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Hi, I'm a MODY 3, and new to this forum too. There seems to be loads of good info here on this forum when you start digging around! The phlaunt.com website mentioned above is really good, and the other great thing is that new info is coming out all the time.

Hi Totto Thanks for all your advice and your time. We're thinking about paying for the initial consultation, as i couldnt wait months to see if it was thyroid, just a gamble to waste money if its not (and will have to go NHS after, so not sure what it could acheive). Also still not sure if this...

Thanks Totto. Unfortunately doc won't go further than TSH test, especially as it came back normal. i am on the endocrine/diabetic consultants 'urgent' list, but people on the same list are still waiting from last August! I'm gutted as I can't drive or go out. Hubbie is having to be cinderella...

Hi thanks for the sugestions AdamAdam. Anxiety symptoms definitely kicked in in the first week of being poorly (i dont normally suffer from it, but i think thats what was happening, heart rate 130, and bp high. ) Doc put me on beta blockers for a few weeks, seems to have calmed down now...

Thanks so much for responding. Doc has tried all sorts of blood tests but everything coming back normal so far. I have an endocrine referral, but theres an 8 month waiting list for 'urgent' referrals! I've come to the conclusion that i am going to have to do some extra legwork to get to the...

Its never stopped me! Don't let it get you down. I just find that the extra adrenaline released sometimes means my blood sugars yoyo slightly, but i just make sure I test and have lots of snacks in my pocket. Sometimes theres no effect at all though :)

Hi, still feeling poorly :( Anyone else come across this? Been doing research and wondering if adrenal/thyroid could cause problems? Seems to all be very linked?

Hi thanks for posting. i have only ever taken insulin with meals, as it's only food that makes my bs go up? Snacks help a bit, and at the moment i feel like i am having to do that much more, but my body definitely seems to need the energy from a decent sized carb heavy meal, and only reacts...

Hi, i would second the ketone sticks to test her urine, it also doesnt hurt her like a fingerprick! I was advised by docs that this was best way to keep an eye on my kid.

Thankyou so much for responding, it's got me very puzzled!

Hi all Been poorly for 6 weeks now, but have had blips like this increasingly over last year. Nhs wait times here are months and months so thought I'd see if anyone had answers. I am having problems with extreme tiredness, which is teamed with the usual typical hypo or hyper symptoms, shaky...