.
It is only tests, starting with an extended oral glucose tolerance test.
And only specialist endocrinologist can get them done.
I do hope that makes sense.
Lol you have intrigued me sir, but then I always find your posts very interesting. :) It does make sense. After a 6.5% Hba1c test back at the beginning of 2021 I got my bg level down to a pre-diabetic 6.2% but now it's rising without changing my diet. My last one was again 6.5% 2 months ago and I have one at the end of the month so we shall see. 6.0 mmol/L seems to be my bg baseline, it doesn't go any lower, maybe on the odd occasion it will drop as low as 5.8 mmol/L even after a carby meal, on a rare occasion. This morning my fbg was an unpleasant 9.1.
 
  • Like
Reactions: Lamont D

Lainie71

Well-Known Member
Messages
1,973
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
The term "big boned" lol repeatedly told this growing up!
Oh wow eh, if you suspect it's coeliac I would urge you to keep getting tested. If you are following a gluten free diet then the antibody test will show negative, even if you have coeliac disease. You would have to start eating gluten again for an accurate test. A lot of people who have coeliac have what they call silent coeliac with no symptoms. The damage is still being done. shocking eh !
Thing is I would feel wretched and be inundated with skin problems, bloating etc. Don't know if I would cope - Quasimodo springs to mind for me not a lovely look!
 
  • Like
  • Funny
Reactions: Lamont D and Melgar

Melgar

Well-Known Member
Messages
595
Type of diabetes
Other
Treatment type
Tablets (oral)
Thing is I would feel wretched and be inundated with skin problems, bloating etc. Don't know if I would cope - Quasimodo springs to mind for me not a lovely look!
That was funny, but of course it's not. Skin conditions are awful.
 
  • Like
Reactions: Lamont D

Lamont D

Oracle
Messages
16,095
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Lol you have intrigued me sir, but then I always find your posts very interesting. :) It does make sense. After a 6.5% Hba1c test back at the beginning of 2021 I got my bg level down to a pre-diabetic 6.2% but now it's rising without changing my diet. My last one was again 6.5% 2 months ago and I have one at the end of the month so we shall see. 6.0 mmol/L seems to be my bg baseline, it doesn't go any lower, maybe on the odd occasion it will drop as low as 5.8 mmol/L even after a carby meal, on a rare occasion. This morning my fbg was an unpleasant 9.1.
Did you retest? Cos that seems to be a rogue reading. Also was that fasting as you got up because dawn phenomenon could impact those readings.

I would believe from those fbgs that any logical conclusion would be that you are just above normal.
most doctors would be very happy with that (if they have and knowledge).
For me it is the spikes from reduced carbs and of course the rapid drops.
It would be interesting to see your insulin levels during and after food (rarely done) to see your first phase and second phase of insulin.
And again your response to an extended oral glucose tolerance test. There is so much you could get from that, even if I'm talking rubbish.


I was always grateful to my endocrinologist because of the fastidious approach of the tests I was given to get a true diagnosis. And the after care and openess of our appointments.

Keep safe. Best wishes. Keep asking.