So I complained to the GP. I was then sent a referral to a diabetologist in a special clinic in my area. That was so worth doing! The diabetologist has kept me on 5mg Mounjaro, also put me back on Metformin (as the GP had also taken me off that) and also kept me on Dapaglifozin. She said that in someone diagnosed so young (42) with T2, I needed this and really explained why. She was really scathing of the GP surgery and wrote to them suggesting further diabetes training!! No apology from GP, but they are prescribing the Mounjaro until the end of this month when they want another set of bloods. Will see if I'm back to pointing them back to the diabetologist recommendations after that. She did say that 36mmol was a bit low, so hoping the MJ reduction + Metformin reduction + Christmas eating, puts the reading above 40mmol or she said would need to drop the MJ to 2.5mg.
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Doctor wants to stop my mounjaro - what are the official guidelines?
- Thread starter ch.83
- Start Date
jennyj69
Member
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- 12
- Location
- Manchester
- Type of diabetes
- Type 2
- Treatment type
- Non-insulin injectable medication (incretin mimetics)
- Dislikes
- Mango and Carrots
Hi
Ive been on Mounjaro 2.5mg for about 5 months, I started out with Hba1c of 77 and weight of 20 stone 10, I am now 18 stone 7 and my Hba1c is 40.
My nurse has just made an appointment for the end of January to bring me off Mounjaro.
I understand the correlation between my weight, which I struggle with badly and have done for many years, and my Hba1c, and after trying several different drugs, Semaglutide tablets never worked for me and Canigliflozin gave me terrible side effects, Mounjaro has changed my life, I am able to eat better and my glucose control is very good.
Ive just seen this on the BBC, so how this will affect things i have no idea
www.bbc.co.uk
Ive been on Mounjaro 2.5mg for about 5 months, I started out with Hba1c of 77 and weight of 20 stone 10, I am now 18 stone 7 and my Hba1c is 40.
My nurse has just made an appointment for the end of January to bring me off Mounjaro.
I understand the correlation between my weight, which I struggle with badly and have done for many years, and my Hba1c, and after trying several different drugs, Semaglutide tablets never worked for me and Canigliflozin gave me terrible side effects, Mounjaro has changed my life, I am able to eat better and my glucose control is very good.
Ive just seen this on the BBC, so how this will affect things i have no idea
People coming off weight-loss injections risk fast weight gain
Overweight people shed large amounts on jabs but gain 0.8 kg a month on average once off them, study shows.
www.bbc.co.uk
Hi, just been searching for answers for this. I’m nervous for my next appt because of the same thing.
Prescribed Mounjaro when my numbers were in the 80s. I was also 20+ stone. 10 months on 5mg and I’m now 13 stone and my numbers are in the non diabetic range.
I’m scared that they will stop the meds and feel like I need the right things to say to stop them doing this. I’m 40, diagnosed T2 when I was 35. Gestational diabetes in 2 pregnancies when I was 30 and 33.
Any tips would be appreciated. Thank you
There is a very useful publicly available resource that allows us to compare prescribing data.
You can compare your region with others and even drill down to compare your GP practice with others.
Two things stand out.
Mounjaro prescriptions are Increasing across all regions and most GPs
Massive differences - a real postcode lottery.
Prescribing data shows that some GPs prescribe Zero. Some 30x as much as the average. The resource allows comparison taking into account the list size so it is a valid comparison.
Some doctors insist on backup consultation with specialists.
Try investigating here https://openprescribing.net/analyse...ZBB&denom=total_list_size&selectedTab=summary
You can compare your region with others and even drill down to compare your GP practice with others.
Two things stand out.
Mounjaro prescriptions are Increasing across all regions and most GPs
Massive differences - a real postcode lottery.
Prescribing data shows that some GPs prescribe Zero. Some 30x as much as the average. The resource allows comparison taking into account the list size so it is a valid comparison.
Some doctors insist on backup consultation with specialists.
Try investigating here https://openprescribing.net/analyse...ZBB&denom=total_list_size&selectedTab=summary
mansingh01
Well-Known Member
- Messages
- 105
- Type of diabetes
- Type 2
Don’t doctors know than when your sugar levels are controlled it’s because of the medication
- Messages
- 11,822
- Type of diabetes
- Type 2
- Treatment type
- Tablets (oral)
The OP of this thread asked about official guidelines for stopping the Mounjaro prescriptions. The following article has some info on page 15. “Patient monitoring, reviewing and stopping”.
Apparently, according to the article, there are no official guidelines for stopping. To quote from info in the link
“Mounjaro does not have a set stopping rule, or maximum treatment period, allowing for indefinite prescribing.”
This suggests that it is up to individual patients and their prescribing clinician to consider all circumstances when deciding on whether or not to continue.
I have only scan read the article, but there are many interesting points. A Few I picked out of personal interest include:-
The phased implementation to those patients with highest clinical need.
The need for ‘wraparound care, including advice on nutrition, diet, behavioural change being mandatory.
The medication being a ‘Black Triangle Drug’.
The fact that it is a ‘Black Triangle Drug’ could be another reason for the phased introduction, aside from the cost implications to NHS. I.e. it is a new treatment which has not had longitudinal study to assess any long term ill effects. As someone who has previously been prescribed ‘cures’ for my obesity, including Tenuate Dospan, (amphetamine) and Orlistat (prevents absorption of dietary fats) which caused me adverse effects, I would be very wary about starting any weight loss drugs. Particularly any ‘Black Triangle’ meds. Of course we each have to do our own, personal evaluations and risk assessments in making our choices, and some will still be restricted by Integrated Care Boards, and individual clinicians in how they interpret the criteria set out.
*Edited to remove reference to previously edited post and to provide clarity . Pipp.
Apparently, according to the article, there are no official guidelines for stopping. To quote from info in the link
“Mounjaro does not have a set stopping rule, or maximum treatment period, allowing for indefinite prescribing.”
This suggests that it is up to individual patients and their prescribing clinician to consider all circumstances when deciding on whether or not to continue.
I have only scan read the article, but there are many interesting points. A Few I picked out of personal interest include:-
The phased implementation to those patients with highest clinical need.
The need for ‘wraparound care, including advice on nutrition, diet, behavioural change being mandatory.
The medication being a ‘Black Triangle Drug’.
The fact that it is a ‘Black Triangle Drug’ could be another reason for the phased introduction, aside from the cost implications to NHS. I.e. it is a new treatment which has not had longitudinal study to assess any long term ill effects. As someone who has previously been prescribed ‘cures’ for my obesity, including Tenuate Dospan, (amphetamine) and Orlistat (prevents absorption of dietary fats) which caused me adverse effects, I would be very wary about starting any weight loss drugs. Particularly any ‘Black Triangle’ meds. Of course we each have to do our own, personal evaluations and risk assessments in making our choices, and some will still be restricted by Integrated Care Boards, and individual clinicians in how they interpret the criteria set out.
*Edited to remove reference to previously edited post and to provide clarity . Pipp.
Last edited:
Catlady19
Well-Known Member
- Messages
- 672
- Type of diabetes
- Treatment type
- Tablets (oral)
I am very confused too. I was put on Mounjaro by the Endocrinologist who I had been referred to for my diabetes. She tried various medications which didn't help (including insulin). After working up to 10mg since August 2024, I lost 3 stone and my last HbA1c was down to 36 from 79. When I asked the Endocrinologist how long I should stay on MJ she said I would stay on Mounjaro for life as if I stopped my blood sugars would eventually rise again and I would probably gain weight again.
Fast forward a few months to an appointment with the Diabetic Nurse at my practice, who praised me and then said that I would now have to come off MJ. I advised that the Endo had said I should stay on it but as the Endo hadn't sent a recent update letter, I asked her to send through a letter to my practice to confirm I should stay on MJ.
In the meantime the nurse spoke to my GP (who knows me well) who said I can stay on 10mg.
Then, to my shock, the Endo wrote a letter saying the complete opposite to what she had verbally told me and said that I could ween off MJ or at least stay on a low dose and that she wasn't a dietician and couldn't comment on the weight situation. I wrote back to her saying that I was very confused as she had told me the opposite during our previous meeting and I haven't heard anything else, she has blanked me! Just waiting to see what my GP will do now
Basically, I don't think they know what they are doing yet, as Mounjaro has been so successful for many T2Ds but they don't have the evidence for very long time use on this particular product. The other GLP's have been around for 20+ years and the diabetic nurse says they stop working. I cannot see the point of yo-yoing up and down taking MJ getting your HbA1c and weight down and then going back up again and starting all over again.
Fast forward a few months to an appointment with the Diabetic Nurse at my practice, who praised me and then said that I would now have to come off MJ. I advised that the Endo had said I should stay on it but as the Endo hadn't sent a recent update letter, I asked her to send through a letter to my practice to confirm I should stay on MJ.
In the meantime the nurse spoke to my GP (who knows me well) who said I can stay on 10mg.
Then, to my shock, the Endo wrote a letter saying the complete opposite to what she had verbally told me and said that I could ween off MJ or at least stay on a low dose and that she wasn't a dietician and couldn't comment on the weight situation. I wrote back to her saying that I was very confused as she had told me the opposite during our previous meeting and I haven't heard anything else, she has blanked me! Just waiting to see what my GP will do now
Basically, I don't think they know what they are doing yet, as Mounjaro has been so successful for many T2Ds but they don't have the evidence for very long time use on this particular product. The other GLP's have been around for 20+ years and the diabetic nurse says they stop working. I cannot see the point of yo-yoing up and down taking MJ getting your HbA1c and weight down and then going back up again and starting all over again.
- Messages
- 11,822
- Type of diabetes
- Type 2
- Treatment type
- Tablets (oral)
Some people need to use Mounjaro as a weightloss drug. In addition to or instead of using it as a diabetes med.
Therein lies a problem.
Seems that some prescribing clinicians are interpreting the guidelines to mean that once diabetes is controlled and / or the weight has dropped, medication should be stopped.
Edited to remove quote of deleted post and for clarity of meaning.
Therein lies a problem.
Seems that some prescribing clinicians are interpreting the guidelines to mean that once diabetes is controlled and / or the weight has dropped, medication should be stopped.
Edited to remove quote of deleted post and for clarity of meaning.
Last edited:
Hi I hope you're well.
I've have also been told the same. I totally disagree with this decision as you are playing with people lives here should this drug not be taken off gradually because the after effects can be quite difficult and alarming. I also need help and guidance on how to stay on the drug for just a little longer so I can prepare myself mentally/psychological and physically when I come off the drug.
