Hello....just diagnosed

jorainer90

Member
Messages
6
Hi everyone!

I was diagnosed by my gp on Monday with a glucose level of 8 after fasting. I have my first appt with the diabetes nurse tomorrow. My doctor has already said it's type 1 and I will be on insulin.


Just curious to see what other people experiences are for their first visit to the nurse? Not really sure what to expect and hoping someone can help! Will I be expected to start injections tomorrow? It's all running a bit fast and I'm struggling to keep up!

Anyhow!all help much appreciated!
 

Snodger

Well-Known Member
Messages
787
I think it will vary hugely depending on your health care team. When I was first diagnosed I started injecting the first time I met the nurse.
Here is Snodger's List of Vital First Questions.
Make sure you write down all your questions and get as much info as you can to take away and digest at leisure... you might feel overwhelmed with facts at first.
Make sure you get a contact name/number if possible so you can ask follow up questions, and if that is not possible make sure you get a date for your next appointment, not too far in advance, so you know when you'll be able to get their attention again.
Make sure you get them to explain about carbohydrate counting, or refer you to someone who can help with that.
Make sure you get them to explain what to do in case of hypoglycaemia (hypo - low blood sugar).
Ask about DAFNE courses in your area - you will need to have had diabetes for 6 months before they'll let you on, but it's worth knowing about. DAFNE is a course specially for people with Type 1 and it stands for Dose Adjustment For Normal Eating. It's a really good grounding in everything you need to know, it's free and you get to meet other diabetics so what's not to like. :wink:

others will no doubt think of more stuff. In fact you may end up getting even more confused just reading all our advice!
 

Grazer

Well-Known Member
Messages
3,115
jorainer90 said:
My doctor has already said it's type 1 and I will be on insulin.
Hi, wishing you all the best,. I'm a type 2 myself, but I'm interested to know how your doctor could know it was type 1 from one fasting test? I'd be grateful if you or anybody else could tell me.
In the meantime, good luck with your meeting with the nurse, I hope it all goes well
Malc
 

jorainer90

Member
Messages
6
Thanks for the responses.

@Malc I think it's more to do with my age (21) do you think I will need another test to show type 1?
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
Hi Jorainer and welcome to the forum :) Since you have just been diagnosed I think that some basic information on how to manage your diabetes will be helpful. This is information written by the former monitors to be given to new members. Ask as many questions as you like as there is always someone here to help.

Here is the advice that Ken and I, as Forum Monitors, usually give to newly diagnosed Diabetics. We hope that these few ideas gained through experience help you to gain control and give you some understanding of Diabetes. This forum doesn't always follow the recommended dietary advice, you have to work out what works for you as we are all different.

It's not just 'sugars' you need to avoid, diabetes is an inability to process glucose properly. Carbohydrate converts, in the body, to glucose. So it makes sense to reduce the amount of carbohydrate that you eat which includes sugars.

For more information on CARBOHYDRATE see here:

viewtopic.php?f=3&t=20306

This is NOT a low carb diet suggestion, just a reduction in your intake of carbohydrate. You have to decide yourself how much of a reduction will keep your blood glucose levels in control.

The main carbs to avoid OR reduce are the complex or starchy carbohydrates such as bread, potatoes, pasta, rice, starchy root veg and also any flour based products. The starchy carbs all convert 100% to glucose in the body and raise the blood sugar levels significantly.

If you are on Insulin you may find that reducing the carb intake also means that you can reduce your dose of insulin. This can help you to keep weight gain down as Insulin tends to make you put on weight and eventually cause insulin resistance. This should be done slowly so as not to cause hypos.

The way to find out how different foods affect you is to do regular daily testing and keep a food diary for a couple of weeks. If you test just before eating, then two hours after eating, you will see the effect of certain foods on your blood glucose levels. Some foods, which are slow acting carbohydrates, are absorbed more slowly so you may need to test three or even four hours later to see the effect that these have on your blood glucose levels.

Buy yourself a carb counter book (you can get these on-line) and you will be able to work out how much carbs you are eating, when you test, the reading two hours after should be roughly the same as the before eating reading, if it is then that meal was fine, if it isn’t then you need to check what you have eaten and think about reducing the portion size of carbs.

When you are buying products check the total carbohydrate content, this includes the sugar content. Do not just go by the amount of sugar on the packaging as this is misleading to a diabetic.


As for a tester, try asking the nurse/doctor and explain that you want to be proactive in managing your own diabetes and therefore need to test so that you can see just how foods affect your blood sugar levels. Hopefully this will work ! Sometimes they are not keen to give Type 2’s the strips on prescription, (in the UK) but you can but try!!

For TIPS FOR STRIPS see here:

viewtopic.php?f=20&t=19002#p173253

If you are an Insulin user in theory you should have no problem getting test strips.

The latest 2011 NICE guidelines for Bg levels are as follows:
Fasting (waking and before meals).......between 4 - 7 mmol/l...(Type 1 & 2)
2 hrs after meals........................no more than 8.5 mmol/l.....( Type 2)

2hrs after meals......................... no more than 9 mmol/l ......(Type 1)

If you are able to keep the post meal numbers lower, so much the better.

It also helps if you can do at least 30 minutes moderate exercise a day, it can be split into 10 min sessions to start with. It doesn't have to be strenuous.

The above is just general advice and it is recommended that you discuss with your HCP before making any changes. You can also ask questions on the forum on anything that is not clear.

Finally a few QUESTIONS TO ASK AT DIABETES CLINIC.

viewtopic.php?f=20&t=17091



Sue/Ken.
 

Grazer

Well-Known Member
Messages
3,115
jorainer90 said:
@Malc I think it's more to do with my age (21) do you think I will need another test to show type 1?
Hi Jorainer - probably is to do with your age being 21, but I'm not that knowledgeable on type 1 issues being a type 2 myself! I do know that younger people can develop type 2 diabetes, even though most are older grey-tops like me, so I'd have thought a further test would be done to ensure it, especially as your fasting sugar level didn't sound horrendous to me (although obviously a diabetic level). Perhaps other more experienced type-1's can help here?
Good luck again
Malc
 

Snodger

Well-Known Member
Messages
787
I have to say I thought the same thing, Malc. Type 1s tend to have bgs up in the 20s and 30s when they are diagnosed - I know I did. Of course we are all different. It could also be MODY (maturity onset diabetes of the young). Jorainer, it might be worth asking them to check for MODY (another blood test). But the main thing is to get the blood sugar under control so it's not a problem in the short term to get Type 1 treatment.