Letter to Dr Phillip Lee MP

test_positive

Well-Known Member
Messages
47
When I got up this morning I was still feeling angry about Dr Phillip Lee,MP and his recent comments. So I sent the following to him and copied my MP. Feeling better now! I doubt I'll get a reply but will post it if I do.

Dear Dr Lee, MP,

I was horrified by your recent comments regarding those of us with Type 2 Diabetes. Even more so when I learned that you are a GP. As I am sure you now realise, your comments were completely misinformed and you unfairly encouraged prejudice against people with a disease – that you as a GP are supposed to support. Whilst I say I am sure you realise how wrong and misjudged your comments were, I note that there is no mention of them on your website and no retraction. Indeed there is the comment from 2007: “More than 1.5 million Britons now have Type II Diabetes. This is thought to be a direct consequence of poor choices in diet and diminishing levels of exercise.”

I was diagnosed with Type 2 Diabetes this year at the same age as you – 42. Please don’t believe that it could not happen to you. I have never been overweight, never smoked, exercised regularly for many years and I have always been careful with what I eat. But in your misinformed comments you seem to think that I should “pay for [my] drugs at cost, in that way you would be attaching a consequence to lifestyle choice." I have found it hard to come to terms with my chronic disease – in part because of the common misrepresentation of those with Type 2 Diabetes as being fat, lazy, stupid people who don’t care for their health and who have brought the disease on themselves – a “lifestyle choice” as you call it. When I was diagnosed, people told me I must have been eating too much sugar! Please look at the images in the media that go along with your comments to see the stereotype that is out there and to see what your comments help to encourage. You are stigmatising a group of people who as a GP you should know more about.

As a GP you should know that although the understanding of Diabetes has progressed a long way in recent years and shown that it is in fact a set of many diseases with varying causes, true cause and effect is still largely not understood. It is now thought that most, if not all, of the Diabetes diseases have a genetic component. There is no evidence that eating doughnuts causes Diabetes as you imply.

Considering your argument further – because I realise you were using those of us with Type 2 Diabetes as an example – you appear to think that the NHS should be making decisions about who is ‘worthy’ to treat rather than simply treating people who are unwell. This argument is unsustainable – where does it end? With committees reviewing cases to determine whether or not individuals are worthy of being treated? If you were unfortunate enough to get hit by a car when crossing the road because you didn’t take enough care, should you pay for your own treatment? Should those who have lung cancer and have smoked be denied NHS treatment? What about someone who contracts malaria whilst on holiday? Or someone who contracts HIV/AIDS from unprotected sex?

Your primary concern appears to be the cost of the NHS. You, of course, know the implications of denying medication to those of us with Type 2 Diabetes. Without control of blood glucose, we are susceptible to complications such as heart disease, blindness, neuropathy and amputations. These complications are the true cost (both financially and in terms of impact on people) of Type 2 Diabetes. By denying medication, you will increase the level of these complications. Do you then propose that these individuals are not treated on the NHS for these complications? Your proposal would have the effect of increasing overall cost – in particular to the lives of the individuals and their families.

I understand and share your concern about the increasing burden of Diabetes on the NHS. And so I would ask you to be truly radical instead of falling back on stereotypes and poorly thought-through arguments. The NHS gives very poor advice to people with Diabetes – advice which actually exacerbates their condition. By ignoring the NHS advice and following advice from web forums such as http://www.Diabetes.co.uk and http://www.eattoyourmeter.org and sites such as http://www.bloodsugar101.com I have managed to get my blood glucose under control and down to levels of those without Diabetes. This is achieved through careful management of carbohydrates in my diet and following a ketogenic diet which is high in fat. It has also had a beneficial impact on my lipid profile by dramatically reducing my triglyceride level. But the NHS advice is against this diet (and they are unable to provide evidence for their claims) and encourages those with Diabetes to eat substantial amounts of carbohydrates in a ‘healthy’ diet. The level of carbohydrates that the NHS recommends are very unhealthy for those with Diabetes and lead to the awful and debilitating (and costly!) complications. I would ask that you take a truly radical approach to Diabetes care and challenge the status quo of current NHS care which I believe leads to substantial negative impacts on individuals and increased cost for the NHS. On the above sites there are many, many examples of people who followed NHS advice to their detriment but who have managed to positively impact their health by going against NHS advice. Please take time to find out more from the sufferers of this disease.

A debate is needed on how we, as a country, are going to pay for our health in the future. But I expect MPs (and GPs) to help lead an informed debate rather than one based on prejudice and misinformation.

Yours sincerely, etc.
 

pumppimp

Well-Known Member
Messages
246
Type of diabetes
Type 1
Treatment type
Pump
Well done,
I hope he does get back to you but knowing MP's he'll be too proud to apologise. Very well written letter I completely agree with everything you were saying. Most GP's I've had the pleasure of knowing have really never known all that much about diabetes apart from what they can quickly pick up, I stick him in that category.
Good luck let us know if he does get back to you.
 

Mayfly

Active Member
Messages
42
Dislikes
Not eating chocolate
Superb letter, will write to the idiot myself. Don't expect a response from him, but may get one from my local MP.
 

test_positive

Well-Known Member
Messages
47
Thanks.

No, I don't expect a reply either. I'm not one of his constituents. I did copy my MP in the hope he might raise it with him. I also got in contact with the Diabetes help group in Bracknell suggesting they might want to raise it with their MP. He is obliged to answer them and they can take their votes away if they want to.

I'll post any reply I get on here. :lol:
 

nataliegage

Active Member
Messages
27
What a wonderful letter and how well informed you are about Diabetes generally. I am a Type 1 diabetic diagnosed at 6 years of age. Under parental surveillance I was forced to follow the NHS advice which in 1952 was very poor, but I was always going hypo needing hospital admission. It was only when I married and started taking care of myself and going against a lot of bad advice from the NHS, I started leading a much healthier full life. I used to think it was only me who went against advice and refused to eat more than 100 grams carbohydrate a day, but the Forum now shows me and demonstrates that what I was doing was sensible. It must have been as this month I am celebrating surviving this disease for 60 years still ableto drive and possessing all my limbs Thank G-d. An achievement after 60 years. Even at this stage in my life, I have ill-informed members of the NHS arguing with me. I've said it many times, if I'd followed their advice, on numerous occasions, I would have died. Please see my recent post about NovoRapid pens being faulty. That is one example.

Sorry about going off the subject of your letter which I found to be so accuratr, even for a Type 1 diabetic, because I assure you we too are told it is a lifestyle problem. Today I have spent all day trying to publicise how people could be dying from faulty medication. I have been told to fill this form orhave been passed from pillar to post. I have typed a report of what happened and requested the Daily Mail Reporters to contact me. I am getting the feeling that we are basically being abandoned. Nobody really cares, we are treated as if we are a burdon on society.

I do hope you get a reply to your letter. I wonder if we are all too timid to complain en mass. That seems to be the only way governments listen. I have many friends and family who are Type 2 diabetics, so I appreciate your fight for them all.

Thank you.

Natalie
 

test_positive

Well-Known Member
Messages
47
nataliegage said:
this month I am celebrating surviving this disease for 60 years still ableto drive and possessing all my limbs Thank G-d. An achievement after 60 years.

Definitely an achievement! :clap: :clap: :clap:

That's the sort of thing I needed to hear from the NHS when I was first diagnosed - people can and do survive this. Instead, they gave me a leaflet telling me to eat a normal "healthy" diet. And one from DUK that scared the life out of me telling me I was at a much increased risk of having my foot amputated and that if that happened I was a much higher risk of depression and death. The DN was not caring at all - although my doctor has been much better. It was all such a shock as I didn't have symptoms when I was diagnosed and didn't even know I was being tested for it. The DN rang me up out of the blue and said "Sorry to tell you but you've got diabetes. You might want to come in and see me."

Well done for battling against the NHS advice - hope you last long into a happy retirement! :thumbup:
 

jobean

Member
Messages
16
Type of diabetes
Treatment type
Tablets (oral)
Dislikes
Aubergines
Good for you ! I couldn't have put it better myself.
 

nataliegage

Active Member
Messages
27
Anybody needing to know how to survive Diabetes in spite of the NHS advice, I'm happy to help. Pse note I am responsible, I know all the pitfalls, and am honest with my Doctors, but we are all different and I make sure I control my diabetes and it doesn't control me. It is a joint effort.

Thank you for your kind words. I'm waiting for my 60 years medal and hopefully will still be here for my 70th.

Look after yourself. Read read read. Any carbohydrate turns to sugar - that seems to confuse so many diabetics. So eat enough to stay stable but eat plenty of protein to fill yourself up. Carbs are the enemy.

Best wishes and I hope I've cheered you up.

Natalie
 

jhonsmith

Newbie
Messages
1
you should know that although the understanding of Diabetes has progressed a long way in recent years and shown that it is in fact a set of many diseases with varying causes, true cause and effect is still largely not understood. It is now thought that most, if not all, of the Diabetes diseases have a genetic component. There is no evidence that eating doughnuts causes Diabetes as you imply.
I hope he does get back to you but knowing MP's he'll be too proud to apologise. Very well written letter I completely agree with everything you were saying...>!!!

:clap: :clap: :clap: :clap: