My Partner is T1 with Retinopathy.
Both eyes are lasered to the max.
He cannot have anymore either.
The thing is that the doctors have said his vision is good and they don´t feel they can do anymore at the moment.
They talked about replacing the jelly but only want to do that if his sight was bad.
So basically we are left waiting for his eyes to bleed so much that he losses his sight and then they will replace the jelly.
We are devastated.
He is 37 and we are just starting a family.
I spoke to the doctors and now understand´that this was caused from not controling his T1, he use to be an alcolholic before i met him and is now t total.
However i am now trying to frantically learn all about T1 and have realised his diet has also been terrible. I feel guilty i didn´t realise over the last four years of being with him.
I just thought he couldn´t/shouldn´t have sugar.
Now my eyes are opened to carbs too.
So i am now in control of his diet and am hoping that that will somehow help his eye situation.
Sadly its too late for his brother who is 9 years older then him.
He had glucoma and lost most of his sight, over the last year he has also had both his legs amputated and a finger of each hand.
His kidneys are failing and he has dyalasis every two days.............. I so hope my efforts with my partner are not too late. He too is trying very hard. I think he just hasn´t had the help needed over the last few years.
His blood sugars are up and down while he adjusts to his new diet and its hard trying to calculate the right ammount of insulin. Fingers crossed over a short time we will both become use to it and his eyes will stagnate rather then getting worse!!
If ANYBODY is out there that thinks its ok to eat what they want and it won´t happen to them............think again. This thing creeps up on you and before you know its too late.............Be safe and whatch what you eat.
Both eyes are lasered to the max.
He cannot have anymore either.
The thing is that the doctors have said his vision is good and they don´t feel they can do anymore at the moment.
They talked about replacing the jelly but only want to do that if his sight was bad.
So basically we are left waiting for his eyes to bleed so much that he losses his sight and then they will replace the jelly.
We are devastated.
He is 37 and we are just starting a family.
I spoke to the doctors and now understand´that this was caused from not controling his T1, he use to be an alcolholic before i met him and is now t total.
However i am now trying to frantically learn all about T1 and have realised his diet has also been terrible. I feel guilty i didn´t realise over the last four years of being with him.
I just thought he couldn´t/shouldn´t have sugar.
Now my eyes are opened to carbs too.
So i am now in control of his diet and am hoping that that will somehow help his eye situation.
Sadly its too late for his brother who is 9 years older then him.
He had glucoma and lost most of his sight, over the last year he has also had both his legs amputated and a finger of each hand.
His kidneys are failing and he has dyalasis every two days.............. I so hope my efforts with my partner are not too late. He too is trying very hard. I think he just hasn´t had the help needed over the last few years.
His blood sugars are up and down while he adjusts to his new diet and its hard trying to calculate the right ammount of insulin. Fingers crossed over a short time we will both become use to it and his eyes will stagnate rather then getting worse!!
If ANYBODY is out there that thinks its ok to eat what they want and it won´t happen to them............think again. This thing creeps up on you and before you know its too late.............Be safe and whatch what you eat.