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Really encouraging update @rosie04 May I ask how you got the endocrinologist to do the tests for bacterial infections? I’ve got a fasting test with NHS in January, but after that I may try private. Great BS levels. I also have great BS the last few days, because I have Covid! Was 6 all night...

Thank you for your reply, glad to know I’m not the only one! Yes it was as the clocks went back, your explanation makes complete sense. Congratulations on your excellent results with keto, must have been hard work! I have upped the fats I am consuming and am finding eating lots of protein at...

Thank you very much for your kind reply. It has provided me with some much needed reassurance. I think my body is changing and adapting, but it is not a smooth ride! That’s a good idea about the high fat snacks, I shall look into that tomorrow. Thank you, your response is much appreciated.

Hi, Over the last few weeks, upon waking I feel so tired, low energy, hungry, like my blood sugar is low. It has been between 4.2 and 4.7 by finger prick. CGM matches this and shows in and out of low all night. I immediately have to eat upon waking and don’t seem to be able to fast at all. my...

Really happy to read your update @rosie04 Keep us posted about the gut tests. Would be interested to find out what they said. I’m convinced I had norovirus or food poisoning last December and it worsened my RH symptoms and generally felt unwell for ages after.

https://www.healthifyme.com/blog/beetroot-diabetes/ Here and other articles say it improves insulin sensitivity, something we don’t need with RH!

Rather than spike BS, I read that beetroot lows BS, which is why I wondered if anyone else had this reaction of a super fast drop.

Hi, I have been on the newly diagnosed RH rollercoaster this year too. Also self funding CGM’s to see the patterns and triggers. I really sympathise with how debilitating and not understood this is. Having your blood sugar drop every few hours is not easy. my practice nurse also has RH and told...

Thank you very much for your response. Yes exercise seems to be a funny one for me too. You should be a RH consultant, very helpful :)

I thought that’s what the Dr said. Anyway, I haven’t had any letters through with appointments. I have had hypos for over twenty years- previously they could be bought on by very intense exercise like swimming or cycling. Is there any study of how RH affects exercise? I assumed it was because...

Ok thank you. Had endocrinology appointment last week, which was about 12 minutes long after months of waiting. Said I have to have a 16 hour fasting test to rule out other things and will get referred to a dietician. Trying to help myself by wearing CGM and testing different foods. Survived a...

I eat a few new potatoes and tomatoes often with no effect. Was curious if it could be the beetroot

Has anyone else had a particularly fast reaction to beetroot? I had lamb, few new potatoes, green beans, tomatoes and quite alot of beetroot. Within an hour of eating, felt ravenous, within 2 hours my bs had gone to low 4’s. I don’t usually have low blood sugar for 3 hours after eating. Reading...

Thank you for all your help. I will wait and see what the NHS endo says. That’s a good idea, I will start trying to fast for longer than 10-12 hours a day, as that seems to be my limit at the moment. Is there any connection to Vitamin D? I had low vitamin D last winter which is when the hypos...

Yes my hypo symptoms were improved, but I absolutely no energy to function. I can’t give blood, tried and it won’t come out!

It was a good tolerance test with ensure drink, not glucose drink. Yes my fasting is normal. I have not had a formal diagnosis. Saw a Private endo with food diary, blood glucose diary from finger prick and symptoms. He said 90% sure reactive hypoglycaemia. I have been waiting on NHS tests and...

It was from a finger prick and CGM, see attached. It went down quickly though, so not diabetic. But test got aborted and was given something to eat. Yes that’s what I had been trying now, to gradually reduce carbs. I had what I’d identify as keto flu for a month, then went to low GI. I think I...

Yes initially when I learnt I had the condition, I went low carb, but found I had bad carb withdrawal, very weak and no energy. I’m just very hard to get blood from, Even when very hydrated etc. At the hospital the intravenous team even used a scanner and cannulated a deep vein but it only...

Thank you, it is really kind of you to offer advice. Ok I will go prepared and document to the appt. I think it’s unlikely the glucose tolerance test will work on me either. The intravenous team have tried on two separate occasions to cannulate me and have had no success! They manage to get a...

Thank you I have read through the forum. It was a mixed meal test- with drinking ensure and taking bloods through a cannula. My glucose shot up to 13 once I drank the ensure, but was aborted as they couldn’t get bloods out of the cannula. Is this common? I have a endo appt in a few weeks. I...