Test Strip for T2 ..good result and just general thoughts

didi

Member
Messages
13
Well, I went to GP a few weeks ago because I was struggling to get my BG down. She referred me to the another Dr who specialises in diabetes. He put me onto one gliclazide a day on top of the 2 metformin slow release. I did my research here about the importance of ME BEING IN CONTROL and getting to know what foods raise my BG before I saw him. Anyway, the conversation came around to the testing and he told me that as T2 I do not have to test. Now, I did not want to go in all guns blazing, so I kept my cool and pointed out that he has just prescribed me the gliclazide which is known to cause hypo's, so I would HAVE to test to watch out for that. He then said, OK, but I would only have to test when I feel unwell, so therefore do not need to have more than 50 strips a year. He also said that testing too much will cause damage to my fingers, make me more stressed about readings and the rest of the "script" that GP's recite. I know this because a few of my friends who are T2 have been told the exact same thing. I did not push the issue right then because I could sense he was getting a bit irrate. I had my meter with me and showed him my average fasting reading over 3 months was 12.5. He said .. well it has improved because at the last consultation with diabetic nurse it was 17. I said that is all fair and well, but there have been many times inbetween the 6 monthly Hba1c test when I have had BG readings in the high 20's. The result has been constant raging fungal, and bacterial infections requiring medication. The vicious circle of having antibiotics which in turn trigger the fungal infections. I could see I was not going to get anywhere , so I thought I would leave it and take another course of "action" ...( Sometimes getting the medical profession to see sense is like trying to f@rt against a hurricane.) So, instead of buying my own anti fungal pills, lotions and potions, anti Diarrhea pills , cream for the dry skin, antibacterial shower cream etc which was setting me back a small fortune, I started ringing the surgery for emergency appointments to see a dr. I think the break through was today when I phoned the surgery to see a Dr because I have such bad thrush not only in the "lady" bits, but around the breasts and erm .. bottom. It has been established that the thrush is most prob not just an External problem.. ie all the external preparations ... cream , vaginal tablets is just relieving the symptoms rather than dealing with the cause. High bloods has resulted in thirst which means drinking lots of water - which means more trips to the loo -which feels like passing shards of glass and inbetween that all, the desire to have a brillo pad insitu to deal with the horrific itchiness ( scuse the graphicness, but I am sure many girls and even boys can relate LOL ) Thankfully the "specialist diabetes dr" was not available so I saw a lovely nurse. I went armed with print outs of my modified diet, all the prescriptions for the meds that I have needed to combat the effects of hypers, a letter confirming my placement on the next X-PERT course - and most important the information I have got from here regarding the NICE guidelines for prescribing strips for T2 diabetics to help self management.

The result of my visit to Dr today was a brand new BG meter, a prescription for 50 strips and the information that T2 diabetics particularily on gliclazide ARE entitled to prescriptions for the test strips because as mentioned before gliclazide can cause HYPOS. Now, as yet I have not been able to secure a REPEAT script for the strips, but will be seeing DN for 6 monthly thing on the 28th and will be armed with proof that I have been trying my darndest to be a "compliant" diabetic who is trying to monitor foods that cause the high BG to know what to avoid, and the ONLY WAY to achieve this is by regular self monitoring to weed out the foods that raise BG levels ( I have discovered that we are all different when it comes to tolerance of various foods.... ie some people can tolerate porrige and in others it can cause a spike in BG. I have had the lowest ever BG reading 2 hours after a brekkie of bacon done in microwave and mushrooms done in butter mixed with 2 scrambled eggs ( no toast ) . It was surprisingly filling, in that I did not feel hungry an hour later.

In hindsight, my experience of initial diagnosis was a matter of watch my cholesterol , alcohol, and sugar intake and make an appointment every 6 months for a fasting blood test then another one a week later to discuss the results with a DN. No one told me that there are courses you can go to that helps to explain things relating to how diabetes affects your body, how what you eat DOES make a difference and WHY, and general things that help self management AND that you may be able to get discount at some gym's if referred by GP.... excercise DOES make a difference and unfortunately the cost of gym does prohibit people like myself on a tight budget who lacks self discipline to do my own excercise regime. To be honest,for me, the diagnosis was devastating because it does mean a change in diet and lifestyle, it is a whole new world of UNDERSTANDING food labels, let alone trying to follow them. erm ... bla bla grams of carbs per 100g .. of which is sugar ????

SORRY, This topic has unintentionally "evolved" ( and become quite long winded ) from being about the victory of getting a prescription for another 50 test strips within weeks of the last one, but I do think that there may be some people who feel the same way that I do, and I hope that some folks will be encouraged to do research and use the information on this site that is largely based on PERSONAL experience rather than white papers, scientific stuff from "learned"" professionals who have actually NOT experienced trying to live with diabetes as a LIFESTYLE.

I have discovered that knowledge = self empowerment.
 

Sue o2

Well-Known Member
Messages
152
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Re: Test Strip for T2 ..good result and just general thought

Well done to you,
I always think it helps when you give the doctors / nurses the impression that you actually know more about diabetes than they do or at least have taken the trouble to look things up and learn,
otherwise they fob you off with all sorts, :roll:

Sue
 

Sid Bonkers

Well-Known Member
Messages
3,976
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
Customer helplines that use recorded menus that promise to put me through to the right person but never do - and being ill. Oh, and did I mention customer helplines :)
Re: Test Strip for T2 ..good result and just general thought

Having been on insulin ans suffered several hypo's I personally would not be happy to take any medication that could induce a hypo without testing regularly, perhaps all GP should have a hypo induced so that they can appreciate how disorientating and frightening they can be, then they might be more inclined to be sympathetic when test strips are requested.
 

cugila

Master
Messages
10,272
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People who are touchy.......feign indignation at the slightest thing. Hypocrites, bullies and cowards.
Re: Test Strip for T2 ..good result and just general thought

Excellent result so far......... :D Persistence and sound reason can pay dividends rather than as you say 'all gun's blazing !'

I recently did an X-Pert Course because I wanted to see for myself what the information was that is given out to Type 2's on the course. On the whole a good course but I had several issues which I made clear throughout the course, they will become apparent over some of my future posts. :twisted:

In one session the issue of testing and test strips cropped up. Now for a while I kept my mouth shut as I had already 'crossed sword's' with both the DSN and Educator over certain aspects of the course but was finally forced to comment when the DSN and the Diabetes Educator both said that unless you are on certain medication you do not need to test and it is not encouraged because of all the things your GP stated ...... :(

My view is that anybody diagnosed as a Diabetic should in at least the first few months be given a meter, test strips and encouraged to test frequently to find out what effect certain foods do to your Bg levels. That doesn't have to continue for ever, as most people will be able to work out what is happening in that time. I also said that if they don't use the readings to adjust their diet and lifestyle choices then there is very little point in having the meter/strips. The Patient MUST be pro-active and not just rely on a HbA1c taken 3-6 mths down the line.

I also think that the Basic Advice for Newbies which my pal Sue and I (and others) post is what should be handed out to ALL new Diabetic's. Now I will say that the DSN reviewed it and came up with a couple of minor improvements but on the whole was impressed with it. I am working on it being given to their new Patients........ :wink:

Meters' and Test Strips are essential tools for Diabetic's........the cost saving to the NHS by allowing people to control their Diabetes and avoid future complications would more than outweigh the cost of them in my view. Unfortunately, that argument doesn't seem to come into things....... :(

There is definitely a 'script' that is worked to.......as with many scripts it needs editing and the over reliance on calories and sugars in the advice given out was irritating to say the least....... :roll: Many times I had to ask, "What is the carb content of that so called healthy food ?" Usually it was very high but if it was low/medium GI it was fine for all.......NOT so, as many of us have proven.

The mantra that a Diabetic can eat all foods with no problem was given out.......which I challenged and was told....."We are evidence based." Well.....so am I, however I was always taught that evidence comes in many different types. Real evidence is best, circumstantial is also good evidence especially when combined with real results, however they call it anecdotal so take no notice of it at all. That seems a very blinkered view to me....... :(

We can but hope that one day somebody will listen and change the advice and place more emphasis on carbohydrates rather than sugars and calories all the time. Little by little........
I just feel sorry for the Diabetic's who are left to their own devices mostly and get ever more complications. However, it is based on much information from DUK........I won't go there..... :roll:
 

Eiche

Well-Known Member
Messages
144
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Not being able to satisfy my craving for chocolate LOL
Re: Test Strip for T2 ..good result and just general thought

WOW that read like a horror story to me LOL I really HATE how T2's are treated by some doctor's! I have been sooooooooooo very lucky with my doctors since I changed surgeries. My Diabetes doctor is awesome, my DN is major quality in my books and my Consultant at the Diabetes clinic at the hospital is ace and listens very attentively and responds to everything I have to say... I really feel for those who get nothing but brush offs and "I am the doctor not you" cr*p!!! I say if you educate yourself before seeing the doctor again and know the in's and out's, the doctor's have no leg to stand on to refuse what you clearly NEED! So well done to you :D
 

Cowboyjim

Well-Known Member
Messages
1,294
Re: Test Strip for T2 ..good result and just general thought

I echo all the replies. Well done Didi and many commiserations for your plight. Seems like there is progress in getting you back on track body-wise but like with so many of us restoring the mental equilibrium may take some time. It did with me... so as they say day by day and little victories... it will come because you are determined!
Two years on and I am still told the same old codswollop by the HCP... see my other post. I hate to think how many people out there are being misled by all this well-meaning tosh.8)
 

Sanober

Well-Known Member
Messages
393
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Not really knowing what's going on inside my Endocrine system!!!
Re: Test Strip for T2 ..good result and just general thought

I've been recently diagnosed T2 ('sort of') asked if I needed a meter and was told they were trying to limit this as the strips were expensive and they only issued them to people who had poorly controlled Diabetes.

I was told follow a health diet and keep up some level of fitness ( I excercise 3 - 6 hours/wk)

I always had a reasonably good diet but I made extra adjustments anyway. Regardless, my Hbac1 has come in higher. So I asked if it's worth having a meter so I know what things are causing spikes/lows etc.

I was told that meters are causing depression in Diabetics as they feel disheartened when they see bad results...

So I will ask one more time via the specialist I'm being referred (on the NHS).

If I get another strange answer then I will just use my private health cover and see what they say.
 

jaykay

Well-Known Member
Messages
439
Re: Test Strip for T2 ..good result and just general thought

I was told that meters are causing depression in Diabetics as they feel disheartened when they see bad results...



.........Sigh :roll:
 

anniep

Well-Known Member
Messages
561
Re: Test Strip for T2 ..good result and just general thought

There was some research. Which if I recall correctly had the subjects test but then not doing anything with the info. So in my opinion the depression came from having the knowledge but thenbeing powerless-ness to do anything about it.

If anybody does know anything about the research it would be good to hear it. Tell me if I have interpreted it correctly.
 

JUSTFOCUS

Well-Known Member
Messages
354
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Scrooge . People who are always feeling sorry for themselves . The NHS . The benefit agency .Atttention seekers on forums or chat rooms.
Re: Test Strip for T2 ..good result and just general thought

I posted a while back about the receptionists at my GP surgery .Everytime we phone for strips the rep says have you used them already .I finally lost my usual calmness and finally asked her " Do you think us diabetics enjoy sticking king
needles in to our selves and i finished the rant by asking her what qualifications she had in diabetic treatment and the whole surgery went quiet" She replied she has'nt got any quals . The whole surgery clapped .I no longer need to phone for my strips . Another point to testing is ask your GP if you ran his child over while driving and hypo/ing would he be happy to let you off with it. That really stops the most up them self DR's in there tracks . :D
Never ever let them away with there opinion on strips !!!!!!! Remember your testing could save somebodys life .
JF. :wink:
 

greekqueen

Member
Messages
7
Re: Test Strip for T2 ..good result and just general thought

I've had my meters for years, am 8 years type 2 diet controlled, I rely on mines when going through bsd patches..a few weeks ago I found my sugars were peaking over 20 and I HAD to do something about it, so went on a low gi diet, and checked my sugars religiously, found I had ran out of the drums of needles, went to gp, told no longer prescribe them to type 2's only strips...hmm, not really of any use one without the other, he was a bit embarrassed as he knows I am pro-active and said it was true I could buy them, so buy them I did from ebay, sealed box of 200 for a fiver, and along with walking and aquafit I am getting readings of around 11 now, hopefully dropping a point every other day :)