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Do I take big doses?

Discussion in 'Children & Teens' started by ruby_jane26, Oct 21, 2017.

  1. ruby_jane26

    ruby_jane26 Type 1 · Member

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    Hi I was diagnosed with Type 1 Diabetes after having DKA and spending time in the hospital. Anwayss... im still on fixed doses (until my carb counting course) and they are currently 8 units at breakfast, 8 for lunch and 11 at dinner time. I am on novorapid in the daytime. I am on 30 units of tresiba at bedtime.

    Please bare in mind i am 17 and lead an active lifestyle. I experience multiple low blood sugars a day. I know its still early days and that my doses need to be corrected slowly but did any of you ever have doses this large? I see people on these forums talk about having doses as low as 3 and 4.
     
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  2. helensaramay

    helensaramay Type 1 · Well-Known Member

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    I carb count and do not follow a low carb diet.
    In the 15 years I have had t1, it is rare for me to take doses as high as yours.
    However, it depends what I eat. If I ate pizza every night, I would be taking high doses.
     
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  3. EllsKBells

    EllsKBells Type 1 · Well-Known Member

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    @ruby_jane26 Everybody is different, and comparing your doses to that of other people isn't helpful. At the end of the day, you take what you need to take to keep yourself well. That said, you may find your doses come down when you start carb counting.

    Personally, carb counting, my tresiba is at 22, my breakfast dose is normally around 2 (I only have plain yoghurt), then lunch can be anywhere from around 10 - 15, dinner about 8 - 15, depending on what I am having.

    Nobody here can advise you on doses, but I think you should talk to your DSN, as having multiple lows a day suggests that you are taking too much.
     
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  4. Kristin251

    Kristin251 LADA · Well-Known Member

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    If your hypoimg you’re probably taking too much insulin. We don’t want to feel insulin by hypos and eating. I’d talk to your dsn until you get to your course. Hypos are not good for us

    I don’t take nearly that amount but I’m vlc and take what I need to cover my food. We all, on insulin, need to eat and take doses for what we eat. Not too much and not too little.
     
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  5. Jaylee

    Jaylee Type 1 · Moderator
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    Hi @ruby_jane26 ,

    Welcome to the forum.

    Comparing the insulin "meerkat" is not what diabetes management is about...
    It's about a bespoke regime for you.!

    As you mentioned "early days" recently diagnosed. You could still be in the "honeymoon" phase?
    This next bit may sound "patronising." (It's realy not the intention.) but as a teen, hormones come into play that may also be throwing you around the shop a bit too? I by no means meant that as gender specific either.. As a young guy I had my fair share of it too!

    Sorting out insulin levels needs to be started from the ground up, with the basal. (Or background insulin.) which with you is the treshiba... Here's a link on basal testing. https://mysugr.com/basal-rate-testing/

    I can't stress this enough. Work with your HCPs on this.. Log your diet, insulin & BS (even activity levels?) to help your consultants build up a picture.

    Kind regards.

    J>
     
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  6. catapillar

    catapillar Type 1 · Well-Known Member

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    You might want to have a look at the NHS free online carb counting course while you wait - https://www.bertieonline.org.uk - I think there's also a version for adolescents if you have a look on the site.
     
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  7. Scott-C

    Scott-C Type 1 · Well-Known Member

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    Ruby, if you're getting multiple lows, it strongly suggests that your set doses are too high for the amount you're eating. Definitely discuss it with your dsn who can then give advice on adjusting the doses.

    Don't compare numbers: some need 1 unit for every 10 grams, some less, some more. There's no one size fits all.

    I was DKA at dx too, and until I got over that really wasn't able to be that active, so I wonder if your docs have set your levels based on you not being too active immediately after dx, but now you're active again, the amount of exercise will play a big part in the size of dose. Your body has ways of using glucose with less insulin if you're exercising so it affects how much insulin to take.

    It won't always be like this - set doses can be quite restrictive, but once you get into the carb counting, you'll be able to look at any meal and say, aye, ok, I reckon I'll need x units for that.

    That responsibility can be a bit scary to begin with, like driving a car on your own for the first time after passing your test, but it gives a lot of freedom - if you end up taking a gap year, you'll be able to pitch up at any meal anywhere on the planet and even if it's not in Carbs & Cals have a reasonable stab at figuring out how much is needed for it.

    Good luck!
     
  8. ruby_jane26

    ruby_jane26 Type 1 · Member

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    Thanks, the diabetes nurse is doing a home visit tomorrow so I will deffo talk about this to her!
     
  9. W.bubble13

    W.bubble13 Type 1 · Active Member

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    I was diagnosed over a year ago I was just entering DKA I know how it feel. If you are are having lows quite a lot the maybe your on the wrong insulin for for you I’ve been on two different one and just been moved to a new regime where I you humalog 25 and novo mix 30 it might be worth asking the team or you Diabetic doctor.
     
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