Type 1 caused by pancreatitis

janeliz

Well-Known Member
Messages
84
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Shopping, smoking
Just wondered if anyone else suffered with effects of pancreatitis and diabetes.Some class the diabetes as Type 3c but there is no forum for that.

I am struggling with my diet as I have been fold last week to have a very low of no fat diet; no milk, eggs, cream, cheese. I have gallstones which caused the pancreatitis. I cannot have the gallstones removed as I have a large collection of necrotic pancreas and no surgeon will operate on me. I try to have a low carb diet and I have to eat 4 or 5 small meals a day due to the pancreas problems. I have never had fried food and don't do spicy
I am a bit stuck on what to eat. I can't live on fruit and veg!!!
Oh, I am also allergic to fish.
 
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Ledzeptt

Well-Known Member
Messages
591
Type of diabetes
Type 3c
Treatment type
Insulin
Dislikes
Liquorice and aniseed (especially the tracer I have to drink in hospital before a CT scan - yuk!)
Hi Janeliz

I'm really pleased to hear from you as I'm a T3 relying on help from the T1s here. (Gallstones then Acute pancreatitis; quickly followed by SIRS and multiple organ failure hence intensive care; and now a long, slow recovery). I guess you're on Creon or equivalent too?

I don't have a fish allergy; I'm vegetarian, so no fish or meat in my diet - just a little protein from nuts, lentils, beans and eggs.

I was advised by specialist dietitian (aware of gallstone) not to worry about no fat diet especially as I have a low fat diet anyway. For me, it's been more important to build my strength up. I only left hospital at Xmas, having lost a huge amount of weight including just about all my muscle mass. I've continued to lose weight ever since which worries me and the dietitians (although interestingly, not my DSN who's happy so long as I stay within the ideal BMI range). My DSN told me to eat 3 meals a day and cut out all snacks, stop the Fortisip food supplement in order to manage my diabetes and I agree it has given me better control of my BG.

The downside is that I'm now 10 stone (I'm male and 5' 8") but will probably be 8 stone by the end of the year at this rate. The problem is that's the time when they're thinking I should be fit to have my gallbladder removed and other operations related to the pancreatitis.

Coincidentally, I met a dietitian this week (following a case review with several specialists in the pancreas team); they still disagree with my DSN I.e. I should be snacking between meals and I should be having some fat (not high fat); both to stop the weight loss. They did ask me to check this with the DSN (I don't think they can talk to each other because they're in different health trusts).

The dietitian recommend I try a different supplement to Fortisip called Vital 1.5 which contains "easily digestible fat". I need to talk to my GP/DSN first , plus I'm not convinced by the high carb content.

You may be interested that the dietitian recommended I ask my GP to arrange for a "fat soluble vitamin" blood test to ensure I'm taking enough Creon to absorb vital nutrients. I'm due my annual Diabetes review in August, with HBA1C, so I'll request this at the same time.

Anyway, this doesn't help you, other than that I understand completely.

All I can suggest that may help in a very limited way;

1. Quorn mince or pieces (fresh or frozen) as a low fat alternative to meat. I've been told the mince is the most realistic, but I'm not the best person to ask. The website www.quorn.co.uk has many recipes but you can probably use it as a straight substitute for beef or chicken. You can buy quorn sausage, burgers, steaks etc - I tend to avoid these, but friends offer them me as an easy meal. They taste ok to me but are probably nothing like meat.
2. Tofu - high protein, no fat, no carb, but let's not beat about the bush, it's tasteless! However, you don't need to stir fry it in Chinese dishes - look for vegan recipes such as scrambled egg and even cheesecake. You may need strong willpower and imagination for this one :) This web site may give you inspiration: http://greatist.com/health/healthy-tofu-recipes
3. Do you like fish/seafood? Again there are vegetarian/vegan alternatives (including "fish" fingers that my daughter used to eat (await accusations of child cruelty)) that have never been near the sea so shouldn't trigger your allergy. They're harder to find in the supermarket, you may need to go where we "hippies" go! (Ok if you live near a city - for me, it's Unicorn, Chorlton near Manchester).
4. Look at quinoa as an alternative to rice/pasta/possiblypotatoes or as a main ingredient in a salad (many recipes on the web). It's a grain (cooked liked rice but you must rinse thoroughly to remove a bitter taste) that's high in protein - it's not low carb though sorry.
5. I love hummus - shop bought ones have too much fat (even low fat ones), so I use this BBC recipe which takes 5 minutes to make with a stick blender: http://www.bbcgoodfood.com/recipes/1940690/healthy-homemade-houmous-
Add to sandwiches (including Lidl's high protein/low carb roll) or dip with carrots or low carb alternative such as cucumber or celery.

I'm not advocating that you become a vegetarian, if nothing else, carb management becomes even more difficult. You may want to consider "meatless Monday" (or any other day) which is a popular way of reducing meat in your diet for health or ethical reasons. There are plenty of recipes if you google "Meatless Monday" and it may be more acceptable to anyone else you live with.

Hope this gives you a couple of ideas.

Kind regards
Tony
 
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Ledzeptt

Well-Known Member
Messages
591
Type of diabetes
Type 3c
Treatment type
Insulin
Dislikes
Liquorice and aniseed (especially the tracer I have to drink in hospital before a CT scan - yuk!)
Update to my previous post...

Sorry, tofu does contain fat and carbs. I've just checked the Cauldron brand I use contains 3.5% fat and 2.3% carbs, but not zero.
 

janeliz

Well-Known Member
Messages
84
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Shopping, smoking
Hi Tony.
Thank you so much for your reply. Your situation is very similar to mine. My acute pancreatitis was June 2014 and I am still recovering from it. They have just told me I still need 12 months to recover. It's a very slow process and still not enough is known about it. I only have a scarred head of pancreas and a little of the body left, the rest neuroses. After numerous CT's, MRCP's, EUS and gastro-cysto stents and pancreatic stents I am only just starting to feel better. Sorry to be the bearer of bad news on the recovery rates. Because people can't see and for most they don't know what the pancreas is!!!?.. They don't understand the condition. I take insulin since my pancreas disintegrated which is similar to type 1 but more brittle.

Thanks for the food tips. I am not a fan of meat so I am going to try Tofu and I do quite like the quorn items. I have some quinoa but haven't or didn't know what to do with it. We don't have a Lidl's. I have noticed everyone mentions how good the high protein/low carb roll is. I tend not to buy bread, not a lover of it.

Curiously I am not on Creon. It was discussed last week in clinic with the view to starting it in September. I have lost nearly 7lbs in the last 2 months. I have a problem with the stomachs slow emptying so I have to eat small. I take domperidone for this.

Thanks again.
 
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Ledzeptt

Well-Known Member
Messages
591
Type of diabetes
Type 3c
Treatment type
Insulin
Dislikes
Liquorice and aniseed (especially the tracer I have to drink in hospital before a CT scan - yuk!)
Hi Janeliz

Thanks for the warning about the length of recovery: I was already resigned to it taking the rest of this year; I'm ok if it takes longer, just glad to be alive. I'm pleased that you're starting to feeling a little better.

I don't know how badly damaged my pancreas is: it may have 10 - 20% function remaining, but it's hidden from scans by a large cyst (yet another complication), so I'm on insulin too. My pancreas doesn't seem to do much based on my BG tests.

The Creon should help you with food absorption and may help with weight loss, but will also make your BG rise as you'll absorb more of the carbs you're eating - swings and roundabouts! (I was given it in hospital as soon as I came off the feeding tube.) I was advised to increase the dose last month to help the weight loss, which it did, but I had to find out about the BG increase myself.

Good luck experimenting with tofu - you may find it takes time to acquire a taste for it.

I tend to use quinoa instead of rice or I'll add chopped peppers and onions to it as part of a salad. It's pretty bland on its own. It's a trendy food at the moment, but it's just a way for me to get a little more protein: can't say I particularly like it.

If you don't like meat, there's also the Linda McCartney range of (frozen) meat-free foods. They're soya based, rather than quorn or tofu. Personally, I tend to avoid things that look like meat and I don't know what the fat content is. They may be of interest if the fat and carb content is acceptable.
 
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Atalay

Well-Known Member
Messages
88
Type of diabetes
Type 1
Treatment type
Insulin
Just wondered if anyone else suffered with effects of pancreatitis and diabetes.Some class the diabetes as Type 3c but there is no forum for that.

I am struggling with my diet as I have been fold last week to have a very low of no fat diet; no milk, eggs, cream, cheese. I have gallstones which caused the pancreatitis. I cannot have the gallstones removed as I have a large collection of necrotic pancreas and no surgeon will operate on me. I try to have a low carb diet and I have to eat 4 or 5 small meals a day due to the pancreas problems. I have never had fried food and don't do spicy
I am a bit stuck on what to eat. I can't live on fruit and veg!!!
Oh, I am also allergic to fish.

Hi there,
I had the same problem. We are T3!

Well, I had gallstone problem on 1999, and had my gallbladder taken. I see that yours is not taken. First thing, try to have it removed, you will be fine. Gallbladder is not necessary in a body.

Whatever you eat, pancreatitus will secrete the enzymes. Does the gallstone still sticking to the opening channel to stomach? That hurts like hell during pancreatitus activity.

I really dont think any kind of nutrition will stop pancreatitus from emitting enzymes.

You really need to find a doctor who could take that gallbladder off of your body.
 
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M

mrspuddleduck

Guest
Hi guys, I have had pancreatic disease for the last 16 years, pancreatitis both acute and chronic being two of the symptoms! My pancreas is necrotic and calcified with they estimate less than 1% insulin function which is now finally giving up. I have had no enzyme function for 15 years so been on Creon since the onset. After years of trying I find eating 5 - 6 times a day much better in terms of maintaining weight although I still remain very slim! I have malabsorption so have to have vits b and d by injection. Just wanted to say prognosis is better than many of the docs say, I've found the long term pred has caused the most problems, but generally as long as I manage my condition well I have a great quality of life. I'm a type 3 but docs call me a lada, or a type 1 - not medically accurate I know but makes life a **** site easier when dealing with the hoards of health professions you encounter who have never heard of type 3. Sue xxxx
 
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IzzieS

Well-Known Member
Messages
71
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Loud noises; disrespectful people; fireworks
Hi, I think you're all amazing! I had acute pancreatitis 2.5 years ago caused by gall stones. My gall bladder was removed 6 months later. A year later I was diagnosed as Type 2 and have been on various medications since to try to get my blood sugars down. I've never heard of Type 3.
However, I am really lucky that I can eat most things apart from rich creamy foods and hope that you'll be able to find an eating plan you can manage.
 
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JRW

Well-Known Member
Messages
275
Type of diabetes
Type 1
Treatment type
Insulin
I've classed myself as T1, as that's what the doctors told me. However I had acute severe pancreatitis in December 2008, nearly died, blood pressure 190/240, near rate 140, just sat on a hospital bed. The destruction of my pancreas was severe, but I left hospital three weeks later when my BG was at an acceptable level, so my pancreas must have been functioning to some extent at the time. Come 2012 and I have full blown diabetes, diagnosed as T1.

I'll diagnose myself as type 1.3 going forward.
 
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janeliz

Well-Known Member
Messages
84
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Shopping, smoking
Unfortunately they will not remove my gallbladder because of the large necrotic collection of pancreas. Maybe when they have treated that they can do it and if I haven't had another bout of pancreatitis !!!
Maybe there should be a section on Type 3c. More people would become aware of it then.

Pancreatitis itself is also misunderstood by many, until you have it and it becomes a fast learning curve. There are lots of varied complications that arise quickly. And lifelong changes. The body is happy with just that and throws in diabetes, dietary problems etc.
This site still provides lots of useful information.
 
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Atalay

Well-Known Member
Messages
88
Type of diabetes
Type 1
Treatment type
Insulin
I hear you all, people! Good luck to us all on managing diabetes. I love this forum on helping me keep my motivation up high!
 
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Ledzeptt

Well-Known Member
Messages
591
Type of diabetes
Type 3c
Treatment type
Insulin
Dislikes
Liquorice and aniseed (especially the tracer I have to drink in hospital before a CT scan - yuk!)
Hello Atalay, Mrs Puddleduck, IzzieS and JRW!

Great to hear from you all. I've been out all afternoon/evening at a large family barbecue. I couldn't eat very much and certainly couldn't drink, but I still had a fabulous time with my family, which is what matters. I count myself very fortunate.

I hope you all have a tremendous weekend, in spite of your ailments, and whatever we label ourselves!

G'night,
Tony LedZepTT
 
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