so I've been a type 1 diabetic for 15 years now, I'm 17 years old and just moving to the adult clinic after a horrible few years at the paediatric clinic. I'm a 'bad diabetic' but it's never been intentional. The very first time I had ever gotten ketoneacidosis was when I was 11/12 years old, and that's when it really began. The way they spoke about and to me is one of the most traumatising experiences I have ever had, and made me feel so depressed and low that I never even wanted to get better. They had told me I was going to die before I turn 16, that I would be taken away from my family if I didn't get my act together, and forgive me if I'm wrong but that's no way to speak to a child who is already on the brink of a mental break down. Because of all of this, I haven't been back to the hospital in almost a year and a half to get my hba1c checked. And last Tuesday, I had to go to a&me because my blood sugars where low and nothing I was doing was bringing them up, and my paediatric doctors refused to speak to me or my mother. I just want to know if there are others like me out there and if so, why hasn't the nhs done anything about it? I am currently waiting on receiving an appointment from the adult clinic to eventually get my hba1c checked.
no help from doctors
- Thread starter Rebeccamcleod1
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- Type of diabetes
- Type 1
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Hi,
@Galja is right about "going in armed".
You're not "a bad diabetic". Just a little lost at the moment..
Using an app like "Diaconnect" to log your BSs, doses & carb intake will even work out your A1c? (Though it's no substitute for a lab tast, it can give a rough idea..)
"Tooled" up with this information on regular blood testing will show the professionals you mean "business". They won't ignore that..
Good luck with your appointment.!
azure
Expert
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@Rebeccamcleod1 Sorry you've had such a dreadful experience. No one should be made to feel like that.
To me, the best thing to do now is to forget that whole experience in the paed clinic. Now, I know that's not easy and you're not going to be able to forget it overnight, but you mustn't let that whole time bring you down. You know you're not a bad diabetic and you know you should have been treated with more compassion and given more help.
Treat your move to the adult clinic as a fresh start. That's my best advice. If you think the adult clinic will be told you're a 'bad diabetic' by the paed clinic, then I suggest putting something in writing, with your mum's help, just briefly explaining your side of it. I think writing it down would be easier than saying it at your appointment.
I also think you should use your upset and anger at the paed clinic to energise you to take control of your diabetes. Perhaps you and your family could get a book like Think Like A Pancreas and become your own experts?
It sounds like perhaps you haven't been given the best education and support to manage your diabetes, and that can't be helping how you feel.
Please post more here. You're not alone. There are lots of Type 1s who can make suggestions about control if you need them, and there are a lot of friendly people who know how hard diabetes can be and how down appointments can make you feel.
To me, the best thing to do now is to forget that whole experience in the paed clinic. Now, I know that's not easy and you're not going to be able to forget it overnight, but you mustn't let that whole time bring you down. You know you're not a bad diabetic and you know you should have been treated with more compassion and given more help.
Treat your move to the adult clinic as a fresh start. That's my best advice. If you think the adult clinic will be told you're a 'bad diabetic' by the paed clinic, then I suggest putting something in writing, with your mum's help, just briefly explaining your side of it. I think writing it down would be easier than saying it at your appointment.
I also think you should use your upset and anger at the paed clinic to energise you to take control of your diabetes. Perhaps you and your family could get a book like Think Like A Pancreas and become your own experts?
It sounds like perhaps you haven't been given the best education and support to manage your diabetes, and that can't be helping how you feel.
Please post more here. You're not alone. There are lots of Type 1s who can make suggestions about control if you need them, and there are a lot of friendly people who know how hard diabetes can be and how down appointments can make you feel.
Cat0409_
Well-Known Member
- Messages
- 147
- Type of diabetes
- Type 2
I love the following it is my mantra
From Dr Jody Stanislaw
"The pancreas is non compliant not the patient. When Drs say a patient is non compliant it say that the physician doesnt know what it is really like to live with diabetes.
There isnt one treatment or bit of advice that true fixes this disease.
Most Drs need to listen more to their patients, have more compassion and understanding, work within what is realistic and learn how to be inspiring"
I have quoted this to both my GP and my Specialist. They are well aware that I do the best I can and I expect them to support me in my endeavours in dealing with My Diabetes!!!!
From Dr Jody Stanislaw
"The pancreas is non compliant not the patient. When Drs say a patient is non compliant it say that the physician doesnt know what it is really like to live with diabetes.
There isnt one treatment or bit of advice that true fixes this disease.
Most Drs need to listen more to their patients, have more compassion and understanding, work within what is realistic and learn how to be inspiring"
I have quoted this to both my GP and my Specialist. They are well aware that I do the best I can and I expect them to support me in my endeavours in dealing with My Diabetes!!!!
