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  1. paulliljeros

    Can anybody recommend a good Type 1 diabetes book?

    Sugar Surfing is probably the easiest read, and was a lightbulb moment for me. I went through 20 years of terrible control (dx T1 in 1986) and until 2014, was quite literally clueless about diabetes. Think Like a Pancreas, Sugar Surfing and Pumping Insulin were life changers for me. No need...
  2. paulliljeros

    Animas Vibe replacement

    Thank you so much for that feedback @kitedoc - that is exactly the kind of information I am hoping for. Not sure if the Tandem is available in this area of the UK, but it's precisely these kinds of details I am hoping for! I think the way I am looking at is "in an ideal world it would have all...
  3. paulliljeros

    Animas Vibe replacement

    @tim2000s, were you, or are you on the Animas Vibe? Appreciate you were at the forefront of closed loop systems a few years ago, so I assume you are still closely monitoring the current and upcomming tech - are you or anyone else able to provide any advice please?
  4. paulliljeros

    Animas Vibe replacement

    Thank you for the reply. I am trying to highlight, poorly I accept, that with the arrangement of the waterproof Animas Vibe, + Dexcom CGM sensor/transmitter, I have full freedom to undertake sports, etc in and out of water, and continue to have full control/siught of BGs and insulin. Without...
  5. paulliljeros

    Medtronic 670g with Guardian Sensor

    Hi @Topher, did you get any information on this -please?
  6. paulliljeros

    Animas Vibe replacement

    So, if I can bump this discussion and ask if anyone has had any more thoughts? @Engineer88 my concern with this is if I go into the sea, say windsurfing/paddleboarding, I want minimal electronics with me. if I were in a similar situation to @Priory99 and was moving away from the animas, linked...
  7. paulliljeros

    NHS Pump Problems

    Hi @kusaku , I'd definitely agree with what @tim2000s has said above. I have learnt the hard way over the last 5 or so years that I really didn't understand how the NHS works. The battles I had with my previous diabetes team paled into insignificance once I entered Renal care - but it's the...
  8. paulliljeros

    Nhs-funded Pump Without Meeting Nice Criteria?

    A very good point! I forgot to say that, part of my justification was that with the benefit of CGM, I had learnt how I could micro-bolus to maintain excellent control throughout the day, but this regime resulted in 10-12 injections per day,which is obviously unmanageable - hence direct proof I...
  9. paulliljeros

    Nhs-funded Pump Without Meeting Nice Criteria?

    Hi @SamJB , I had been T1 on MDI for over 25 years before I even considered a pump. I had terrible control, and a few things clicked, and I turned my life around. With an A1c consistently over 10 I asked my current "specialist" clinic, who I sadly despised, a few times about pumps, but was...
  10. paulliljeros

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  11. paulliljeros

    Finally out of hospital after successful SPK Transplant

    Finally out of hospital after successful SPK Transplant
  12. paulliljeros

    Steroids and basal dose

    Thanks @kitty55, that does indeed help. So far I am on 50mg pd and am at 200% basal and roughly doubling correction doses as a result of not really increasing bolus much, so I am going to start increasing bolus by about 80-100% as at least with CGM I can react to any over zealous doses I do do...
  13. paulliljeros

    Steroids and basal dose

    Good evening all, Having just gone through the fun of a suspected stroke, but getting the relieving news its "only" Bells Palsy, I was sent on my way with a big pile of steroids. I was aware of previous discussions regarding the affect on BG, so duly monitored, and as my sugars went up, so did...
  14. paulliljeros

    Insulin

    Also, did any of your insulin get put into the hold on the plane. Some plane holds are not temperature controlled so can be subject to freezing conditions, and therefore spoiling the insulin.
  15. paulliljeros

    Kidney Function Test Results

    this may help if you want some info before speaking to your doctor (src: http://www.rixg.org/results/egfr.html) eGFR is a test of kidney function. It uses the result of your Creatinine test with your age and sex to estimate an approximate percentage kidney function. eGFR is only an approximate...
  16. paulliljeros

    Kidney Function Test Results

    lol @Element137 Not sure about "expert" status, but I've definitely had a baptism of fire on CKD, transplants and dialysis over the last couple of years, so have done plenty of research as a result. When looking at Kidney function, I believe the eGFR is the result you should be more interested...
  17. paulliljeros

    Kidney Function Test Results

    Both dehydration and protein intake can affect urea readings. I suspect you already know most of the below, but it may help (src: http://www.rixg.org/results/urea.html) Urea is a small molecule produced from protein and put out by the kidneys, so blood levels rise in kidney failure. It is not...
  18. paulliljeros

    Importance?

    They both have their own roles, and so are both required for their own reasons. Should you miss either, than it is possible to work around it. I.e. if you were to miss basal, then you can just micro-dose with bolus throughout the day, or if you reduce carbs significantly, you can technical...
  19. paulliljeros

    Pancreas transplant

    Hi @misst1mammy I can tell you as someone on the SPK (Simultaneous Kidney Pancreas) waiting list, it is possible, but not ideal, and if I didn't have CKD (Chronic Kidney Disease), I would not be taking the route of transplant. In it's simplest form, the risks are just not worth it. The...
  20. paulliljeros

    Going "Out Out"

    Afraid to say there is always the potential to need insulin, and the one time you go out without it, is most likely the time you will need it. Its worth having your bolus insulin with you, even if you "know" you won't need it, just in case you decide to eat something carby, or indeed you...