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Jo, I agree the outlook doesn’t look good, I appreciate everyone is doing as much as they can but as I’ve said I need something more concrete. I need to know the pancreas isn’t doing it’s job properly. We go forward doing as instructed but I can’t give up the hope yet.

Oh absolutely. We wouldn’t changed anything before being told to. She’s having a Dexcom fitted tomorrow. I just feel I’ve got to explore every avenue. Why does the web say hbA1c shouldn’t be used for children?

This is the reason why I’m questioning hbA1c

Oh absolutely. We wouldn’t changed anything before being told to. She’s having a Dexcom fitted tomorrow. I just feel I’ve got to explore every avenue. Why does the web say hbA1c shouldn’t be used for children?

I agree. They dropped from 27 to anything from 3 to 12 whilst in hospital during the 3 days and on insulin. I just need concrete evidence that the pancreas is producing little if no insulin at all then I can accept the diagnosis. How can this be obtained?

Oh absolutely. We wouldn’t changed anything before being told to. She’s having a Dexcom fitted tomorrow. I just feel I’ve got to explore every avenue. Why does the web say hbA1c shouldn’t be used for children?

I will be exploring every possible avenue before I accept the diagnosis. So many unanswered questions, alarming rate of misdiagnosed cases…. I’ll be on to our GP 1st thing in the morning. Thanks everyone

What is the best test for finding out if low or no production of insulin from pancreas please? 12 yr old daughter recently diagnosed T1D but I’m not happy every avenue has been explored. Thanks

Hi, yes it was a finger prick test. She had eaten cereal in the morning, toast at break time then a butty, grapes and a biscuit at lunch time. Just very concerned that she didn’t have a fasting blood test in hospital, they’ve used a hb1ac test which shouldn’t be used to diagnose in kids, 0...

Hi, thanks for replying. We are ready for bad news and are currently moving on as instructed, however with us finding conflicting information and the correct procedures not carried out in hospital, we feel a second opinion should be carried out. Why no fasting blood test? Why use a hbA1c test...

Hi guys. Just wondering about anyone’s opinion on the following: My daughter aged 12 yrs went to the GP last week as she had been complaining of increased thirst, blurry vision, more toilet visits, tingling in legs. GP did a blood test & found a reading of 27 but 0 ketones in urine. Admitted to...