Thankyou very much for all your replies.
@JohhnyHachoo - interesting about the liver - see below
@etmsreec - Thankyou for that info about the metformin and the gut. Yes, we decided to approach it with a lot of caution. I actually had no digestive side effects apart from a bit of wind, but then there were further developments - see below. I appreciate the difficult patient advice, and yes, the likelihood is that I will now be dealt with until stable by the specialist, then managed day to day by the local team/ under my own steam, until something else crops up and then back to the specialist. Also yes - I think I will need to look into better monitoring with recent developments - see below.
@Michael_Partridge
- thankyou for your honesty
- believe me I would stop drinking if that was a factor, unfortunately/fortunately I don't drink essentially at all - maybe one drink every three years, and I so wish it was a magic lever I could pull to help make this situation better. Sugary snacks however is something that I can decrease and have started to.
@Claire Lak - Thankyou very much for that information. I had done the test already, but very useful information for the future, and also reassuring that out of sheer luck, it was as it needed to be.
Unfortunate Update:
I had a phonecall this evening from the Doctor. Its not a good thing to get a phonecall in the evening from a medical professional
I had a blood test done today at lunchtime and the results came through really fast.
My liver enzymes are up quite a bit, and in a short time too. I have to stop metformin. Even if the numbers stabilised I was not on a treatment level dose ( I was on 250mg, twice a day) and increasing to a treatment level dose would be a bad idea.
On the slight positive side, and crossed fingers that I get through the night ok, we may have avoided another bout of pancreatitis.
As I am seeing the specialist tomorrow, the Doctor has said to discuss it with her, but he gently suggested that I might have to go on insulin.
I'm gutted. Extremely disappointed. I have been on insulin for gestational diabetes twice, so I have an idea of what is involved.
I also took reassurance from the idea of the potential reduction in pancreatic cancer risk that the metformin has attached with it.
Does anyone know of any other treatment options?
Considering writing to Santa to ask for new Pancreas
Thankyou again to all for your help, suggestion and patience.
There is nothing quite like having others walk the path with you who know the journey and the pitfalls, and the tips and tricks.
Saves ones partner from having to deal with a few meltdowns.
@JohhnyHachoo - interesting about the liver - see below
@etmsreec - Thankyou for that info about the metformin and the gut. Yes, we decided to approach it with a lot of caution. I actually had no digestive side effects apart from a bit of wind, but then there were further developments - see below. I appreciate the difficult patient advice, and yes, the likelihood is that I will now be dealt with until stable by the specialist, then managed day to day by the local team/ under my own steam, until something else crops up and then back to the specialist. Also yes - I think I will need to look into better monitoring with recent developments - see below.
@Michael_Partridge
- thankyou for your honesty
- believe me I would stop drinking if that was a factor, unfortunately/fortunately I don't drink essentially at all - maybe one drink every three years, and I so wish it was a magic lever I could pull to help make this situation better. Sugary snacks however is something that I can decrease and have started to. @Claire Lak - Thankyou very much for that information. I had done the test already, but very useful information for the future, and also reassuring that out of sheer luck, it was as it needed to be.
Unfortunate Update:
I had a phonecall this evening from the Doctor. Its not a good thing to get a phonecall in the evening from a medical professional
I had a blood test done today at lunchtime and the results came through really fast.
My liver enzymes are up quite a bit, and in a short time too. I have to stop metformin. Even if the numbers stabilised I was not on a treatment level dose ( I was on 250mg, twice a day) and increasing to a treatment level dose would be a bad idea.
On the slight positive side, and crossed fingers that I get through the night ok, we may have avoided another bout of pancreatitis.
As I am seeing the specialist tomorrow, the Doctor has said to discuss it with her, but he gently suggested that I might have to go on insulin.
I'm gutted. Extremely disappointed. I have been on insulin for gestational diabetes twice, so I have an idea of what is involved.
I also took reassurance from the idea of the potential reduction in pancreatic cancer risk that the metformin has attached with it.
Does anyone know of any other treatment options?
Considering writing to Santa to ask for new Pancreas
Thankyou again to all for your help, suggestion and patience.
There is nothing quite like having others walk the path with you who know the journey and the pitfalls, and the tips and tricks.
Saves ones partner from having to deal with a few meltdowns.
