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<blockquote data-quote="martl" data-source="post: 2027827" data-attributes="member: 497890"><p>Hi Smallbrit,</p><p></p><p>It's odd. I explored so many avenues with the deafness and tinnitus, including spending big bucks on a private consultant and no one could pinpoint why it was happening in my late 20s. But then when the diabetes came along, I did ask both my Diabetes Doctor and my Audiologist if there was any link between the two. The Dr said no, and the Audiologist said she'd heard a few theories but nothing concrete. Then my sister did some online research and found out about MIDD, and it matched me completely. Mum has diabetes (she's prediabetic but on the verge of Type 2) and is very deaf. I got the deafness first in late 20s and diabetes in mid 30s, similar to you. I sent my Dr this info and they agreed, and sent me to the Genetics team.</p><p>Please push the issue with your doctor. I know what you mean about what use does it do knowing, but for me it was so important to have an explanation to these two conditions that adversely affect my life so prominently. And even if there is no existing cure, it's so rare that the more research they can do into it can potentially help others in the future.</p><p></p><p>Re your daughter, if it's any consolation, none of my siblings have MIDD, so fingers crossed. We're expecting our 1st next month, so luckily as it's maternally inherited, my MIDD won't be passed down to our little one.</p><p></p><p>Tinnitus is a ******. As if deafness isn't bad enough, a constant screeching in your ears, it's like hell! But as bad as it is after years I think you do get used to it and my hearing aid masking device does help with it. Just costs thousands of pounds (I've done it privately too to get a proper in ear one).</p></blockquote><p></p>
[QUOTE="martl, post: 2027827, member: 497890"] Hi Smallbrit, It's odd. I explored so many avenues with the deafness and tinnitus, including spending big bucks on a private consultant and no one could pinpoint why it was happening in my late 20s. But then when the diabetes came along, I did ask both my Diabetes Doctor and my Audiologist if there was any link between the two. The Dr said no, and the Audiologist said she'd heard a few theories but nothing concrete. Then my sister did some online research and found out about MIDD, and it matched me completely. Mum has diabetes (she's prediabetic but on the verge of Type 2) and is very deaf. I got the deafness first in late 20s and diabetes in mid 30s, similar to you. I sent my Dr this info and they agreed, and sent me to the Genetics team. Please push the issue with your doctor. I know what you mean about what use does it do knowing, but for me it was so important to have an explanation to these two conditions that adversely affect my life so prominently. And even if there is no existing cure, it's so rare that the more research they can do into it can potentially help others in the future. Re your daughter, if it's any consolation, none of my siblings have MIDD, so fingers crossed. We're expecting our 1st next month, so luckily as it's maternally inherited, my MIDD won't be passed down to our little one. Tinnitus is a ******. As if deafness isn't bad enough, a constant screeching in your ears, it's like hell! But as bad as it is after years I think you do get used to it and my hearing aid masking device does help with it. Just costs thousands of pounds (I've done it privately too to get a proper in ear one). [/QUOTE]
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