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  1. Flip74

    What should happen after diagnosis?

    Well, I thought I'd better post an update. I went for the emergency eye examination, last Tuesday. I had a pretty thorough examination, and was told that I have macular degeneration, and the early signs of a cataract; both are in my right eye. I am also quite myopic, now, too. It's got me quite...
  2. Flip74

    What should happen after diagnosis?

    Well, after not hearing back from the hospital for over a week, I contacted the secretary who said she'd pass the message on to my gastroenterologist, and would email me, which she did. I was told to make a referral with Public Health Wales, myself, which I can't. I replied back with a link to...
  3. Flip74

    What should happen after diagnosis?

    The practice manager said that she would arrange a telephone consultation with the GP (the one who eventually notified me that I needed a blood transfusion in 2020. I've never met him, by the way!) for today. As it was only going to be regarding a sleep study for sleep apnoea (which he said he'd...
  4. Flip74

    What should happen after diagnosis?

    Well, I wrote a letter to the practice manager at the surgery, and received a reply a few hours later. Basically, it was a waste of time! She's telling me that I've got to contact the hospital to get them to do a referral for eye screening. She's not even offering to get one of the GPs to...
  5. Flip74

    What should happen after diagnosis?

    I think it's coming to that. My Plaid Cymru councillor is taking Betsi and the surgery, on, so I may contact her. I'd change surgeries, but they're all supposed to be bad, and some aren't following guidelines for pernicious anaemia. They're stopping B12 injections, and putting patients on...
  6. Flip74

    What should happen after diagnosis?

    Hi Kenny, Thanks again for replying. I really appreciate it. Basically, that's what the Welsh Endocrine and Diabetic Society said regarding the HbA1c, and that the result in October 2022 was so high it didn't require retesting. I just don't get why I wasn't notified after the October or...
  7. Flip74

    What should happen after diagnosis?

    Thanks Bevvy, Sorry to hear about the DKA. Hope you're feeling a bit better now. I've got to phone up the dietician, but conveniently the letter which was delivered on Saturday is dated 12th of October, saying they'll give me 14 days from the date of the letter, which will be Tuesday! What...
  8. Flip74

    What should happen after diagnosis?

    Hi, I'm from Wrexham. The support here hasn't been the best, and the health board is back in special measures. I had 2 appointments cancelled (one in April, the other July). It wouldn't have been too bad if the GP was there. I know what you mean by pushing. The diabetes has sideswiped me a...
  9. Flip74

    What should happen after diagnosis?

    Hi Kenny, Thanks for replying, and I'm sorry for not replying sooner. I felt really burnt out and crashed over the weekend. You're right, I very much doubt I've seen the consultant; over the 3 years, I've seen about 5 juniors, and haven't seen the same one twice until this one now. I think I...
  10. Flip74

    What should happen after diagnosis?

    Hi Kenny, Thank you for replying. The doctor I saw last week was a gastroenterologist; I've been under them since being hospitalised 3 years ago due to "life threateningly low haemoglobin" which required a blood transfusion. I was diagnosed with pernicious anaemia (they knew I was b12 deficient...
  11. Flip74

    What should happen after diagnosis?

    Hi, I was officially diagnosed with diabetes, last Tuesday, 12th September, and I'm pretty confused about what should be happening regarding referrals and other things in general. The doctor I saw isn't sure whether I'm type 1 or type 2 (I think I may be 1.5), so she arranged for another batch...
  12. Flip74

    Feeling stuck.

    Hi Ellie, Thank you for your reply, and I'm sorry for just getting around to responding. I thought I might have heard some more regarding Tuesday's appointment, but there's been nothing - I'm not sure how long the referrals take; I'm a little concerned I'm going to be left like I was, last...
  13. Flip74

    Feeling stuck.

    Hi all, I had an appointment at the gastroenterology department, yesterday, and have had it confirmed that I'm diabetic. The consultant thinks I may be type 2, but is testing for "diabetic antibodies" to see if I'm type 1, and took a few blood samples. Whilst I was there, she tested my blood...
  14. Flip74

    Feeling stuck.

    Thank you so much for taking the time to read my post (think I waffled on a bit!) and for replying. I feel like I'm drowning, in a way. Feels like the Pernicious Anaemia has been holding back a few other conditions back, and now the P.A. is getting treated, the gates have opened and there's all...
  15. Flip74

    Feeling stuck.

    Hi, I was hoping you could please give me advice regarding the following. On the 24th of September 2020, I was rushed in to hospital for a blood transfusion due to what the GP said was "life threateningly low haemoglobin". I was also found to be deficient in various vitamin and minerals...
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