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So glad to hear that you're getting good treatment and have specialist facilities. MIDD has affected at least 4 generations of women in my family, but only recently diagnosed because of complex issues my daughter has had to overcome. My son is waiting for his results currently. Take care :)

Thanks but me and my children don't have T1, we have MIDD and it appears there is no designated place for MIDD on this forum? As per the earlier comments, without 'fitting' anywhere, a great opportunity for discussion, support and potential research is being missed.

My daughter was diagnosed a few years ago (at 19 or 20yrs old) and confirmed with MIDD. My son has it too and I had blood test last week to confirm my diagnosis (100% sure already as I have passed it to both my kids). GP needs confirmation before referring for hearing and heart tests. My...