Recent Content by Pam*

I have been getting lows between 3am and 5am every night/early morning. Has been happening for last few weeks. I'm on Tresiba Degludec (long acting) that I take in the morning, I was on Nova Rapid (fast) but recently changed to Fiasp as it works quicker. Since December 2024 I was put on...

I like Skinny beers. Some UK supermarkets stock them and often free delivery on Amazon. They do a lager, IPA and fruit cider. The lager is good. I dont like the cider and not tried the IPA yet. Skinny Lager has 3g of carbs per 330ml bottle

Im type 3C caused by having my entire pancreas removed due to Neuroendocrine pancreatic cancer so it's not only people who've had pancreatitus that become 3C

Good luck with your dotatate. Are you having it at Guys? I had mine there but am under Kings for the PNET. I live on the south coast so it was quite a treck to get up there, luckily I have my CT scans done locally in Hastings and results are sent to Kings. I thought you had all your pancreas...

I use the NUU A5X monitor with my Libre 2 sensors. Is it possible to get the upgrade to a CGM on this please? My mobile is not compatible as it doesn't have NFC installed.

Have you tried these Skinny beers? Just 3 carbs per 330ml bottle. They also do an IPA and a cider with similar carbs. You can buy them at most UK supermarkets or online, Amazon etc. Usually £13 to £15 for 12.

I buy Skinny bars at any supermarket. About £1 to £1.25 a pack of 5. Low carb and low calorie. https://skinnybars.co.uk/ They also do very low carb larger, beer and cider which I buy on Amazon.

Mine usually last 14 days but in the last 6 months I have had 2 FL2 that said 'Sensor Ended' after just one day. I contacted Abbot and they sent me replacements. The replacements seem to arrive much more promptly now.

Our stories sound similar. I had a dotatate scan a month before surgery to see if it had spread. Apart from the pancreas it was in 3 lymph nodes, thats probably why they removed so many. I haven't had a dotatate since then and just have a CT scan with contrast every 6 months at my local...

Hi NellH. I have similar to you. My pancreas was atrophied due to a pancreatic NET. I was refered to Kings in London, a centre of excellence that specialised in NETS. I had surgery 2 years ago. They removed all my pancreas, spleen, duodenum and gall bladder and resected my portal vein due to a...

Hi Jane 1973 I also had a NET in my pancreas. Two hospitals couldn't treat me and said it was not possible to have surgery. I asked to be refered to 'Kings' a Centre of Excellence in London where they have specialists in NETs. Two years ago I had surgery there and am doing pretty well. I am...

Thanks Steve. Interesting Dafne sugests to inject 15 mins before eating. I will try and remember to do that. I think it might help. I was told 1 unit of insulin will lower my BG by 4mml and not to inject on a high (without food) unless over 14. So 1 unit if 14, and 2 units if 18. I do sometimes...

Thanks for your reply Steve. I did this online course. My Type 1 Diabetes Online Courses. It's all I was offered. I would like to do the DAFNE course so I will ask my diabetes team if I can have a link to the OU. I count carbs religiously for every meal, even working them out for things like...

I'm so sorry Nick Ive only just seen your reply - a month late. Unfortunately the DAFNE course is not available where I live unless I travel a long way. I did an online course though that was similar. I also use kitchen scales and weigh absolutely everything at home to work out the carbs. I...

Hi there. I had a full pancreatectomy + spleen removed in April last year. The hardest thing now is trying to keep my blood glucose on track.