Search Results

Hi hope you don’t mind me adding some tips for your FET-1 test for Epi you don’t need to wait to or stop creon for the test you can astray them now. One thing that is important is that the stool sample is formed other wise it will be low any how do your be wasting your time. I have Epi because I...

Hi yes this is common after cancer treatment I was going to have mine at the royal free but went to Oxford instead. There is lots to learn about EPI so I hope I can help. Firstly epi is determined on a FET and severity of Epi and body weight. People tend to increase there pert as there symptoms...

I think it’s time you spoke to your GI about ppis I was in this situation and ended up in A&E due to weight loss and pain when eating, I was told it was pancreatitis and refered to a dietitian which didn’t and should of happened after my distal pancreatectomy for a NET tumour. most people are...

Hi you can get creon in 10,000 it means taking more tablets but better than none. Always try and keep one months supply so you don’t run out, speak to you GP. It didn’t happen very often but it’s better than get stressed out when it does.

Most protein powders are full of fat and sugar so I had vegan to help me put weight on. Vegan ones are made of pea and rice proteins which I found easier to digest plus low sugar. You can get it from home bargains I prefer vanillia. If your epi is good then you should not be losing weight...

Have you try a vegan protein powder ? This will help with muscle loss also.

Hi good morning Yes this sometimes happens creon was available 36, 000 but that was stopped. Best bet is to always have ones months supply of creon so you don’t run out. It’s been two months now still no 25,000 I’ve heard also it’s happening in other country’s.I prefer creon in 10,000 tbf found...

Hi just stumbled across this your creon dose depends on your body weight, size of the meal and fat content. It’s better to take more than not enough. Do you take ppis with your creon this actually helps for your pert to work better. I’m on a higher dose 100,000 with snacks double with meals my...

Hi can I ask if you are taking ppis with your creon as they make you creon more effective. the difficulty is that pancreatitis patients are often unable to digest high fat meals. weight lose can be is a sign that you need to increase your dose. I understand that you are already trying to catch...

Hi there just wanted

Hi pert is often prescribed as it helps with pain if your pancreas is damaged. Pert is only prescribed when exocrine pancreatic insufficiency is tested for and is often over looked at A&E it not common. you need to ask you GP / endo to refer you to a gastroenterologist who will carry out the...

thank you for your reply yes this has clearly got my Gp stumped and I am glad to say that I have an appointment with my endocrinologist in January. I have also purchased the book Primal Pancreas that another member suggested on here this will hopefully help me to move this forward in the new...

Hi I'm new to the forum and looking for some help. Diagnosed in 2014 with a Insulinoma a rare neuroendocrine tumour (NETs). Had surgery in 2014 and again 2016 a distal pancreatectomy was performed It was hit and miss if I needed Creon and had no real problems until February of this year. I'm...