Test Strips - Complaint Response from the Dept of Health

SirAndy

Active Member
Messages
27
Type of diabetes
Treatment type
Other
Dislikes
ignorance
They are definitely trying to cutback on the use of test strips.
In my area they are trying to get everyone to use contour. Not sure exactly how that will work as different machines can take readings for other things.
So far I don't have any problem obtaining the strips I need.
There's times when I can go as low as 2.0 without even knowing so it's vital for me to check whilst at home or out and about. Finger pricking can become a bit of an obsession and I'm guilty of that.


Sent from the Diabetes Forum App
 

drakman

Active Member
Messages
41
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
racism, bigotry and fashion
I was told I did not need to self test as the results can be misleading with type 2, however this changed when I had a crisis with my sugars in the 20s and higher a year ago, it took about 4 months to get it under 10, and an increase in medication with additional drugs, between us that is my doctor nurse and the hospital team we got there, but for 6 months I was testing up to 6 times a day, and even now I test 3 times a day and have to be aware that I now am at serious risk of hypos. I have changed what I eat when I eat and how often I eat, with little and often being best. I really did have to change every aspect of eating and drinking, I now use sweeteners only in my coffee, low calorie hot chocolate as a treat (this really does make it easier, having the idea that it is now a treat), I don't drink juices at all but low calorie fizzy drinks in summer (some of them taste vile) as fruit juice releases the sugars and sent my figures sky high.

I get enough test strips but I have to test now, even though I am type 2 and not on insulin, it is testing because of the drugs I am on which is still better than becoming insulin dependant
 

Scouser58

Well-Known Member
Messages
400
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Hello to all members, the posts I have read about the to test, or not to test problem is never ending, but it is distressing to all who want to be in control of the condition that sets so many problems in our lives.

Yes I believe that all diabetics Should test their blood sugar levels each day, after all information is power, the power to control the condition.
I am currently testing 2-3 times each day, to keep an eye on things. I get 100 lancets and 100 test strips on repeat prescription every month, along with yellow sharps boxes when I need them (binmen don't like this stuff in the rubbish!)

Diabetics don't pay for the medications they put us on, so why should we have to pay for the other valuable things we need, meters and testing supplies.
For a doctor or nurse to say that the patient does bot need to test is unbelievable, what excuses will they make if one of their patients ends up going to hospital with problems, hypos/hypers on a regular basis? would they blame the patient, make pathetic excuses? even tell fairy tales?.

Budget constraints are always an excuse people like to use,
Metformin seems the starting drug for treatment, and go from there, with ever is given next.
I am currently on my third meter, the first Freestyle Lite got full, so got another, then practise changed me over to the True You meter kit, what a stress that was, no strips and lancets were available anywhere, major mess for the chemist to get a supply, which he eventually did.

To all members, keep up the pressure for testing meter kits, they are vital to the control of the condition.
ttfn from Karen.

 
  • Like
Reactions: 2 people

rubold

Well-Known Member
Messages
108
Type of diabetes
Type 1
Treatment type
Insulin
Karen, what fo you mean by your "first Freestyle Lite got full"? The oldest memory should be erased by the latest tests, that is what happens to my Freestyle and all other meters. Also are you saying that your surgery changed your meter, but then were unable or not interested in making a supply of test strips available?
 

Scouser58

Well-Known Member
Messages
400
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Hello rubold, the meter kept showing previous readings and at times I had to try deleting these readings, which was a problem and when I enquired was told they could not do anything about this problem, so a new meter kit was given.
When the nurse decided to change the meters over following 'test strip failures' reported to the practises and chemists, (who had to check with everybody what batch numbers that they had, and if needed exchange them).
So when I went to get the new kit (choice of colour available) she showed me the way it worked.
Off I went to the chemist, who already had a problem as there was not any lancets or test strips available, as the roll out had happened and he had not had the chance to get the stock to match the new demand for the new meter kits, I had some of my freestyle lite things so I carried on until I got the call that the new things had come in.
Rubold I had, had my first meter kit from when I was diagnosed in 2007, so that had been well used, maybe it was just tired out!!. I hope this shows how the problem arose, no communication between the two points. Thank you for replying to my post, ttfn, Karen
 

Richard.l

Active Member
Messages
31
Type of diabetes
Treatment type
Diet only
Dislikes
sugar
All too familiar i was told because im helping myself and not on meds im basically on my own. so if i said sod it and gave up ended on medication i would get strips free prescriptions etc. I think the nhs has this the wrong way around they should be encouraging self help only you can make changes, you do need strips if your serious about taking diabeteson on its the only way you can get a hold on what foods work for you and this is key. Plus there would be less strain on doctors but maybe the drug companies would suffer and docs wouldnt get the incentives!!. Keep on trying!!! one day they might crack and do the right thing.
 

Scouser58

Well-Known Member
Messages
400
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Hello Richard.l, thanks for the reply, and you have made a good point, ?do the drug companies want all diabetics to be dependent on drugs without, their own brains telling them to work on the best solutions to improve the condition.
Then the NHS moan about how much is spent on the treatment of diabetes, and then the costs of the further treatment when complications occur. I think there is the no win situation on the cards, they don't encourage self help and the patient learning about the condition, so maybe knowing more than the doctor, who may not have read up on all the latest developments, ttfn, Karen
 

soozemack64

Member
Messages
5
Type of diabetes
Treatment type
Diet only
Dislikes
mushrooms
I was diagnosed with type 2 a year ago. Last summer my blood sugar levels were up in double figures despite a healthy diet and regular exercise. After some research, I followed a plan to reduce my levels. I spent 8 weeks on an extremely low carb diet. My HBa1C has gone down to almost that of a non diabetic I started phase 2 of the plan, introducing small amounts of carb. Porridge spiked my blood sugar levels alarmingly as did potatoes and tomatoes. I spoke to my GP about getting strips on prescription but she has refused saying that too strict control of blood sugar levels can have a negative impact. I asked what she meant and she told me "increased mortality". Makes no sense to me. I want to take control of my diabetes by finding out which foods affect my blood sugar levels so I can avoid eating these. Surely low blood sugar levels means less risk of stroke, heart disease, retinopathy etc. My mother was a type 2 and ate a low fat diet with plenty of carbs and was extremely vigilant about consuming sugar (she ate none at all). Shed ended up on insulin and died at 74 of heart disease. Obviously the low fat, high carb approach did her no good. I wonder if the refusal to prescribe strips is a matter of the NHS saving pennies.
 
  • Like
Reactions: 2 people

Scouser58

Well-Known Member
Messages
400
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Hello soozemack64, nice to hear from you, and your start with your diet has been brilliant, congratulations.
Your phase 1 gave you confidence to move on, so trying ordinary foods went bang.
You asked for testing kit from the GP, who said no, this has happened to many people and I have said that testing meters, strips and lancets are an important part of the diabetics medication plan.

a)Too strict control??? b) negative impact?? c) increased mortality??? so wrong, so stupid.

a) nothing wrong with control, you need it, and has she ever had the terrible feelings and sensations of going out of control??, so rubbish then
b) negative impact, no such thing, see a) and when things go wrong you feel very venerable, and fear what has gone wrong,
c)increased mortality, does she believe
in ignorance is bliss?, and what excuse would she come out with if you ended up in hospital due to poor control and monitoring??, he never did things properly?
and blame you for everything, cop out excuse here.

If you don't have any testing meter etc. they are giving away free meter kits on this site, but they only come with a small amount of strips and lancets, but as so many have found they can buy them from site or other places, but buying your own is not fair, and can be very stretching on finances, when things are tight. I am supplied with this stuff, so I will always hold the same views.

I do not know about the big picture, but there seems to be areas of "tight fisted-ness" from many GP's and diabetic nurses, there seems to be NICE differences throughout the country. Many people have taken things further and some have had success, in getting given meter kits. There has been talk on the forum and in the press about this situation. Well for now soozemack, ttfn, Karen
 

Daphne917

Well-Known Member
Messages
3,320
Type of diabetes
Treatment type
Diet only
I had my checkmup on Monday and my hba1c was 42. I asked about being prescribed strips but was toldvbecause I wasn't on meds and my diabetes is well controlled she could not prescribe them as I didn't really need to test anyway! However she was interested to know how certain foods affected my BG levels and admitted that it sounded hypocritical saying I don't need to test but then ask questions that I was only able to answer because I tested!
 

Scouser58

Well-Known Member
Messages
400
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Hello Daphne917, the patient knows more than the doctor, and uses the best way to keep the condition under control, testing, testing, and this is how the results are obtained.
Then she makes herself look and Sound stupid, asking how you knew what was good and what was bad for your diet, so testing was the answer, and she looked stupid, well done you for not giving her a "Gibbs slap on the back of the head",( from NCIS) for talking utter rubbish, congratulations for stating the obvious, testing, for now ttfn, Karen
 

munday1932

Well-Known Member
Messages
49
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
cold weather.People who criticize my town but don't help to make it better.Please can I go back to me user name which is Kentish maid
I also have to buy my own strips we have a new diabetic nurse she asked me how I keep my blood sugars low I said by low carrbing and testing my blood I then had a lecture on why I didn't need to test my blood she then said she only needs to see me yearly I replied even more reason then to test my blood.you can't win.
 
  • Like
Reactions: 4 people

Scouser58

Well-Known Member
Messages
400
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Hello munday1932, so you will just have annual check up then, money saving??
Nomistheman, you say hypocritical, so right,
I thing this two sided arguement is not going to be resolved until there is unilateral prescribing of testing kits, ttfn Karen
 

katiek

Member
Messages
17
Type of diabetes
Family member
Treatment type
Tablets (oral)
Although I can understand why people want to test their blood glucose levels the reality is that there is no robust, conclusive evidence that it improves diabetes control for those with type 2 on diet/diet and metformin. The NHS is in crisis finacially and will not fund interventions for which there is no evidence, this is for any healthcare intervention, for any condition, not just diabetes. Even on diabetes UK, where they advocate testing, they admit that numerous studies have failed to produce evidence that bg testing improves control for T2 on diet/metformin, and that HbA1c remains the gold standard in monitoring for this group of patients. They justify the use of blanket testing by saying it makes people feel better and more in control, but this does not justify the huge financial cost of funding. The reality is that it is impossible for the NHS to fund the cost of treatments that have no evidence base, there just isn't the money. As another poster pointed out, if you don't qualify for the strips on the NHS you can always buy them yourself. Many people with health conditions do not get free prescriptions and have to pay charges for their medication every month. People with diabetes are fortunate in the sense that they qualify for free prescriptions, but I really don't see why this should extend to a very costly intervention for which there is a lack of supporting evidence. You do not need bg testing to see how foods will affect your bg levels. We already know what foods will do this without testing - carbohydrates. Evidence does show that the best way to manage T2 diabetes on diet/metformin is to limit your carbohydrate intake (and in general eat healthily), participate in moderate physical activity, and have regular HbA1c tests. The carbohydrate content of foods is easily obtainable, if you aim for 40 to 50 grams of carbs with each meal, with maybe 10 to 20 gram carb snacks either side, this is a good basic starting point for most. If after so many months a sensible diet and some moderate exercise has not brought your HbA1c down then there would be justification to use bg testing to improve control. But blanket prescribing for every single person with T2 diabetes is unjustifiable and unsustainable. on the issue of hypoglycaemia, of course people who are at risk of hypos should without question have access to bg testing, but T2 on diet/metformin do not fall into this category. I am not saying it is impossible to suffer with hypoglycaemia on diet/metformin, but it is rare. As for hyperglycaemia, again, this can be prevented with sensible carbohydrate intake, and the odd high blood sugar is not harmful. All the evidence shows that it is persistent hyperglycaemia, evident from continually poor HbA1c results, over a number of years, that contributes to the serious complications associated with T2 diabetes. I do feel that in an ideal world it would be great if everyone with diabetes could test their bg levels, as people clearly feel it helps them, but in a world where the NHS restricts proven drugs for cancer patients because it "only adds a few weeks or months onto their lives" then a reality check is needed, blanket bg testing is just not going to happen, not because the NHS has it in for diabetics, but because there simply isn't the money for an intervention with no supporting evidence. My family is blighted by T2 diabetes and we often discuss the issue of bg testing, and when I have suggested buying the strips if it is felt to be so important for their health, paying 20 pounds a month, the issue of being unable to afford it inevitably comes up, yet they all pay around 100 quid a month for their sky tv packages! If and when the evidence becomes available that bg testing is an essential part of the management for all T2 diabetes it should be fully supported, but as it is for now, it is a preference, not a need, and therefore must be funded from your own pocket.
 

Sancho panza

Well-Known Member
Messages
465
Type of diabetes
Type 2
Treatment type
Tablets (oral)
You do not need bg testing to see how foods will affect your bg levels. We already know what foods will do this without testing - carbohydrates. Evidence does show that the best way to manage T2 diabetes on diet/metformin is to limit your carbohydrate intake (and in general eat healthily), participate in moderate physical activity, and have regular HbA1c tests. The carbohydrate content of foods is easily obtainable, if you aim for 40 to 50 grams of carbs with each meal, with maybe 10 to 20 gram carb snacks either side, this is a good basic starting point for most. If after so many months a sensible diet and some moderate exercise has not brought your HbA1c down then there would be justification to use bg testing to improve control. But blanket prescribing for every single person with T2 diabetes is unjustifiable and unsustainable.

Really you are preaching to the converted but and it a big but the nhs does not currently advocate any sort of low carb diet for diabetics if we follow there advice we would never test eat to the so called eat well plate and as a result not be in control of our situation.
For every person who takes control there are tens more who follow the nhs advice and progress on to complications that ultimately cost the nhs much more money in the long run.
 
  • Like
Reactions: 6 people

phil1966

Well-Known Member
Messages
661
Type of diabetes
Type 2
Treatment type
Tablets (oral)
@katiek with all due respect, I couldn't disagree more that t2's don't need to test: I was diagnosed 8 weeks ago and have got my BS under control by rigorously testing my BS levels before and after meals: it's not just carbs that spike blood sugar - protein can too and the amount of a spike varies depending on how much fat, etc you have with the meal.
Testing has allowed me to take control of my diabetes instead of the other way round and I've got my fasting BS down from 17.4 on diagnosis to 4.5-5.5 now.
You can argue that the NHS can't afford strips which is fair enough (I buy my own), but please don't discourage type 2s from testing by saying it's pointless because it certainly isn't!
 
  • Like
Reactions: 10 people

katiek

Member
Messages
17
Type of diabetes
Family member
Treatment type
Tablets (oral)
Sancho, I cannot comment on all NHS trusts, but where I live, home to one of the largest and most successful NHS Teaching trusts in the UK, whose diabetes specialist department is excellent, and at the forefront of producing much of the scientific study and evidence for diabetes management, the specialist diabetes dieticians do indeed advocate lowering carb intake as an essential aspect of diet/metformin controlled T2 diabetes.
 

katiek

Member
Messages
17
Type of diabetes
Family member
Treatment type
Tablets (oral)
Phil you managed to misquote me quite a lot there. I did not say that T2 diabetics do not need to test, I said that it is not necessary to the management for certain groups of T2 diabetics, basically those that who are diet/metformin controlled. This is not something I just decided to make up, this is what all the available evidence that we currently have says. Also, I did not once say that bg testing is "pointless". Again, I pointed out that the current available evidence has found that it is not required to manage T2 diabetes on diet/metformin and numerous studies have found that it does not improve control in this group of patients. You no doubt found it extremely useful, but likely with the right support you would have been able to bring your levels down without using bg testing. As for the points you make about carbohydrates, yes fats will indeed have an effect on how quickly/slowly the carbs are released as glucose into the blood, but it will not effect the actual amount of glucose that is released. And as for protein, I'm not sure where you have got your information from but proteins have very little effect on blood glucose levels. My post was in no way meant to offend and I am sorry if it did, but I am merely pointing out what the scientific evidence says that is currently available. I have no axe to grind, and having diabetes on both sides of my family I am no doubt genetically predisposed to it myself and therefore feel quite strongly about people getting the facts they need to manage their condition rather than anecdotal evidence that consists of "it makes people feel better".
 

CollieBoy

Well-Known Member
Messages
2,974
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
Hi carb Foods
@katiek
I would agree that testing, ALONE, has no effect on BG control for T2/T2 & metformin.
the value/effect comes in taking the test results and using the data to alter behaviour and/or nutrition.
Likewise if a HCP does not act on HbA1c test results, then no effect will be produced> Are you now going to say that HbA1c tests are of no value and should be no longer done!
The wasting of NHS resources lies in the inability of hCPs to differentiate between those who act on the test results and those who don't.
If the patient doesn't act, educate, and if he doesn't act, then remove the strips, but do not penalise those who try to minimise complications, despite the shortcomings of the system and/or ignorance from HCPs!
As for "eating healthily" the establishment have been getting things disastrously wrong with the "eatwell plate" wrt T2 diabetics as I found very quickly by using my meter. I also find that my body reacts differently to different foods compared to their carb content.
 
Last edited by a moderator:
  • Like
Reactions: 4 people