- Messages
- 457
- Type of diabetes
- Don't have diabetes
I'm ok too thanks. My Endocrinologist has removed my diabetes diagnosis and says I now just have RH. Thinks I'm doing good with my diet and has discharged me. I've reduced my carbs, but not very low carb and it seems to be working ok at the minute. With very low carb I produced ketones and they make me feel rotten - extremely thirsty, very tired and generally unwell. When I re-introduced a few carbs these symptoms went away and I had more energy. I have to be careful to stick to routine and watch out if I do extra activity but overall I've seen an improvement. Are you still getting good results with very low carb? Any more news on whether you've got Hughes Syndrome? xx
I can go back and see him any time I want. Unfortunately now I have a diagnosis, the insurance company won't cover it so it'll be at my cost. My GP could always do a referral on the NHS to see the same consultant if I need further tests in the future.
Like diabetes, RH isn't covered by the policy. They only cover to the point of diagnosis. We get the cover through my husbands work and it probably isn't the most comprehensive cover. I'm so pleased we had it though as I was seen within 2 weeks and have a diagnosis. The appointment with the nhs Endo was a 4 month wait and I was discharged after the first consultation and a simple thyroid test!
I spoke to my Endo about Sitagliptin but he said he would be very reluctant to put me on it. He explained the way it works and said that as a result it reduces your appetite. I'm very close to being under weight after losing over a stone since March and therefore can't afford to lose any more.
Really pleased to hear you're doing well Emma. Hope you get on ok next week. Keep us posted.
My Endo doesn't think I need further tests as I have a RH diagnosis. He said the diet I was following was good and to continue experimenting with foods. He mentioned a couple of different medications (one was metformin and I can't remember the other) but doesn't feel I need them at this stage. He said I'll probably never completely eliminate my symptoms, but as you age your body naturally produces less insulin and therefore the RH should improve.
Thanks Nosher. I can't remember exactly what he said about Sitagliptin but I think it slows down digestion and therefore slows down the release of glucose, which helps to prevent the blood glucose spike. As a result though, you feel fuller for longer and don't need to eat as much. Apologies if I have that wrong, but I think that was the gist of it.
I don't want to take any med at the minute if I can help it. I tend to get side effects from everything I take so it puts me off! I really don't think I need it. My fasting bg is mostly low to mid 5's (down from high 5's) and my 2 hour post meal readings are mostly 6's or 5's with the odd 7. I do sometimes spike higher than I'd like at 1 hour, but I am still experimenting so I can't get it right every time!
Thanks to you giving me a little "talking to" a while ago, I feel much less anxious about it all. I still get stressed when I get confusing results, but I try to tell myself that some days will be like that and tomorrow will be better! x