Recent Content by SarahTee

I would like to hear from anyone who took acarbose and had a bad reaction to it as to what the recovery time was. My doctors agree that the reaction is due to acarbose. What they can’t help with is if or when I might feel better.

I know about the issues with this drug, but there is nothing left for me to try apart from one other drug that I can’t afford long term. There is no alternative at this point. I have discussed it extensively with my specialist. I am approaching total disability, selling my house, and relying...

This reference says half life of 96 hours: https://www.drugs.com/pro/acarbose.html Not that that explains why I am still feeling unwell nearly 10 days later. The headache is probably from disrupted sleep.

I started on acarbose 10 days ago. After the first day, I got bad side effects and discontinued it with the expectation of trying again at a lower dose. I am still feeling unwell though. Has anyone else had side effects and taken this long to recover? Doctor is no help. Side effects are bad...

May I ask, have you been able to measure your blood pressure and heart rate when you have the sudden drop feeling? I realise this might be a bit difficult, but, if you sometimes feel unwell when your blood sugars are normal, it’s worth checking your vital signs to see whether something abnormal...

@Keatsy1987 I know you mentioned being tested for POTS, but did they look at other autonomic disorders? Octreotide is used to treat some autonomic disoders so I am wondering if that is why it was suggested. (I have an autonomic disorder. Octreotide helps by reducing postprandial abdominal...

Here is a link to a good source of information on POTS symptoms: https://www.potsuk.org/about-pots/symptoms/ There are other conditions that come under the same umbrella as POTS, but without the tachycardia on standing. Some of these involve abnormal blood pressure responses, such as...

This could be my story, although I was diagnosed with chronic orthostatic intolerance. (Similar to POTS, but without tachycardia.) Mine doesn’t show up on a tilt table test, but luckily I was referred to an autonomic specialist who was able to diagnose me. I’m so glad the extra salt and fluid...

@NEOBAHAMUT I saw your post and wanted to say that I have had a similar path. For years I thought I must have a blood sugar problem, but in the end, it turned out to be an autonomic disorder. (At least, that is my current diagnosis, and my specialist seems pretty sure about it.) How did your...

Question for folks with IPS: Do you have symptoms all day? My reason for asking is that I have symptoms that could be IPS, but I don’t get them after every meal. It all started about 18 years ago, when I would feel a bit iffy (faint, exercise intolerant, OI) after breakfast. Then it gradually...

On two days I did feel a definite loss of energy when I dropped below 5, but yesterday I did not. Today I am going back to my normal diet and meal pattern to see whether the symptoms come back. I am feeling more and more “idiopathic” every day!

Hello folks, One more question, please, if you can humour me! Would a drop from 5 to 4 mmol/L in under an hour be considered rapid? It happened late this afternoon. I had had lunch plus snacks every half hour or so following, all LC. Wasn’t exercising, just pottering about.

Will do! I will post in the IPS thread after I have experimented a bit more with my diet.

Thanks, Lamont D., I will have a look at those threads. And thank you for asking after me. Originally I was looking at whether I had RH or orthostatic intolerance (a type of dysautonomia that causes fatigue, blood pooling in abdomen after meals, faintness, exercise intolerance, irritability...

Possibly. I am still trying to work out what is going on. I do not have diabetes, and I’m not sure yet whether my body might be used to higher numbers. I seem to be feeling unwell when I drop below 5, so not officially hypoglycemia. Not sure whether it is how fast the drop is happening, or...