Hello

[Eqolo]

Hello friends
2 weeks ago I was diagnosed with type 1 diabetes, since then my life turned upside down. Slowly began to measure with a pain.
I want to find friends on this forum, in order to support each other and exchange information about our illness.

Not much information about yourself:
My name is Vladislav, at the moment I live in Russia, but I am a citizen of Ukraine, I previously lived in the Donbass (yes, this is where the war is now ...), because I was diagnosed with this - I need insulin, insulin in I can not extradite a foreign country to a state, and I have to buy it, thank God I have the opportunity to do this, although it turns out very unprofitable...
About the meter and think I can not yet, because a very expensive test strip.
Not long ago I came across information about the device FreeStyle Libre, I really want to try it out in order to understand what kind of reaction I have for certain products, I have already purchased a reader, but here I have no opportunity to buy sensors for it at the moment and In the near future will not be, if you have the opportunity to help me with a solution to this problem for 1 month - I would be very thankful to you, I'm very ashamed to ask for help. I do not ask for free assistance - if necessary, I can work out the cost of these sensors with the help of my skills (I am a programmer and designer).
If you have the opportunity to help me please reply here.

Thank you for attention.

 

[azure]

Welcome @Eqolo

I'm very glad you were able to get insulin. Do you have a blood glucose meter? They're much, much cheaper than than the Freestyle Libre. I just have a normal blood glucose meter and find it works well

How long ago were you diagnosed? What insulins are you taking? How are your blood glucose test results?

 

[zand]

Hi, welcome

 

[max_bonner]

Hey @Eqolo

Sorry to hear about your Type 1 diagnosis.

I understand that English is not your first languange, but my understanding of what you have said, is that you do not currently have a blood glucose meter.

If that is right - you need to get any glucose meter as soon as you can. Taking insulin without knowing your current sugar levels can be dangerous.

The Libre is an amazing piece of technology and is very useful for looking at glucose changes over time, but the sensors are also expensive in the UK and are not considered "essential" to treatment. I am sure in time you will manage to get a source for them.

However, right now I would worry about getting a standard glucose meter and test strips. Please speak to your doctors, nurses and pharmacists to find one. There are many diabetics in Russia and Ukraine.

Yes, test strips are expensive but even if you get Libre sensors in the future, you will still need to do some standard blood tests.

I wish you all the best and if you need it you will find a lot of help on these forums.

 

[Eqolo]

Welcome @Eqolo

I'm very glad you were able to get insulin. Do you have a blood glucose meter? They're much, much cheaper than than the Freestyle Libre. I just have a normal blood glucose meter and find it works well

How long ago were you diagnosed? What insulins are you taking? How are your blood glucose test results?

The diagnosis was made on June 11, 2017, but I do not trust him very much, since when I was hospitalized in the hospital, I was not given a series of tests on how much I am a citizen of another state and my insurance does not cover these costs. Doctors put the first type of diabetes based only on the level of sugar (28 Mmol / l) and ketone bodies (+++).
After discharge from the hospital, I went to see a private doctor, he prescribed additional tests. Today I received the result of these tests, and some of them contradict the delivered diagnosis, namely, I have a negative result for the analysis of "Antibody to beta-cells of the pancreas", in Google found information that it could be a witness
The fact that I have a second type of diabetes, but will have to wait until Monday to confirm this information.
Insulins that I take:
Long - Lantus (at 10 pm 10 units);
Short - Humalog (3 times a day before meals from 8 to 10 units based on the readings of the glucometer);
After I was discharged sugar did not use the mark of 10 mmol / l, I do not know this, because I correctly calculate the bread units (I use kitchen scales for cooking, and I do not use carbohydrates faster), or even during the honeymoon period On average, once a day there is hypoglycemia, but I feel it still at the level of 3 mmol / l and I manage to manage it even before the rollback. That's why I want to try FreeStyle Libre that would understand how my body reacts to certain products

Hey @Eqolo

I understand that English is not your first languange, but my understanding of what you have said, is that you do not currently have a blood glucose meter.

Yes, about the language you are right, I think my English teacher would be horrified by my spelling: D
About the meter, I have it, but the test strip is very expensive, according to my calculations, about $ 30 leaves in a month, while my salary is $ 100 -150 $, with that I have to buy insulin ~ 50$-60$

 

[azure]

Some Type 1s can be negative for antibodies. Tagging @catapillar as she explains well.

I don't have a Libre so I do lots of tests each day and that shows me how my body reacts to food. I sometimes set an alarm to test during the night too.

Your English is very good, by the way

 

[Eqolo]

Some Type 1s can be negative for antibodies. Tagging @catapillar as she explains well.

I don't have a Libre so I do lots of tests each day and that shows me how my body reacts to food. I sometimes set an alarm to test during the night too.

Your English is very good, by the way

I also wake up every night at 2.00, I'm afraid that I do not feel hypoklimy.
2 years ago, my younger sister died and because of the hypoklimia that she did not feel.
Thanks for the compliment

 

[max_bonner]

Yes, about the language you are right, I think my English teacher would be horrified by my spelling: D
About the meter, I have it, but the test strip is very expensive, according to my calculations

Well compared to my Pусский, your English is amazing

Sorry, I misunderstood about you not having a meter. You seem to have a good understanding your diabetes and how diet and foods affect it. That will mean your health will benefit in the longer term.

I was in your situation a long time ago and from what you have said you are doing ok, I was going above 10mmol all the time and had lots of hypos too, in the first weeks after I was diagnosed. Cutting out the fast acting carbohydrates from your diet will help keep your glucose more stable and reduce the amount of insulin you need.

The cost of the Libre sensors right now in the UK are around $65 for a 14 day sensor.

If they are not sure about the type of diabetes you have, I would continue doing what you are doing until you get that confirmed by the specialist.

People on this forum will help you with advice on adjusting your diet and all the other fun of being a diabetic

 

[catapillar]

The diagnosis was made on June 11, 2017, but I do not trust him very much, since when I was hospitalized in the hospital, I was not given a series of tests on how much I am a citizen of another state and my insurance does not cover these costs. Doctors put the first type of diabetes based only on the level of sugar (28 Mmol / l) and ketone bodies (+++).
After discharge from the hospital, I went to see a private doctor, he prescribed additional tests. Today I received the result of these tests, and some of them contradict the delivered diagnosis, namely, I have a negative result for the analysis of "Antibody to beta-cells of the pancreas", in Google found information that it could be a witness
The fact that I have a second type of diabetes, but will have to wait until Monday to confirm this information.

It would be very common for type 1 to be diagnosed based on a blood sugar of 28 and high ketones only. No other tests would be expected, or required, to confirm a type 1 diagnosis.

If there is a query about whether the diagnosis is correct you might get tested for the antibodies associated with autoimmune diabetes - type 1 is caused when the immune system attacks the insulin producing beta cells in the pancreas. Antibodies associated with type 1 are GAD, IAA IA-2A, ICA and ZnT8b. GAD is the most common antibody tested for and about 25% of type 1 diabetics are GAD negative.

Returning GAD negative doesn't mean you are not type 1. Being diagnosed with ketones present strongly indicates you are type 1 as does getting along with a total daily dose of around 40 units without a lot of problems with hypos.

 

[Eqolo]

It would be very common for type 1 to be diagnosed based on a blood sugar of 28 and high ketones only. No other tests would be expected, or required, to confirm a type 1 diagnosis.

If there is a query about whether the diagnosis is correct you might get tested for the antibodies associated with autoimmune diabetes - type 1 is caused when the immune system attacks the insulin producing beta cells in the pancreas. Antibodies associated with type 1 are GAD, IAA IA-2A, ICA and ZnT8b. GAD is the most common antibody tested for and about 25% of type 1 diabetics are GAD negative.

Returning GAD negative doesn't mean you are not type 1. Being diagnosed with ketones present strongly indicates you are type 1 as does getting along with a total daily dose of around 40 units without a lot of problems with hypos.

Thank you very much for the information.
I probably did not write the ICA's abiervioviation in the negative, but GAD is doubtful .
At the same time, the level of c-pepsites on the ground is 0.813 ng / ml

 

[catapillar]

Thank you very much for the information.
I probably did not write the ICA's abiervioviation in the negative, but GAD is doubtful .
At the same time, the level of c-pepsites on the ground is 0.813 ng / ml

The reference range for cpeptide is 0.8 - 3 ng/ml. You're right at the bottom of that. That would be normal for a newly diagnosed type 1 diabetic in the honeymoon period. Cpeptide is a waste produced by the pancreas when it makes insulin. So a cpeptide test is done to see if you are making any insulin. Type 1 diabetes happens when the immune system kills off insulin producing beta cells. But the beta cell kill off doesn't happen all at once, it's not like flicking a switch, it takes time. The time when a type 1 diabetic has some residual insulin production is known as the honeymoon period.

 

[Oamsery]

Hello , nice to meet you

 

[KalosRonando]

Hello, I'm sorry, you know, diabetes. It is very terrible. I really hope you will have good health. Many information about diabetes to take care your health. Let's use food and insulin prescribed by your doctor. I believe that you feel better. And I really hope so.