Type 1?

loubylou

Member
Messages
9
Hi there.
After a very eventful week I have been diagnosed as Type 1? :? . to be confirmed by blood test.
Wow very confusing lol. After 3 weeks of sugars in 30's n GP not able to decide. I then ended up with ketones and being sent straight to hospital, once there was assessed put on insulin for good so they say. :?:

Been given a ketone monitor to keep eye on levels at home and have to phone hospital to increase insulin over next few days, as it has come on so fast so they arent sure what dose i require @ moment. Had endless blood tests not sure what most of them was for tho.

Next appointment 5th December so hopefully know more then. Until then will regularly visit this site (not good with computers tho lol) :wink:
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
Hi loubylou and welcome to the forum :) Regardless of which type you turn out to be, this information for new members should be very helpful to you to give you an idea of what to do. This will help you to get your levels down. Ask as many questions as you like as there is always someone here to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates
A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 

Sanober

Well-Known Member
Messages
393
Dislikes
Not really knowing what's going on inside my Endocrine system!!!
Hi (again) :)

They'll have put you on insulin regardless of type because of the extremely high sugar levels you had, the ketones can also be serious.

However, if they ran a bunch of tests and concluded T1 then you'll have been tested for C-peptide and anti-bodies test, perhaps anti-GAD? As these two help to determine clear cut diagnosis for adult onset of T1.

I am going to be on insulin as of the 12th Dec, I too was diagnosed, got my letter on Thurs because the ant-GAD showed antibodies. Thankfully I wasn't at your sugar levels when I got my diagnosis (although my morning fast today was 19.1....so will need to keep a close eye on this).

Hope you're feeling better now you're on insulin.

Good luck and keep in touch.

:)
 

fireant4

Member
Messages
15
Hi Loubylou

Wow your story is a mirror image of what has happened to me over the past 4 weeks!

I also had BG's in the high 30's was told i had type 2 and put on metformin then due to levels not coming down after being on six tablets a day they put me on insulin! and confirmed i was also type 1..

Least we both know what it is now tho and things can be dealt with!! I've just had my two week follow up appointment at the hospital today and things are getting clearer and clearer! i hope this is the same situation with you? Things are confusing at first and for me very frustrating! but things get better with more knowledge!
This is a great place to find out hints and tips some really nice and helpful people on here :D

With regards to the blood test! when i had mine it was to see if any damage had been done to other organs ie kidneys/liver and to see if any acid in the body??

Hope you find this site as helpful as i have and if you want to chat or compare problems as we are in the same time scales of getting this, feel free to contact me..

Take Care
Ant :)
 

loubylou

Member
Messages
9
Hi Sanober,

Sorry to hear you've been diagnosed type 1!!. Hope u feeling much better.
Still waiting for results of the GAD test, should get results 16th when im seeing specialist.
Good luck for your appointment on the 12th.
For me going back onto insulin made me feel so much better, hope it does same for you.
Take care, keep in touch :D
 

loubylou

Member
Messages
9
Hi Ant :D

How are you?. Thanx for reply, always nice to hear from someone who knows what you're going through . How are you managing with the insulin?. OK I hope. Im finding it more difficult this time I must admit. I was on insulin while pregnant then stopped after I had baby. They leave you for 6 wks then retest you to see if you are diabetic or just for pregnancy.

Not as easy with an 8 year old and 4 month old baby to keep monitoring and injecting lol. Will get into routine soon hopefully. I felt better as soon as I started Insulin though. Just seem to be plagued by colds and bugs etc at the moment. Get all my test results this friday, so will feel better when I get them.

How are your BG readings now?. Mine are still between 15 - 20, suppose it takes time to come to better level?

Anyway take care, keep in touch
:D :D
 

RussG

Well-Known Member
Messages
401
Hi Loubylou,

It does take a little while to get your levels down but by the sounds of those numbers your insulin doses do need to come up as the insulin works pretty much right away. However, illnesses do very often make your sugars go up.

I would imagine that when you see the consultant you'll also see a specialist diabetes nurse who will be able to advise you on adjusting levels. You'll feel even better when the numbers come down even more. The standard advise Daisy gave you will also help keep things on an even keel if you can reduce your carbohydrate intake - however if you're breastfeeding you will need to watch this and the standard advice is not to reduce carb intake too much.
 

fireant4

Member
Messages
15
loubylou said:
Hi Ant :D

How are you?. Thanx for reply, always nice to hear from someone who knows what you're going through . How are you managing with the insulin?. OK I hope. Im finding it more difficult this time I must admit. I was on insulin while pregnant then stopped after I had baby. They leave you for 6 wks then retest you to see if you are diabetic or just for pregnancy.

Not as easy with an 8 year old and 4 month old baby to keep monitoring and injecting lol. Will get into routine soon hopefully. I felt better as soon as I started Insulin though. Just seem to be plagued by colds and bugs etc at the moment. Get all my test results this friday, so will feel better when I get them.

How are your BG readings now?. Mine are still between 15 - 20, suppose it takes time to come to better lev
Anyway take care, keep in touch
:D :D

Hey

How you feeling now? are you getting into a nice routine? it will soon become second nature i'm sure.. I've found i just do it now without thinking about it., but i guess for you having your hands full with the little ones it may be a bit harder?
As for the cold plague your getting! i've heard thats something we can expect? I (touch wood) never caught colds but days afer having this i got one! going to have a flu jab so hope that helps?

I found the insulin worked a treat.. sounds like your BG readings are high tho? but i'm sure like you say giving it time and it'll all for into place?
My BG's range now from going really low! sometimes as low as 2.9 but the highest i've been recently is 15, but not often high now..

Hope all your results were ok and keep your chin up

Ant :D
 

Kylie_Baker

Member
Messages
23
Dislikes
impolite people, tv, cheap icecream...
Hi Loubylou,

This is just a short message but just waned to say that you and I are in the same boat. I've been diagnosed Type 1 recently too. All a bit of a 'mare really. But getting through it day by day. I've finding new problems and solutions everyday. New challenges given that I am watching my diet and oh, well the list does go on!

I was reading so so high when I first got wheeled in. My bg was 16 and sometimes I was reading 25+. Had keytones too so wasn;t looking too great. Also lost around 25 kilos (great but not the way you wanna do it!) I'm 30, slim, healthy, had Gestational Diabetes (not related?) and was generally very well. I too have a little one, 1 year old boy

Everything moved really fast for me, well i say fast. I had my fair share of problems but once I was correctly diagnosed,(1st type 2 and metformin and gliclazide) I was on insulin right away and things start improving. I think i'm pretty stable and my nurse is happy with my progress so far.

There's so much to it all and it's really quite daunting at first, but getting the hang of it. Problem is just finding some quiet time to yourself to absorb it all ;)

Be very happy to share more if you need it.

Take care

Kylie
 

Emmaayziing

Member
Messages
21
After 3 weeks of sugars in 30's n GP not able to decide.

I found that really shocking, when I went to the GP because we thought I was diabetic my BG was 27 with no ketones, she sent me straight to the hospital and I had to spend the night - although I was feeling fine myself!!

Hope you get into a good routine, good luck!! :)
 

AndyS

Well-Known Member
Messages
784
Type of diabetes
Type 1
Treatment type
Insulin
Yes BG of 30 would tend to indicate T1, either that or you just munched a mars bar and washed it down with a couple of redbulls.

When I was diagnosed the Dr's meter basically threw a hissy fit and wouldn't event output a "High" result. Was sent to do a urine sample for ketone testing while she got the practice nurse in who had "a better meter" which read 33.6 on first test and "High" on second. Urine tested for t he maximum on ketones so was packed off to hospital for 3 days.

I must admit I was a very bad patient. I mostly felt fine and even on the first morning after admission was off wandering around as I got bored so had to leave me mobile number with the nurses on my way out as the Dr's kept missing me on their rounds and I missed heaven knows how many blood tests.

Still.. I came here when I escaped and did my studying and am all good now.

So there is hope. You just need to get through to the acceptance stage as fast as you can and figure out how to work your life with diabetes in it. That is the trick.. life goes on, you just have an extra thing to think about, as with many things once you get to grips with it you find it is not as bad as you thought.

Best of luck to loubylou and ant... and anyone else that is new to this.

/A
 

loubylou

Member
Messages
9
Hi,
Thank u for all the replies!!.
Kylie your story sounds just like mine!. I was 1st diagnosed with Gestational Diabetes same as you and then it just snow balled from there.

Saw consultant last friday, all results in apart from GAD. They have put me as type 1 although none
of my results are straight forward, bit of a medical mystery :lol:

Seem to be getting into a routine with insulin slowly. Have found this site very helpful with very friendly and welcoming people.

Would like to wish u all a very merry christmas and a super year for 2012!! :D