D
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Hi everyone! Not sure where to start! I met with my endocrinologist today, 10 months after having my antibodies test. I initially requested this as I was first diagnosed with gestational diabetes in 2016 (blood sugars were usually below 10 without insulin but I did have ketones present so the diabetic nurse thought I might be developing Type 1). Once started on insulin my numbers were perfect. I was then told it was just gestational and to stop all insulin once the baby was born, which I did and took nothing for 6 months. Then I had a nasty case of the norovirus and ended up in full blown DKA in hospital. Following this I was told there was no doubt about it, I was Type 1 despite having no symptoms leading up to diagnosis. So I began taking Novorapid and Lantus daily.
So fast forward to today. My endocrinologist said my antibody test came back negative so I am NOT a Type 1 after all. My Hba1c is 34 (5.3) and that I can come off insulin tomorrow and start taking Metformin twice a day. He believes I have some kind of genetic form of diabetes and has referred me to a specalist (with a very long waiting list).
Due to the utter shock, I totally forgot to ask him what my c-peptide results were and how Metformin actually works. Whether I should change my diet etc. So I phoned my nurse this afternoon and she was shocked that he had told me to stop taking insulin since I had DKA last year. She told me to continue to take the insulin until she speaks to him next week and will arrange for me to then meet with her.
So I was just wondering if this has happend to anyone else and if anyone else has some kind of genetic diabetes and what the difference is? Not really sure what to class myself with at the moment! Still unsure if I am actually Type 1 after the DKA episode!
He also told me insulin does make you gain weight which is depressing! I am 10lbs over my healthy weight and finding it tricky to lose despite sticking to 1200/1300 calories a day and lowering my insulin doses.
Sorry for the long post but hoping to have some advice as I know lots of you are very knowledgeable!
Thanks,
Hollie
So fast forward to today. My endocrinologist said my antibody test came back negative so I am NOT a Type 1 after all. My Hba1c is 34 (5.3) and that I can come off insulin tomorrow and start taking Metformin twice a day. He believes I have some kind of genetic form of diabetes and has referred me to a specalist (with a very long waiting list).
Due to the utter shock, I totally forgot to ask him what my c-peptide results were and how Metformin actually works. Whether I should change my diet etc. So I phoned my nurse this afternoon and she was shocked that he had told me to stop taking insulin since I had DKA last year. She told me to continue to take the insulin until she speaks to him next week and will arrange for me to then meet with her.
So I was just wondering if this has happend to anyone else and if anyone else has some kind of genetic diabetes and what the difference is? Not really sure what to class myself with at the moment! Still unsure if I am actually Type 1 after the DKA episode!
He also told me insulin does make you gain weight which is depressing! I am 10lbs over my healthy weight and finding it tricky to lose despite sticking to 1200/1300 calories a day and lowering my insulin doses.
Sorry for the long post but hoping to have some advice as I know lots of you are very knowledgeable!
Thanks,
Hollie