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Hi, sorry, only just seen your reply. On train back from hospital, so just quickly going through the link. Very interesting to know there is an advocacy service for future reference. Thank you for looking. I don't think it would apply in this case as it has to be patient-initiated and Chris...

Thankyou. I am taking your points onboard. I had originally drafted a complaint letter but withheld sending it as my sister (who is closer to the hospital than me and able to visit more) was under a lot of strain, it has been really taking it's toll the last 14 weeks trying to fight to get Chris...

Thank you for your reply. It is very shocking in the 21st century that this is considered acceptable, its not like diabetes is some new disease just been discovered?! I will be writing a formal complaint once we get him out of there. I feel the only way things get changed is if enough people...

Typo - "climate"

Thank you for your reply. It's very difficult trying to do your best for loved ones in this climate. My sister a d I are not diabetic so struggling to find a way through this. We are both shocked at the treatment, or lack of care, for diabetics, we weren't sure if this was an isolated case or...

My brother has been in East Surrey Hospital for 14 weeks. He has been diagnosed with brittle diabetes. In all this time they haven't been able to stabilise his blood sugar, he hasn't been seen by a diatecian, he has had very infrequent visits from the diabetic team, there is no diabetic menu...

Thanks for your reply. I am very loath for him to go in a home, even for convalescence, but it might, sadly, be necessary. I live on a 1 bedroom houseboat and there is no other family "space" available and he has no family/friends near his current flat, which is a very long way away. But thank...

Hi, thank you very much for your detailed reply. After taking action to try to move him from that hospital a new consultant has turned up and seems to be on the case, has said he will visit daily. Also another Dr involved (who was on holiday) has repeated his view he has some viral encephalitis...

Hi, thankyou for your reply. Yes we were aware of that. We are just keen for them to get his BG to stabilise as very concerned about the detrimental effect on his general health and brain health with this prolonged period of instability.

Thank you for your support. This lack of diabetic care in hospitals is a comp,ete revelation to me ( sadly). Though my sister had already come across the fact on this site that 1 in 4 diabetics in hospital experience hypos......

Hi again, my brother after 10 weeks in hospital still has dangerous swings. 3 today pre breakfast, then 29.6 after lunch & again 29.4 before tea. I remembered your advice. I think he needs to go to the BRI near me as this hospital isn't helping. Really worried he will go into a hypoglycemic...

Hi that's a really good option, I must look into that. Unfortunately his long term uncontrolled BS, as far as we understand there are no other factors been presented so far (there was some idea it was encephalitis but not sure now), has produced some confusion so he is not able to manage it...

Thankyou. Yes some more positive fighting is required :)

Thank you for your help. Is there info on different options of living at home though? That's hat I am most interested in. Thanks.

Thank you for your reply. There are a lot of angles to put in a post. I mainly wanted to know options of living alone with a diabetes that was difficult to control as we have no knowledge of this, my other brother is T1 for 40 years but hasn't had much trouble it's easy for hospitals to...

Thank you for your reply. Very useful as the hospital is keen to put him in the dementia box though his tests on that point were clear. We are trying to get more input from diabetic team and point out that the symptoms he was admitted to hospital for haven't actually been resolved at all. His Bs...

Thank you for your reply. He was admitted with blood sugar highs and confusion, which has reduced a bit, he has had 3 different tests for dementia but he shows no signs, although that will ve the gall back diagnosis sadly. ... We are fighting him to get more help with BG stabilisation...

Thank you for your reply. I didn't put everything in post as I needed some general input about options for living independently. Unfortunately he has some mental confusion alongside the blood sugar swings. It seems he has had uncontrolled diabetes for possibly 3 years so my feeling is that this...