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Hi Kathryn, Can I just ask, how old are your children? My son started nursery in September and we're not fully satisfied with his care. We're still thinking about home ed but are concerned about socialising. Did your children attend many groups/activities to become socialised? If so, how often...

Hi Emmadixon, Not sure if this has been re posted elsewhere but have you contacted your son's Diabetes team again? My 3 1/2 year old's BS start going high when he has growth spurts and it's usually necessary to make some changes to his carb ratios and basal rates (he's on a pump) His DN's say if...

So my son started nursery in September and since then he has had about 3 weeks where he hasn't been ill! He is on his 2nd course of antibiotics within the last 3 weeks and the doctor said he has a viral infection. He doesn't seem to get over the first before he catches another so I have kept him...

Hi, you're right, being gluten free isn't that restrictive but I think I meant more in the way of he couldn't eat as freely without worrying about cross contamination or if eating out or sharing things at nursery. I did look into a gluten free diet a lot when I thought he had it and was willing...

Hi Everyone, Been a while since posting but a lot has been going on! Firstly, my son has had a biopsy and it's now confirmed he does not have Coeliac disease although his initial bloods were positive! He has a place in nursery (1st choice:)) and they have said I can go in with him daily to...

Hi Everyone, Been a few of weeks since posting but just been busy sorting out my son's nursery, having teacher and nurse meetings, training, etc... Anyway, we received a copy of the biopsy results and they confirmed they had done a blood test at the time of biopsy which also came back clear...

Thank you. Just not sure what's going on until we hear further. So frustrating!

Hi Everyone, Got my sons biopsy results today - and they were negative. We're pleased he's not Coeliac but will be looking for some answers as to why his blood results were high. Awaiting call from his DN once she has spoken to his Endo! Should be tomorrow.

My 3 year old snacks on olives in pots or deli. The jar ones are in a sort of brine that's really salty and defeats the purpose of being a healthy snack! The pot olives are usually in a dressing of some sort and they're stuffed too. We found Tesco pots are saltier than Sainsbury even though...

Hi everyone, just wanted to thank you all for your replies. My son's BM and Ketones all went back to normal around Monday afternoon I am thinking you were right in saying it was the stress of the biopsy as he's had a good week. Will update once results come back. I have today bought a gluten...

That sounds awful! Don't blame you for not wanting to eat wheat! My son's consultant said it was very likely he has coeliac because his blood results were high but like your case, it's not definite. Think it's I best to wait for results as another week or so won't make any difference. We just...

Agree - manageable but not easy. And T1 and Coeliac - twice as hard as I'll have to re learn carbs for non wheat foods! Oh well, I've done it before so I'm sure I'll do it again! Investing in a breadmaker too which should be fun!

I don't think anyone fully understands anything unless they're in the same situation. We understand that once gluten free, the tiniest amount of anything could cause problems for weeks but some think a little won't hurt - erm, yes it will!!! I will be taking my own supplies on family visits as I...

CarbsRok - biopsy was to confirm coeliac as blood results were high. Biopsy results back in a week or so but very likely he is coeliac. Been told to make no diet changes until results are back and we need with dietician, although I have done plenty of research of what we can/can't eat. Sorry for...

Thank you donnellysdogs. Yes it's a shame about the coeliac and I know everything has to be changed but it's manageable. My husband and I will also be going gluten free so we can support him properly. I'm checking ketones every 2 hours and setting temporary basals to reduce them which seems to...

Thank you. His BS is still a little high but ketones have come down. He has been his usual playful self since yesterday but then he is a very happy boy. Been on a lot of temporary basals which seem to be working so I'll keep those going!

Thank you for your reply. He's still a bit high today but that makes sense, it could be the stress of it all. Will wait to see if anyone else has experienced this.

Hi, My 3 year old had an endoscopic biopsy to confirm Coeliac Disease yesterday but since then, his bloods have been a little high and he has high ketones present. Has anyone been affected in a similar way after a biopsy? His DN said it shouldn't make a difference so maybe a coincidence? We have...

I would like to agree with you that schools try their best but I have heard from several mums how the schools and teachers can't be bothered to test bloods, call in the parents, monitor the child, etc... I'm happy for you if you've had a positive experience and I certainly hope I do too!! I...

Definitely scary time for us! Yes, maybe just do it a little at a time and see how she goes. I hope she gets on ok and settles down. Although I know a care plan will be in place, I don't like the thought of someone else being responsible for my son's diabetes. I don't trust anyone but feel it's...