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CKD and Diabetes

jbeelou said:
Hi All,

Brand newbie here.

Quick question, I cannot seem to find a thread about living with diabetes and dialysis.
As I am about to start this treatment, I was wondering if there are some people out there who are also living with this??

Thank you

JB
Click to expand...
Hi @jbeelou , welcome to the forum.
I'm sorry you need to start dialysis soon, but I hope it will make you feel better!

Tagging @Ushthetaff , who is on dialysis, and @Grant_Vicat , who has lived with CKD for a long time.
 
jbeelou said:
Hi All,

Brand newbie here.

Quick question, I cannot seem to find a thread about living with diabetes and dialysis.
As I am about to start this treatment, I was wondering if there are some people out there who are also living with this??

Thank you

JB
Click to expand...
Hi sorry to hear you have to start dialysis, I’ve been on it bout 18 months , bit daunting at first but nothing to worry about , have you had a line / fistula put in yet ?if your dialysis unit is like mine it’s like a wee community it’s different than going into hospital for a procedure it’s far more “ laid back” and you get to know all the nurses etc and everyone is there for the same thing .most of the people in my dialysis unit are diabetic. I’m at the unit 3 times a week and I’m on for 41/2 hours a time. I get full blood checks once a month and more regularly if needed . With regard my diabetes I don’t find it affects it too much, they take my blood sugar every time I’m on the machine so I can check how accurate my Libre is , plus they take it out of the dialysis machine not my finger so Thats a plus lol .please feel free to ask any questions you want or pm me if you just want a chat about things .
 
Ushthetaff said:
Hi sorry to hear you have to start dialysis, I’ve been on it bout 18 months , bit daunting at first but nothing to worry about , have you had a line / fistula put in yet ?if your dialysis unit is like mine it’s like a wee community it’s different than going into hospital for a procedure it’s far more “ laid back” and you get to know all the nurses etc and everyone is there for the same thing .most of the people in my dialysis unit are diabetic. I’m at the unit 3 times a week and I’m on for 41/2 hours a time. I get full blood checks once a month and more regularly if needed . With regard my diabetes I don’t find it affects it too much, they take my blood sugar every time I’m on the machine so I can check how accurate my Libre is , plus they take it out of the dialysis machine not my finger so Thats a plus lol .please feel free to ask any questions you want or pm me if you just want a chat about things .
Click to expand...
Hi ,

Thank you for replying, Ushthtaff,

Really glad you replied.

TBH, I am not going to lie, it has kinda shoved a massive spanner in the works. Even though I knew this was coming, still a big change to daily life.

No fistula needed, thankfully.

I did think about the hemodialysis in the clinic, but have decided to go with peritoneal Dialysis in the next few months. Going to give that a try before I go full Heamo.

When you talk about diet. "With regard my diabetes I don’t find it affects it too much"

What do you find affects it?

Are you on a low-potassium and salt intake?

I know we are all different, just wondering what foods really help you?

Thank you, though, for the reassurance this has given me.

JB
 
jbeelou said:
Hi All,

Brand newbie here.

Quick question, I cannot seem to find a thread about living with diabetes and dialysis.
As I am about to start this treatment, I was wondering if there are some people out there who are also living with this??

Thank you

JB
Click to expand...
Thank you for the tag @Antje77
Hi @jbeelou Sorry to hear about the need for dialysis. Although I had CKD for 40 years, I missed dialysis by 8 days because I had a kidney/pancreas transplant just in time.. Like you I opted for peritoneal dialysis because it would interfere with my job far less. As to a low carb diet I would imagine that they have advised to stick to low protein and low phosphates.This meant that I was not supposed to eat anything seed based, like berries, coffee, chocolate, vanilla. For some reason tea was advised against, but peppermint tea became a staple. I used to make casseroles with a small amount of diced lamb or beef, but with a great variety of vegetables. Spinach is fairly high in phosphates, so I had to rule that out. Oily fish are not recommended although skinless and boneless sardines are ok. Much of the phospate is in the bones and skin. It's strange how some white fish is fine and others not. All the above is what I was told in 2012. However I now find this from a source which really should know!:
www.kidney.org

Phosphorus and Your CKD Diet

Phosphorus is a mineral found in your bones. Along with calcium, phosphorus is needed to build strong healthy bones, as well as, keeping other parts of your body healthy.
www.kidney.org www.kidney.org
I would check this out with your specialists, especially a dietician specialising in kidneys. I wish you the best of luck.
 
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