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Good news! I changed clinics and after several months of negotiation I now have an Omnipod 5. Early days, but so far, so very good. I am having to fund this privately, but for a tenner a day it's more than worth it, and I hope things might change soon. I'm so pleased. The persistence has paid...

So I had an appointment this afternoon at a neighbouring clinic and - I am going to move onto a pump!! I couldn't be more pleased. I am going to have to self-fund at least initially, but they were so helpful and understanding, and hopefully things might change in terms of funding. It was well...

I am in the process of trying to change clinics. My GP has made a referral. The new clinic is being helpful, but is concerned that there may be problems transferring NHS funding. I have looked this up and it said that NHS services are funded based on the GP registration not on the specific...

OK I have decided that I would like to fund privately until I reach the top of the waiting plist, but does anyone know if paying privately compromises getting one on the NHS eventually?

Hi, does anyone have a view on this, please? Also, I got into a discussion with a well known diabetes medic on Instagram. He was lauding the success rate of providing pumps to younger patients and I suggested that whilst this was great, those of us who have been T1 for decades seemed to be...

Thank you. Very interesting and very dispiriting, although do you think this might provide a ray of hope? I understand that even current NHS England's diabetes technology lead, who was instrumental in getting NICE TA943implemented, would like the current rather strict hybrid closed loop...

Thank you very much for this. I've read some of the earlier posts about advantages and disadvantages. But what I find really annoying is the postcode lottery element, when some (a lot) of us are denied even the chance to try a pump, in my case after nearly 43 years of injections. Just basing the...

Thank you for your response. Would you be able to tell me, please, how pumps are hard work and in what ways they can go wrong? My consultant didn't really say, other than to advise that if it were him he 'wouldn't be in a hurry' to get one.

I was wondering whether anyone had any advice on this question? I had my appointment with the consultant this week. Still no pump, but he did agree to putting me on the waiting list, which is something I suppose, though he said it would be at least three years. He also said that he would write...

Was your HbA1c higher in order for you to be prescribed a pump or are you in a part of the country where it's easier?

They have apparently given around 19 pumps out of 1700 patients - I don't know what sort. Yes good point about the alarm. I have a Libre 2, so I will do that. Thanks.

One of the things that worries me is that I was fairly recently diagnosed with sleep apnea and have to use a CPAP machine every night. As a result I sleep much more soundly and I can't guarantee that I will wake up for a hypo. This is not taken into account, they are just going on my predicted...

Could I ask those of you who have pumps - are they worth it? Someone from my clinic seemed to imply that they aren't. I'm just wondering whether to go to all the expense of privately funding.

Yes, I am looking into this. I just don't understand why my current clinic, where I have been going for nearly 40 years, is being so unhelpful, in that they won't even support me in funding a pump privately. I have written to them again. Thank you for your response.

It seems to apply to every pump unfortunately.

Hi I am still getting absolutely nowhere. I emailed as advised, but have not had a reply. My diabetes clinic will not help in any way. I think I'm stuck. (Mod edit to remove HCP name)

Good idea, I will do that.

Apparently the refusal is because of cuts made by the local Integrated Care Board (which trumpets online that its aim is to improve the life of all patients, which is obviously a joke). I was horrified to learn that out of 1700 patients, my local diabetic care team has only been able to supply...

Thank you so much. This is really helpful. I haven't given up - although my clinic seems to be ignoring me at the moment- and I am about to contact Prof xxxx. (mod edit to remove name of HCP)

Hi I have not got anywhere with the clinic, they are being really unhelpful, even implying that they wouldn't help me if I funded privately. There are many reasons I feel that I should qualify, but they are sticking rigidly to my HbA1 prediction of 56 - it would apparently needs to be 58. They...