So I am trying very hard not to panic because I know the whole point of screening is to spot things early, but I have to admit it is scaring me a little.
I have had type 1 for 17 years and am 32. I have had very poor control in my younger years and generally have only had reasonable control over the last couple of years once I had Libre then Dexcom. The last couple of years my annual screening had background retinopathy. Last year they spotted some sort of lesion on optic nerve which wasn’t diabetes related so I saw eye clinic but they weren’t concerned and said just to see if anything changed. This year that hasn’t been mentioned so assume that that has resolved or was insignificant. I got results through on Friday for latest screen and they have said there are signs of maculopathy and I need to be seen in surveillance clinic in 3 months. I had actually already booked an eye test for next week with my regular optician as it was both due (i’m Pretty short sighted anyway) but i’d also noticed at times I was having to peer over top of top of glasses and was struggling with some labels etc, but this has not been all the time.
I guess i’m Just looking for experiences on what to expect next since I know i’m Going to be waiting 3 months for an update. I know it can’t be that urgent or would have been referred. I suppose i’m wondering how likely it is to need some form of treatment, and if this could be in a few months or could it be months/years, or could it just resolve and be nothing in 3 months time.
Just to add my blood pressure is fine/borderline low, I am now using Dexcom G6 and omnipod and trying to keep sugars as perfect as possible, only thing was a couple of months ago total cholesterol was 5.0 but nurse said as I was young not to worry about that, is that something that should be treated?
I have had type 1 for 17 years and am 32. I have had very poor control in my younger years and generally have only had reasonable control over the last couple of years once I had Libre then Dexcom. The last couple of years my annual screening had background retinopathy. Last year they spotted some sort of lesion on optic nerve which wasn’t diabetes related so I saw eye clinic but they weren’t concerned and said just to see if anything changed. This year that hasn’t been mentioned so assume that that has resolved or was insignificant. I got results through on Friday for latest screen and they have said there are signs of maculopathy and I need to be seen in surveillance clinic in 3 months. I had actually already booked an eye test for next week with my regular optician as it was both due (i’m Pretty short sighted anyway) but i’d also noticed at times I was having to peer over top of top of glasses and was struggling with some labels etc, but this has not been all the time.
I guess i’m Just looking for experiences on what to expect next since I know i’m Going to be waiting 3 months for an update. I know it can’t be that urgent or would have been referred. I suppose i’m wondering how likely it is to need some form of treatment, and if this could be in a few months or could it be months/years, or could it just resolve and be nothing in 3 months time.
Just to add my blood pressure is fine/borderline low, I am now using Dexcom G6 and omnipod and trying to keep sugars as perfect as possible, only thing was a couple of months ago total cholesterol was 5.0 but nurse said as I was young not to worry about that, is that something that should be treated?