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Thanks so much for posting this. Glad you have been diagnosed finally, hopefully you will get more support going forward. My situation is pretty much mirrors yours and I have family members already diagnosed. I have been waiting for testing for over a year now and it is very frustrating.Have...

Same problem with me, can't put weight on but high probability I have MIDD and its a common trait of this disorder[emoji24]

Had my first one a few month back and it was fine[emoji106]

Hi smallbrit glad you've made some progress regarding testing, I am being dealt with by someone att salford royal hospital and haven't heard anything for a few months when I was told I would attend clinic in 4-6 mths for testing (covid permitting), been advised tests will be a formality and they...

The vit supps help towards the easing of muscle pains /cramps and general feeling of fatigue and lack of energy I believe, hope so because I have felt like a zombie for years and always put it down to shift work.

Information was very sketchy because over the phone and my **** hearing but yeah they said a mixture of vitamins is required and they would contact GP about this, the blood reading was a revelation however everything I read regarding this condition points towards the need for insulin eventually...

Appointment for genetic testing was cancelled unsurprisingly and swapped for phone consultation in which I was diagnosed midd over the phone due to family history coupled with my symptoms. They said I would have testing in 4-8 months and this is just a formality and I need to take multi vit and...

Cheers I will keep you informed, got clinic mid August so have stopped taking metformin and statin in the meantime incase I have been wrongly diagnosed type 2,,,,hearing not good at all but get by with aids and it doesn't bother me at all wearing them anymore even with a bald head. What worries...

I get exactly the same, I have always suspected reynauds disease as get the lack of blood to fingertips also when touching cold things

Hi Martl I am new to the forum and it was interesting reading your post regarding MIDD. I have type 2 and have had hearing aids for about 8 years. I am 40 and was diagnosed type 2 about 6 months ago. My has midd and I am going to the genetic clin ic mid August for testing. Following a phone...