levels all over the place and feeling really low...

Curleous

Well-Known Member
Messages
85
Dislikes
bad manners and rudeness
Hi all

ok am now in second week as t1. was on novomix for a couple of days before consultant put me onto lantus and novorapid. I am on 14 of lantus and 3 of novorapid with evey meal. My lowest morning level is 7 but normally between 8 and 9 and 2 hours after meals i am anywher between 11 and 20. I went out for a meal with my dad and we both had the same and 1 hour later i tesetd us both and he was 6.5 and i was 18.5. Do you think i need to speak someone as i dont have another appointment for another month. The nurse has said phone up with readings at end of week but i am concerned that the level is too high in the morning and why it goes so high after meals...it was only a ham sarnie with granary bread 2 round and 4 cheery tomatoes for chr****** sake.. Vision is still blurred to top it all off

Thanking You

Curleous
 

suzi

Well-Known Member
Messages
754
Dislikes
people who are rude and ignorant, and people who have no patience in queues.
hi curleous,
Welcome, you really need to get hold of your DN, as we can offer dietary advise and how your insulin works, but can't tell you how many units to take, as everyone is different. Your doing very well so far as youv'e realised your blood sugar readings are still a little high. Look round the forum, it has plenty of advise and will help you understand carb counting and insulin ratios. Its all trial and error in the early days, but i promise you things do get easier, i'm speaking as a parent of a 10yr old who was diagnosed 3yrs ago. There's plenty of advise and some very useful imformation as well as support on the forum,
Suzi x
 

anniemai

Newbie
Messages
3
Hi
Yes i would get back on the phone to the diabetic nurse tomorrow just for your own peice of mind!! It will take some time to adjust to t1 diabetes and to get used to the 'balancing' out of food v insulin but you WILL get there.
I was diagnosed 27 years ago when i was only a child and i have been on the DAPNE plan (injections v carbohydrate per meal) for nearly a year and i'm still getting to grips with that after all my years of experience!! But remember the Diabetes team are there to help you and they are glad to do so.
Take care of yourself - I wish you well
 

acron^

Well-Known Member
Messages
143
Dislikes
Diabetes?
I'm not sure it was a good idea to come off premix so soon... As far as I'm aware it's generally considered a simple way for 'newbies' to get to grips with diabetes and the responsibility of a regime. From what your saying, your levels are NOT stable. You should work on getting that sorted before going onto such a dynamic regime imo. It's like going straight to manual when some one's offering you an automatic. Why learn the hard way?

I think you need to really take the bull by the horns. Your diet needs to change.
 

Curleous

Well-Known Member
Messages
85
Dislikes
bad manners and rudeness
ok thanks for all the replies.. i will phone the nurse/diabetic clinic tomorrow for some more advice. I am booked in the week after next to see the nutrion/diet nurse.

Thanks all

Curleous
 

Marky74

Well-Known Member
Messages
69
acron^ said:
I'm not sure it was a good idea to come off premix so soon... As far as I'm aware it's generally considered a simple way for 'newbies' to get to grips with diabetes and the responsibility of a regime. From what your saying, your levels are NOT stable. You should work on getting that sorted before going onto such a dynamic regime imo. It's like going straight to manual when some one's offering you an automatic. Why learn the hard way?

I think you need to really take the bull by the horns. Your diet needs to change.

I was put on to lantus and novarapid from the start. My Consultant started me on low doses, and under guidence of my DSN, I changed the ammounts..
 
Messages
10
Several thing to consider. Try several small meals per day. The type of insulin that you take depends on when you should be testing your blood sugars. I would say that you should be testing your sugars before meals and at hour of sleep. Never within an hour after eating as your sugars will be higher. Also most long acting insulins kick in about every 2 to 3 hours for anywhere from 8 to 12 hours, which may result in lower sugars. In the US we have hemoglobin A1C tests athat measure levels of blood sugars over a two or three month period. Do you have this test done and what is your level? Not sure if these tests are measured the same in the UK as the US, as our weights are in pounds, not stones or kilograms and our distances are in miles not meters. Anyway if your HgA1C levels are out of whack, your physician will adjust your insulin as needed, Also avoid eating high carb foods (sugary) at hour of sleep if your blood sugars are high, as this begins a viscious spiking and lowering of blood sugar rhythm which may be affected by insulins. If sugars typically run high in the evening, you may consider a walk to help lower sugars, but don't overdo or you could go to low. 15 or 20 minutes of slow walking would be good depending on blood sugar levels.
 

phoenix

Expert
Messages
5,671
Type of diabetes
Type 1
Treatment type
Pump
Try several small meals per day.......
Sorry, I don't think this is appropriate advice at the moment for the insulins being used.
The bolus insulin is designed to cover the meal you are eating it starts working within about 20 minutes and is at its peak action for a couple of hours and then has a 'tail' up to about 6 hours after use. It is meant to be taken when you eat and eating in between meals will make adjustment more difficult. graph of action here http://www.novonordisk.com/diabetes/hcp/pharmaceuticals/novorapid/actionprofile.asp

My suggestion (from what worked for me and difficult to explain carefully, please ignore if too complicated :) )
1) get a carb counting book and some scales and if necessary a calculator so you can calculate the carbohydrates in your meals.
2) (for the moment) Eat fairly regular meals Trying at first to keep the carb content similar for each time of day. (ie if you have 40gms of oats and 250ml of milk for breakfast have similar every morning, if you have a sandwich lunch do the same each day (doesn't have to be the same filling but use the same amount of bread) and similar amount of salad, if you have potatoes, rice or pasta with your evening meal try (using your carb book) to have about the same amount of carbs. The carb book can also be used to estimate the carbs in your veg.
3) Keep records (you should have been given a log book and you can find usually places to add carb data)
ie before lunch BGL= 8mmol/l
insulin 3u
meal (sandwich + tomatoes) 32g carb for bread and say 4 for toms =36 total carbs
Bgl 2 hours after 18.5mmol/l (this 2 hour level should normally be where your bg is highest, when stabil it should'nt be more than about 3mmol more than the premeal level)
Its a good idea to note illness, exercise etc as they have a big influence on levels.


Don't worry it isn't for ever (though most people find keeping a log book of some sort useful)
The reason behind this is that you reduce the variables, making it easier for your nurse to determine the right amount of insulin for each meal. ( it will normally vary between meals as most people don't eat the same amount of carbs for breakfast, lunch and dinner).
If you eat widely varying amounts of carbs it becomes impossible to determine how much insulin is needed to 'cover' each gram of carbs. To put it another way, if you take a fixed dose with a varying amount of carbs you will have high levels one day, low on another, occasionally by chance, you might get it right
When you have a doseage that consisitently works well and you develop confidence, if you vary the carbs you eat you will also be able to adjust your insulin appropriately.

The amount of carbs that you eat for the day is something to discuss with the dietitian. Hopefully she might also discuss the glycemic index with you.


The long term insulin you use is fairly flat, kicks in fairly quickly and should last for 24 hours (though in many people it doesn't last that long). (profile here (glargine)http://en.wikipedia.org/wiki/File:Glargine_02a.jpg
It is something that will take time to get right. When its right your blood glucose should not go up or down by any great amount overnight or when 'fasting' during the day .Its eventual function (ie when your levels are lower and everything is working well) will be to keep levels stable, not to reduce bgl levels.



Just to add to the confusion, the insulin needed may change quite a bit over the next few months.
(personally the amount of bolus insulin for each gm of carb hasn't changed a great deal since diagnosis but my basal has dropped quite a bit.
 

gbtyke

Well-Known Member
Messages
97
As far as I know all type 1's are started low dose and gradually increased.

We were frantic when our son's levels didn't shoot down within the first week but I think it is important to bring them down in a controlled fashion as you don't want to be going hypo all the time - overshooting up and down all over the place.

So work with your team, increase the dosage slowly and also look at the other means of control - diet and exercise - don't rely on just insulin.

Regards
 

Mark72

Member
Messages
7
Firstly hello,

I myself have had issues with using the novarapid and levirmere. As stated here before only test Before your meals and just before bedtime. Now when you are going to eat remember the carb content and also what type of carbs your eating, By this i mean whether they are slow releasing or fast acting. Now Bread hmm i would suggest going to your local supermarket and just reading the levels on the back, This will amaze you i'm telling you. Most breads contain upto 15-20g of carbs per slice and around 1.5g -2.0g of that is sugar :oops: Yes thats correct a slice of bread is actually like putting a spoon of sugar in your tea or coffee. Now its a debate amongst many here and everywhere but i really do recommend you try reducing your carbs, This can be done slowly so you can get used to it and not get the symptoms of withdrawal. I suggest cutting down too around 150g of carb content a day and monitoring how you BGL's are like that then if they are still slightly high with your current Insulin levels then reduce down to 100g a day and again monitor. Also remember the most Important test and level is your HBa1c not your BGL's. This is done every 3 months and then when your stable they will drop off to 6 monthly or even yearly. However you can insist on them being done every 3 months if you wish. Now Also remember there are many things the NHS will tell you too eat that are simply bad, This is exactly where i have been and am now just comming back from and hopefully comming off of Insulin. Berstiens is a fantastic read and i reccomend you try to read it and understand all the parts of it. Its for both T1 and T2 diabetics and will amaze you in some of the safe things they tell you to eat which are actually just as bad as the things they tell you too avoid.

Good Luck
 

Curleous

Well-Known Member
Messages
85
Dislikes
bad manners and rudeness
Thanks all....

levels are gradually coming down big time now...waking up now between 4 and 6 and staying below 9 most of time in day ...had a day all below 7 yesterday but did feel shaky at times and had to get some food in me quic as test said was at 3.1 and 3.5 the second time... got to see nurse soon with results of readings so that she can advis on dosgage increase /decreases..

Just out of curiosity when i start feeling dodgy to start shaking/trembling can only take a matter of minutes... what is the next stage after trembling and how lonh do i have to react. i feel that from feeling a little funny to trembling comes on very quickly so just need to know how long i have before the next stage comes on as i dont want to go there..

Cheers

Curleous
 

Celtic.Piskie

Well-Known Member
Messages
288
Dislikes
Whole-wheat past and rice, tastes horrible. Cats, spiders, and people who think nick jonas is a musician.
Your levels will be up and down like a rollercoaster for a while. Sounds silly, but don't panic yourself about them. You've just been diagnosed with a life changing, lifelong disease. Get used to that first.
You cannot, and shouldn't, expect to manage it completely overnight.

Just out of curiosity when i start feeling dodgy to start shaking/trembling can only take a matter of minutes... what is the next stage after trembling and how lonh do i have to react. i feel that from feeling a little funny to trembling comes on very quickly so just need to know how long i have before the next stage comes on as i dont want to go there..

That is pretty typical. The shaking and 'dodgy' feeling are part of the same process, the brain is suffering from lack of sugar.
You have plenty of time. The body has a fair amount of sugar in reserve. I can't find any timings, but it's hours, not minutes.
As long as you have symptoms, then you are aware of what's happening.

Good luck , and good for you on coping so well. :)
 

latecomer

Member
Messages
16
Dislikes
lucozade or anything sweet when having a HYPO.
having type 1 diabetes.
ignorant specialist.
has anyone mentioned the honeymoon period> When first diagnosed it is quite common for your pancreas to still work every now and then this can trow out your regimen but it is normal and will stop in time talk with your nurse or doctor about it. I felt dreadful for at least the first 6 months but it is different for everyone it will also depend how long it had been before you were diagnosed and how depleted your cells were. My eyes sight came back quite soon after starting on the Insulin. Eventually you will now better than anyone how to look after yourself, but this site is brilliant for helping you feel like you are not alone.