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I see a number of we previous posters who have the carb dysmetabolism problem continue to slog through possible solutions, largely without professional guidance due, presumably, to the apparent rarity of this condition. I want to pass along an update to share what news I have. First, the...

Glad to hear Berberine has helped @glass_house. I don't know that I have mentioned in any earlier post about my tolerance buildup as you have described: "The longer I stay on the diet and exercise the more my body builds up a tolerance." I have the same reaction after staying on the...

Hi Howard-- I would recommend you read closely the posts in this thread. I have laid out most of what I have learned about this subclinical disease; and for me, in particular, with regard to the methylcobalamin supplementation and the notorious unreliability of the standard serum cobalamin test...

Hi @DebraS, Had not heard of Brewers Yeast for carb dysmetabolism before. Interesting that it is principally B vitamins, but be aware 3-4 TBLS of BY has about 60-80 carb grams. At my worst time with this syndrome, that would have been more than enough to cause real problems. BYMMV. Read earlier...

@mahsiyat , if I may offer the suggestion that since you had a B12 deficiency, consider trying a B12 cofactor instead of the off-the-shelf cyanocobalamin. It is further discussed in other posts. Also, you may not be aware that the serum cobalamin blood test is widely seen as inadequate, and the...

Hi @KimVeld, Welcome to Carb Dysmetabolism 101 where we are pooling clinician experiences and information trying to feel our way toward a diagnosis. As you have seen, we have been grinding away at this syndrome for a year on this forum; some of us much longer privately. By sharing data about...

@Jaylee thanks for that post. Anecdotal is fine and adds another data point to potentially fleshing out a disease syndrome.

Hi @nixynerd, sorry to hear this is your problem although I am glad to hear of another case of apparent carb dysmetabolism. I am not a student of medicine so I can advise only what has worked for me. I had symptoms of sjogren's syndrome with a burning anterior tongue and lips. At least one...

Hi @DionneT and @J_Eicher, I have just begun a personal trial of a supplement widely used for glucose regulation. It’s early for me to draw a conclusion but the result in eliminating the acute carb-induced distal numbness over the past two weeks has been dramatic. Berberine is known to many...

Lamont-- I expect you haven't had this type of testing but have you had anyone measure your methylation status, or have you gotten any indication your system is hypomethylated? While I am not suggesting this, one way to test is to take a methylated supplement (e.g., methylcobalamin) to...

My daughter responded well to MeCbl over a year ago but it exacerbated her pain. Her pain levels at the time were 7-8 when under very strong pain management. She has permanent damage to her stomach lining, a lot of vomiting; some carbs are the only thing she can sometimes keep down. Here's a...

Hi @Brunneria -- Thanks for the interest in my posts. I confess confusion though over your reference to "quoted texts". I would have to go back and review my posts but in general, I do not offer quotes. One that does come to mind was from a cell biopsy; it was clearly identified as such. If you...

Hi Dionne, finally getting back. "The ketogenic diet has reduced my sinusitis to almost none. Has diet/b12 also improved this for you?" I've had sinusitis since my days as a teenager; I'm approaching 71. The essentially life-long infections stopped with MeCbl repletion a little more than four...

I would continue with the keto diet as you have applied it. I also have (infrequent) tibial shooting pain and suddenly worsening tinnitus. How long have you had sinusitis, how often have you taken antibiotics for it, and which antibiotic? (Ongoing infection is also a symptom of B12...

Hi Dionne— Glad to hear about the progress you are making. Let me share a few data points with you concerning methylcobalamin (MeCbl) and its use. First, the BIG rule of thumb with supplements (as you may know) is “Start low, go slow.” As you are getting a significant result at 1.5 mg, I...

Hey Lamont-- Thanks for the input. I agree a small intestine bacterial overgrowth could be the problem. I've had a SIBO breath test and it was negative BUT they tested only for hydrogen gas, not methane as well. I will have this test repeated in the future as the symptoms are a pretty good...

From Dionne: “ Unfortunately still no explanation .... “ “ Hello, I just wanted to second Lamont D's suggestion of fasting.... “ Hi Dionne, thanks for the reconnect— I have had an initial visit with an immunologist; first-round testing has uncovered no autoantibodies. More testing to follow...

Wow, that's hard-won information. I'm going to look more deeply into intermittent fasting. I have seen studies extolling the benefits of fooling the body into thinking starvation is underway. Thanks for the help. Best Regards.

Lamont, Can you tell me a bit about your fasting and caloric need? How many calories per day did you consider to be fasting? and how many fasting days? What is your daily caloric intake? And what is typical for your weight/height?

Thanks for responding-- Yes, not infrequently older folks lose the ability to absorb B12 because of the failure of the protein known as intrinsic factor to do its job. But you have hit on an avenue of investigation I am currently pursuing. In my case, intrinsic factor is alive and well...