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Recent Content by DionneT

  1. DionneT

    Undiagnosed: Numbness After Consuming Carbohydrates

    Hi @J_Eicher, Insulin increases immediately when carbs are consumed - in a non-diabetic person levels peak at around 45-60min after a meal and begins to go back to baseline after that (it pretty much mirrors the blood glucose peak). So if your symptoms start to tail off around the one hour mark...
  2. DionneT

    Undiagnosed: Numbness After Consuming Carbohydrates

    Hi @J_Eicher! Unfortunately I still have no diagnosis, doctors currently think I need psychiatric referral!! Trying to stay positive and keep pushing forward, but it's not easy when you are told it's all in your head! My favourite theory involves intracellular potassium shift... when you eat...
  3. DionneT

    Undiagnosed: Numbness After Consuming Carbohydrates

    Hi ChetRoi, thanks for getting back to me. Subacute combined degeneration of spinal cord has dominated my reading for the past couple of days and was my next thing to ask you about, but you have already ruled that out so I will move on! The rare diabetes-like condition sounds intriguing, is...
  4. DionneT

    Undiagnosed: Numbness After Consuming Carbohydrates

    I've been prone to sinusitis for as long as I can remember, and had a fairly constant low level of discomfort from them since my teens. Usually every time I had a common cold my sinuses would flare up and would take weeks to settle back to baseline. I'm also very sensitive to weather changes to...
  5. DionneT

    Undiagnosed: Numbness After Consuming Carbohydrates

    Hi ChetRoi, Thanks for your insight. I will hold off on any more MeCbl until these tests are done. Do you think it may also be worth incorporating more carbohydrate into my diet in the days before testing? I know that muscle burn well! When symptoms peaked early last year it was hard to walk...
  6. DionneT

    Undiagnosed: Numbness After Consuming Carbohydrates

    Hi ChetRoi, A couple of questions for you! Have you already had homocysteine and MMA levels tested and shown to be elevated? Also did your doctors (or yourself!) have any thoughts on the relevance of your SNPs in TCN2? I haven't had a chance to read too deeply into transcolbalamin deficiency...
  7. DionneT

    Undiagnosed: Numbness After Consuming Carbohydrates

    Hi ChetRoi, Thanks for all the information. Endocrinology will be my next port of call but I imagine I will be back on a huge NHS waiting list to get there, hopefully not another 6 months this time! That's great that you have been able to access such a variety of tests relatively quickly. Sorry...
  8. DionneT

    Undiagnosed: Numbness After Consuming Carbohydrates

    Hello, I just wanted to second Lamont D's suggestion of fasting - I have done several 24 hour fasts recently and feel fantastic in the final few hours. I get a glimpse of the old me - sharp mental focus, abundant physical energy and a sense of calm. Shame that I have to resume eating again! I...
  9. DionneT

    Numbess after Carbs/Sugar

    Hi ChetRoi, Unfortunately still no explanation from my side, I wanted to check in and see if you are any further forward with diagnosis? Rheumatology were unable to find any abnormalities, no autoantibodies detected. I was feeling relatively well at the time of blood sampling so possibly levels...
  10. DionneT

    Numbess after Carbs/Sugar

    Hi @ChetRoi, Thankyou so much for your reply. I strongly suspect that my issues are autoimmune in nature- I have many of the features of Sjogrens syndrome (as yet undiagnosed), as do several family members on my father's side, although I am the only one with neuropathy and carb metabolism...
  11. DionneT

    Numbess after Carbs/Sugar

    Hi @ender I realise this is a really old post but I'm wondering if you ever found an answer to your numbness? I've been experiencing the same thing for over a year now... eating carbs makes me numb, starting from right hand and foot, and this moves up my body to chest and face. This happens...
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