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<blockquote data-quote="Smallbrit" data-source="post: 2026727" data-attributes="member: 456748"><p>Hi there! I hope your genetic tests are useful. It's not occured to my GP/diabetic nurse to follow up with that - they seem happy to have decided that I am type 2, on the grounds I'm not type 1 - and I think I might have 'solved' my diabetes in their eyes before they felt the need to get to the root of things. But misdiagnosis of type 1 or type 2 often happens with MIDD.</p><p></p><p>I'm fairly sure I have MIDD as I'm following exactly the same path as my mother: been going progressively deaf since my 20s/ late-30s diabetes diagnosis. I never had the foresight to ask my mum if it was type 1 or 2: I just remember she used insulin and massive injection needles. I brought MIDD up with my GP, who'd never heard of it, and he decided we shouldn't try metformin because of it. And that was that - like he just assumed I was right, and that I'm managing diabetes by diet and there's nothing to look into. I can't decide if there is or there isn't... I don't know if knowing would change anything, for me at least. But I do have a daughter, and she should be prepared.</p><p></p><p>I lived in the US for ages and I use a private audiologist here as I have non-NHS hearing aids so my NHS records have a massive gap in them and no hearing-related things at all. Just that I returned five years ago and then got diagnosed with prediabetes then a massive jump to type 2 (GAD testing was done). But I brought HBA1C levels down to prediabetic levels with low carbing, and... that seems to be all anyone is interested in.</p><p></p><p>Everyone was just glad I wasn't born deaf. No one told me that I would be profoundly deaf by now. Nobody even thought about diabetes. Oh, I have evil tinnitus too. I was complaining about it to my husband recently, and he innocently assumed it didn't bother me any more and had got worse. No... it's always here and always annoying, I just felt the need to moan at that point. But moaning about it every day for 18 years would have driven us both crazy!</p></blockquote><p></p>
[QUOTE="Smallbrit, post: 2026727, member: 456748"] Hi there! I hope your genetic tests are useful. It's not occured to my GP/diabetic nurse to follow up with that - they seem happy to have decided that I am type 2, on the grounds I'm not type 1 - and I think I might have 'solved' my diabetes in their eyes before they felt the need to get to the root of things. But misdiagnosis of type 1 or type 2 often happens with MIDD. I'm fairly sure I have MIDD as I'm following exactly the same path as my mother: been going progressively deaf since my 20s/ late-30s diabetes diagnosis. I never had the foresight to ask my mum if it was type 1 or 2: I just remember she used insulin and massive injection needles. I brought MIDD up with my GP, who'd never heard of it, and he decided we shouldn't try metformin because of it. And that was that - like he just assumed I was right, and that I'm managing diabetes by diet and there's nothing to look into. I can't decide if there is or there isn't... I don't know if knowing would change anything, for me at least. But I do have a daughter, and she should be prepared. I lived in the US for ages and I use a private audiologist here as I have non-NHS hearing aids so my NHS records have a massive gap in them and no hearing-related things at all. Just that I returned five years ago and then got diagnosed with prediabetes then a massive jump to type 2 (GAD testing was done). But I brought HBA1C levels down to prediabetic levels with low carbing, and... that seems to be all anyone is interested in. Everyone was just glad I wasn't born deaf. No one told me that I would be profoundly deaf by now. Nobody even thought about diabetes. Oh, I have evil tinnitus too. I was complaining about it to my husband recently, and he innocently assumed it didn't bother me any more and had got worse. No... it's always here and always annoying, I just felt the need to moan at that point. But moaning about it every day for 18 years would have driven us both crazy! [/QUOTE]
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