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  1. C

    Joint Pain

    I was bad on lantus although Dr refused to believe that was the issue. I insisted on a change to Tresiba and all muscle pains stopped within the week
  2. C

    Type 1 diagnosis changing

    I carried on producing some insulin for at least 4 years from a c-peptide test (diagnosed in 40s) Rapid weight loss is also a clue for T1. Saying type 1.5 are usually skinny depends on your starting weight. I lost a stone but I was just 8.5 to start with
  3. C

    Unexpected Diagnosis

    Credit to your medical practice for getting you over to A&E rather than automatically assuming you're T2 because of your age. I definitely wouldn't binge on anything sweet or especially high carb (pizza) before tomorrow. Let us know how you get on
  4. C

    Change in Age of T1 Diagnosis in Recent Decades

    Also I do wonder if there is a genetic susceptibility which is only really coming to light as general life expectancy improves. After all it's only 100 years since insulin was first extracted and prior to then T1 was a death sentence so genes weren't being passed on. My blood sample...
  5. C

    Change in Age of T1 Diagnosis in Recent Decades

    Not necessarily answering the question but interesting https://diabetesjournals.org/care/article/44/11/2449/138477/Adult-Onset-Type-1-Diabetes-Current-Understanding
  6. C

    Change in Age of T1 Diagnosis in Recent Decades

    I'm 5 years post T1 diagnosis at age 43. Positive antibodies on 2 of the tests and hba1c of 147 I was asked to go on a trial so I've had my c peptide tested a few times after a glucose drink. Unfortunately testing stopped in 2020 with covid but I was still producing some insulin but with a...
  7. C

    What is the no 1 thing that frustrates you about living with type 1 diabetes?

    BG going haywire in the heat. Couldn't get below 12 yesterday until bedtime when it plummeted to 5. Today I've had lots of biscuits, ice cream and fruit and I'm still trying to get above a 5 before sleeping.
  8. C

    Diagnosed 2 weeks ago..on Metformin, low carb but eyes blurred! Worried

    Is your BG coming down? Just be aware that it is possible to be misdiagnosed T2 so if your BG doesn't decrease and you continue to lose weight then go back to the nurse sooner rather than later in case you are an undiagnosed T1. Blurred vision will sort itself out. It was the first indication...
  9. C

    Devastated at diagnosis

    Rapid weight loss, ketones going through the roof and uncontrollable BG levels even on a low carb diet. I was misdiagnosed as T2 purely because of my age and hba1c was 147 when I was finally told to go to A&E. Consultant was surprised I wasn't in a coma
  10. C

    Recent type1 diagnosis

    I was diagnosed T1 in my 40s after a fortnight where they kept telling me I must be T2 due to my age. I was skeletal by the time I visited the GP with high ketones so bit ridiculous in hindsight Anyway they also tried to get me to take statins but I pointed out that with a hba1c of 147 they...
  11. C

    Hot weather, frequent lows, T1D

    Me too... Puts me off going on holiday they can be so unpredictable in hot weather
  12. C

    Type 1 reality

    Weather? If I'm outside on a hot day it's a rollercoaster
  13. C

    Type 1 diabetic - Long Acting Insulin Usage

    Has your doctor done other blood tests? Iron, B12 and D deficiencies can all lead to weird feelings
  14. C

    T1 47 and think I’m pregnant

    I need to tell a friend this - she's worrying but had covid in early March. Negative pregnancy test but can't get a GP appointment and is imagining all sorts of issues
  15. C

    Undiagnosed T1 - advice needed!

    I think that's still the same calories in vs calories out basic argument - just saying that if you take too much insulin you'll need sugar (more calories) to stop the hypo so therefore you'll gain weight. OP - it IS harder to manage when you have to inject insulin. I mistimed my injections the...
  16. C

    Active 11 Year Old Newly Diagnosed

    I have to reduce my insulin massively on active days vs non active days. I have a very active lifestyle and any days which involve me sitting in an office can send my BG up into the teens as well because its hard for me to assess how much is needed. Keeping a diary is really helpful and in the...
  17. C

    How did your parents take the fact that their little child has diabetes?

    I was 43 when I was diagnosed but, considering my mother went into deniability mode and kept thinking it was all a mistake or perhaps I should do the 800 calorie diet as a cure, then I dread to think what my childhood would have been like! She was never great with poorly kids and I got sent home...
  18. C

    How to ask for change of insulin UK

    When I started reacting to lantus I didn't ask I demanded to get changed. Proper dig my heels in and refuse to leave the room demand.
  19. C

    Hypos during even very mild exercise

    I have the same in that certain times of the day even a short walk can cause my BG to plummet. For me it's definitely a tail effect of novorapid because it doesn't happen if I eat lettuce leaves all day and just take my tresiba. Initially it was thought my pancreas was dumping a bit of insulin...
  20. C

    2nd Vaccine Dose Reaction/ Symptoms - Do I get Booster?

    I had Pfizer and felt awful after my second dose - blood sugars all over the place, night time hypos, exhausted etc. Zero reaction to the booster at all apart from a sore arm. Most reactions are a good thing because it's your immune system waking up. Personally I think covid is worse than a...
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