Search Results

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    Shocking story, what kind of a situation am I in?

    I sympathise with your experience. What amazes me though is your acceptance of medical practice and communication which clearly fails even the most basic test of what is reasonable. Up to you but on many levels (eg the NHS Constitution requires letters from consultants to gps to be copied to...
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    Type 3c

    Type 3c
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    Approved Online study to find out why do some people with diabetes experience emotional distress?

    Why is the study restricted to types 1 and 2? Are the researchers aware that there are other classifications? I have type 3c diabetes caused by haemochromatosis. That said, I'm pretty emotionally stable. But maybe all 3cs are. We'll never know from this study. :cat:
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    Type 3c - how many are we?

    I'm type 3c as a consequence of untreated genetic haemochromatosis (GH). I can't emphasise too much the importance of early diagnosis and treatment (simple venesection). Most GPs no little about GH and will attribute any abnormal blood tests to alcohol intake or other explanation - anything but...
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    Fibroscan results

    As someone with genetic haemochromatosis, your results mirror the key markers of that condition. Your ferritin levels are high but not excessively so - mine was 5,250 at the time of diagnosis. If you have the condition treatment by venesection is simple and effective and can reverse organ...
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    Haemochromatosis

    Yes @Bluetit1802 and thanks. My experience provides a salutary lesson for all of us.
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    Cause of Diabetes

    Are your liver function test results normal? If not, you might be interested in the discussion I started in the Type 1 Diabetes section on Hereditary Haemochromatosis (iron overload) as a cause of diabetes, and action to be taken.
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    Haemochromatosis

    Absolutely right Brunneria. I was diagnosed with diabetes two years ago, aged 63, following a full blood count. The fbc results also showed amongst other things that my ferritin level was over 5000 - massively in excess of normal range. This was completely missed by my gp and it was only after...
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    Haemochromatosis

    Many thanks for that link Brunneria. Perhaps it could be given more prominence on the site? My own experience has served to show that awareness of hereditary haemochromatosis is limited, even in practice. The reasons are perhaps understandable given that the initial symptoms of HH mimic a range...
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    Haemochromatosis

    I'm surprised that the site's information on the causes of type 1 diabetes, particularly its genetic causes, omits any reference to hereditary haemochromatosis. This is one of the most common genetic diseases among northern European populations. It can lead to iron overload in the body which, if...
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    Never been overweight but have Type 2 diabetes

    I was like you Champs42. Following my diagnosis it was discovered I had haemochromatosis - a genetic condition resulting in iron overload and causing organ damage, including pancreatic, leading to diabetes. Have you you had your level of blood iron tested recently?
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    Type 3c - how many are we?

    I was diagnosed originally as type 2. At my last outpatient appointment my consultant observed that I was neither type 2 nor type 1.He didn't specify type 3c but given the excellent information provided here and bearing in mind that I have hereditary haemochromatosis (belatedly diagnosed) I...
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    Type 1 Hab1c v Daily BG Measures

    Thank you.I'll certainly raise this with my consultant.On a more general note diabetes is a common consequence of haemochromatosis but the latter often goes undiagnosed due to lack of clinical awareness,particularly within general practice.Untreated the condition can cause serious harm to other...
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    Type 1 Hab1c v Daily BG Measures

    Many thanks Rochox.That link is really enlightening.
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    Type 1 Hab1c v Daily BG Measures

    I was diagnosed a year ago.My diabetes is a consequence of hereditary haemochromatosis causing iron overload and pancreatic damage amongst other things. I use insulin four times a day together with two 500mg Metformin tablets.Treatment for the haemochromatosis comprises weekly venesection i.e...