Recent Content by HarleyRH

Thank you I’ll have a look at all of this, lots of new language to me though (no idea what an MDT team is but I shall google!) Thank you again :)

As far as I’m aware, it’s been like this for a couple of months, however that’s just as long as I’ve been testing but I’ve come to the realisation that a lot of my dizzyness, night sweat, feeling faint issues that we thought was my blood pressure, has actually been the sugar. A+E said that it’s...

Oh and my GP is trying to get me seen urgently by endo, my GI rarely has any appointments, my next one with him is in April. I’m waiting on a surgically placed tube which could happen before then.

The 0.9 and “lo”s have only happened a couple of times (that I’ve caught!) to be fair it came back up to the 3s within half an hour but at that point I had been drinking a lot of monster glucose drinks to try and bring it back up (before I’d been told it was reactive). For my 500 it’s usually...

My weight is really pretty stable at the moment surprisingly.

Hey guys, thank you so much for the replies, I will try to explain more. I can drink more than water! And I do try to eat sometimes but it’s mainly halo top ice cream as the fat content in other ones makes me sick. I also eat beetroot and some very light bread type things (crackers, mini...

Yes I only feed via a feeding tube and I’m prescribed feed, I’ve managed to get quite a good one made up of MCT and other nutrients. My feed is peptide based due to my inability to digest whole nutrition properly. I was told that my hypoglycaemia is reactive by my GI, I have not had any tests...

I don’t have a glucose drip, I was on one in hospital as they suspected I had addisons and that’s why I was dropping. I cannot change what I eat as it’s pretty much all feed from a bag that I cannot alter, tube fed in to my small intestine as I cannot digest properly due to gastroparesis. So...

Freema, I’m tube fed, the 500kcals is just oral intake. I get the rest through my tube and it works out to about 1500kcals a day (totally fine for my BMR) X

Freema, I’m tube fed, the 500kcals is just oral intake. I get the rest through my tube and it works out to about 1500kcals a day (totally fine for my BMR) X

The medical link fhing is a good idea! All of the EDS specialists seem to be in London (I’m in Glasgow) I can’t eat any nuts :(

I can’t eat carbs, I’ll just throw them up, glucose makes me go even lower and I’ve discussed it with my doctor and it’s recognised to the point I am prescribed strips. Today my sugar has been under 4 for most of the day, 3.2 for half of if. I need to find some way of keeping it up without...

Okay, this won’t be simple to explain but I need help so I will try. I am a 27 year old female with Ehlers-Danlos Syndrome and gastroparesis. I don’t have much oral intake, less than 500 cals a day. I have a nasal-jejunal feeding tube. I have for a long time experienced dizzyness...