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An update I was originally referred to St Marys Hospital Paddington London for a Pancreas only Transplant in !996 by my now retired Diabetic Consultant at the Royal Free Hospital London as he had concerns about my deteriorating health. It was not an easy journey initially as I had serious life...

Yes, how daunting was that! I remember boiling my syringes and using the 'Rand Rocket' non disposable needles and can still smell the industrial methylated spirit !

Feeling?

Hi all I am in limbo at the moment. My Pancreas Transplant is no longer functioning and I am now back on Insulin after almost 21 years of freedom, but still have to take immunosuppressants. I am lost as things were very different back in the 90's. I have gone back to my original Diabetic team...

Hi anything you'd like to know about immunosuppressants then I'm happy to share as I've now been taking them for over 20 years.

Hi this could of been my story too. I was diagnosed at 16, was okay with everything for a year or two then wanted to be like everybody else and do anything and everything sod the Diabetes. I actually had a "Honeymoon" period of about a year so wasn't very happy when things went down hill again...

These are the UK Hospitals involved in Pancreas and Islet Cell transplants Details and statistics from. www.odt.nhs.uk Pancreas and Kidney/Pancreas Cardiff University Hospital of Wales www.cardiffandvaleuhb.wales.nhs.uk/ Edinburgh Royal Infirmary www.nhslothian.scot.nhs.uk London Guy's...

I know someone that's had two islet cell transplants and they only lasted 2 years. Catapillar perhaps you could talk to some other people that have experienced either a Pancreas or Islet cell transplant. There are FB groups available to join to share experiences with which are quite informative...

Hi Clare I only take the one immunosuppressant now, Prograf (Tacrolimus) started out on this plus Mycophenolate and Prednisilone, for about the first eight years then gradually weaned off Prednisilone as it can contribute to having a Type 2 diabetes and then stopped Mycophenolate due to low...

I understand, I'm under the care of West London Renal Transplant Centre so that's Imperial College (St Mary's, Hammersmith, Charing Cross) and they too have been marvellous over the years and still are, they look after you totally. The first couple of years were really tough, yes you are going...

Paul, see my previous post it might help. We're talking about 20 years ago with my transplant, things have moved on greatly since I had mine, more experienced surgeons, better techniques, etc; Try to keep as fit as you can pre transplant as this helps greatly with recovery, I know that's...

JuicyJ life before Pancreas Transplant was okay but since my mid twenties I'd had Peripheral Neuropathy and severe Gastroparesis for which I had two gastric surgeries, but my Diabetic Consultant was concerned about my ongoing deterioration and was in contact with a reknowned surgeon who was...

This the article that appeared in The Daily Mail 2005 I was Type 1 Diabetic from the age of 16, not a very good time to have diabetes in my teen years, I rebelled, so I understand so many comments on here from young desperate Type 1 diabetics. I had many complications and my then Diabetic...

Yes your right it's not a cure, it means I no longer have to inject insulin, take drugs for diabetes, however I still watch what I eat and take 12 different medications. I still have some of the diabetic complications some of which have progressed unfortunately, I am now 20 years post Pancreas...

I like the sun but it doesn't like me! The hot humid weather makes my Diabetes related Autonomic Neuropathy worse unfortunately, shortness of breath, dreadful low blood pressure, exhaustion, etc;

This is why they don't do more: 1. There are not enough donated ORGANS 2. It's a complex operation with very high risks during and post transplant 3. It is not a cure for Type 1 Diabetes as diabetic complications can still persist. 4. You have to take a lot of medication including...

Type 1 Diabetes, Hypothyroid, Colitis and recently Rheumatoid Arthritis, all auto immune

A word of warning My cholestrol has always been on the low side, never been overweight, have always had a low fat diet don't eat much meat, etc; so never really thought much about taking Statins however two years ago I had an investigatory Angiogram for chest pain, diagnosed with 80% blockage to...

Hi Vicky Just to say I went through a similar experience to yours with numbness and loss of feeling hot/cold in both my legs and feet below the knees when I was in my 20's, (in the 80's) this went on for a couple of years and nobody knew what to do with me, my control was pretty bad in my teens...

A SPK is a Simultaneous Pancreas and Kidney transplant . Stu if you are on Facebook you might like to join one of the many Transplant support groups, there are many people on these groups that are in a similar situation to yourself, they can be very informative and helpful. Good luck. Kidney...